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Behind #icebucketchallenge: 19 Things You Should Know About ALS

Behind #icebucketchallenge: 19 Things You Should Know About ALS

The “Ice Bucket Challenge” has been all over social media lately. Basically, the idea is that participants in the challenge film themselves getting doused in ice water in support of the ALS Association. Participants nominate friends and family to either complete the ice bucket challenge as well, or to donate to the ALS Association (most people are expected to donate around $100).

With all of the attention and donations that the ALSA has been getting (the organization has so far raised $88.5 million), many people still aren’t sure what ALS is. The point of the challenge is to raise awareness of the disease and to raise money to fight it, but not everyone is as informed as they could be. So consider this your comprehensive guide to all things ALS and educate yourself a little bit before participating in that bucket challenge.

Who gets ALS?

1. ALS stands for Amyotrophic lateral sclerosis.

It is also known as “Lou Gehrig’s Disease,” as American baseball player Lou Gehrig was diagnosed with the disease in his mid-30s, thus ending his career with the Yankees. ALS is what is known as a motor neuron disease.

2. Genetics is a risk factor.

According to the Mayo Clinic, between 5-10 % of people with the disease inherited it from a parent. Children of people with ALS have approximately a 50/50 chance of getting the disease.

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3. Smoking is also a factor.

Smokers have a greater chance of getting the disease than nonsmokers. The longer the smoker has been smoking, the greater the chance of getting ALS. Quitting can reduce these chances.

4. Middle age is when most are diagnosed.

Most people diagnosed with ALS are between the ages of 40 and 60.

What is ALS?

5. ALS causes nerve cells to die.

Nerve cells in ALS sufferers break down and eventually die, which leads to extreme difficulty in controlling muscle movement.

6. It starts with twitching.

In many ALS patients, the first signs of the disease are twitching in the arms and legs. Weakness in the limbs is also a possible sign of the disease.

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7. It eventually leads to bigger problems.

After diagnosis, most people only live for around 2-5 years, according to the ALS Association. People with ALS eventually have difficulty doing many basic tasks and struggle with speech. Near the end, people with ALS cannot swallow, and eventually, cannot breathe.

8. It is not contagious.

No one with ALS can give it to anyone else. This is good news for family members or friends who wish to keep their loved ones with ALS at home for as long as possible. Many family members take on the role of caregiver, and with no risk of contagion that is easier to do.

9. ALS is terminal and there is no cure.

People diagnosed with ALS die from the disease, and so far there is no cure. The ALS Association uses the money donated to research the disease, as well as provide care for people and families who are currently coping with the disease.

What is it like to have ALS?

10. Muscle weakness.

Picking up objects and doing what most of us might consider to be simple tasks like brushing our teeth become very difficult. One woman whose husband has ALS describes picking up a fork as being like picking up a 10 lb. weight again and again.

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11. Fatigue.

One symptom of ALS is extreme fatigue, including excessive yawning.

12. Pain.

ALS makes it hard to move when uncomfortable, and the muscles that waste away are no longer stimulated. Even turning over in bed may not be possible.

13. Paralysis.

Eventually, the disease leads to paralysis. Imagine not being able to move any part of your body but your eyes, and you’ve got a glimpse into what paralysis must feel like.

Can ALS be prevented?

14. Not smoking.

Nonsmokers have a lesser chance of getting the disease, as mentioned above. If you’re a smoker, quitting reduces your odds.

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15. Eating brightly colored fruits and veggies.

There is some evidence that eating brightly colored fruits and veggies (especially those that are red, orange, and yellow) can help prevent the disease.

What can I do?

16. Ice bucket challenge.

The ice bucket challenge has raised tons of awareness and money for the ALS Association. If you’re inspired to participate, please do! Nominate your friends and family and challenge them to continue raising awareness.

17. Donate money.

If you don’t want to dump ice water on your head, consider just making a donation at alsa.org. Any donation, no matter how small, will make a difference.

18. Raise awareness.

Share this post and any other information with your friends and family on social media to help spread the word and educate people about ALS.

19. Hold a fundraiser.

If you want to raise more money than you could donate on your own, consider holding a fundraiser at your school, church, or community center.

Featured photo credit: University of Central Arkansas via flickr.com

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Maggie Heath

Maggie is a passionate writer who blogs about communication and lifestyle on Lifehack.

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Last Updated on March 24, 2021

8 Smart Home Gadgets You Need in Your House

8 Smart Home Gadgets You Need in Your House

We’ve all done it. We’ve gone out and bought useless gadgets that we don’t really need, just because they seemed really cool at the time. Then, we are stuck with a bunch of junk, and end up tossing it or trying to sell it on Ebay.

On the other hand, there are some pretty awesome tech inventions that are actually useful. For instance, many of the latest home gadgets do some of your work for you, from adjusting the home thermostat to locking your front door. And, if used as designed, these tools should really help to make your life a lot easier—and that’s not just a claim from some infomercial trying to sell you yet another useless gadget.

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Take a look at some of the most popular “smart gadgets” on the market:

1. Smart Door Locks

A smart lock lets you lock and unlock your doors by using your smartphone, a special key fob, or biometrics. These locks are keyless, and much more difficult for intruders to break into, making your home a lot safer. You can even use a special app to let people into your home if you are not there to greet them.

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2. Smart Kitchen Tools

Wouldn’t you just love to have a pot of coffee waiting for you when you get home from work? What about a “smart pan” that tells you exactly when you need to flip that omelet? From meat thermometers to kitchen scales, you’ll find a variety of “smart” gadgets designed to make culinary geeks salivate.

3. Mini Home Speaker Play:1

If you love big sound, but hate how much space big speakers take up, and if you want a stereo system that is no bigger than your fist, check out the Play:1 mini speaker. All you have to do is plug it in, connect, and then you can stream without worrying about any interruptions or interface. You can even add onto it, and have different music playing in different rooms.

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4. Wi-Fi Security Cameras

These are the latest in home security, and they connect to the Wi-Fi in your home. You can use your mobile devices to monitor what is going on in your home at all times, no matter where you are. Options include motion sensors, two-way audio, and different recording options.

5. Nest Thermostat

This is a thermostat that lives with you. It can sense seasonal changes, temperature changes, etc., and it will adjust itself automatically. You will never have to fiddle with a thermostat dial or keypad again, because this one basically does all of the work for you. It can also help you to save as much as 12% on heating bills, and 15% on cooling bills.

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6. Smart Lighting

Control your home lighting from your remote device. This is great if you are out and want to make sure that there are some lights on. It is designed to be energy efficient, so it will pay for itself over time because you won’t have to spend so much on your monthly energy bills.

7. Google Chromecast Ultra

Whether you love movies, television shows, music, etc., you can stream it all using Google Chromecast Ultra. Stream all of the entertainment you love in up to 4K UHD and HDR, for just $69 monthly.

8. Canary

This home security system will automatically contact emergency services when they are needed. This system offers both video and audio surveillance, so there will be evidence if there are any break-ins on your property. You can also use it to check up on what’s happening at home when you are not there, including to make sure the kids are doing their homework.

Featured photo credit: Karolina via kaboompics.com

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