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Behind #icebucketchallenge: 19 Things You Should Know About ALS

Behind #icebucketchallenge: 19 Things You Should Know About ALS

The “Ice Bucket Challenge” has been all over social media lately. Basically, the idea is that participants in the challenge film themselves getting doused in ice water in support of the ALS Association. Participants nominate friends and family to either complete the ice bucket challenge as well, or to donate to the ALS Association (most people are expected to donate around $100).

With all of the attention and donations that the ALSA has been getting (the organization has so far raised $88.5 million), many people still aren’t sure what ALS is. The point of the challenge is to raise awareness of the disease and to raise money to fight it, but not everyone is as informed as they could be. So consider this your comprehensive guide to all things ALS and educate yourself a little bit before participating in that bucket challenge.

Who gets ALS?

1. ALS stands for Amyotrophic lateral sclerosis.

It is also known as “Lou Gehrig’s Disease,” as American baseball player Lou Gehrig was diagnosed with the disease in his mid-30s, thus ending his career with the Yankees. ALS is what is known as a motor neuron disease.

2. Genetics is a risk factor.

According to the Mayo Clinic, between 5-10 % of people with the disease inherited it from a parent. Children of people with ALS have approximately a 50/50 chance of getting the disease.

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3. Smoking is also a factor.

Smokers have a greater chance of getting the disease than nonsmokers. The longer the smoker has been smoking, the greater the chance of getting ALS. Quitting can reduce these chances.

4. Middle age is when most are diagnosed.

Most people diagnosed with ALS are between the ages of 40 and 60.

What is ALS?

5. ALS causes nerve cells to die.

Nerve cells in ALS sufferers break down and eventually die, which leads to extreme difficulty in controlling muscle movement.

6. It starts with twitching.

In many ALS patients, the first signs of the disease are twitching in the arms and legs. Weakness in the limbs is also a possible sign of the disease.

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7. It eventually leads to bigger problems.

After diagnosis, most people only live for around 2-5 years, according to the ALS Association. People with ALS eventually have difficulty doing many basic tasks and struggle with speech. Near the end, people with ALS cannot swallow, and eventually, cannot breathe.

8. It is not contagious.

No one with ALS can give it to anyone else. This is good news for family members or friends who wish to keep their loved ones with ALS at home for as long as possible. Many family members take on the role of caregiver, and with no risk of contagion that is easier to do.

9. ALS is terminal and there is no cure.

People diagnosed with ALS die from the disease, and so far there is no cure. The ALS Association uses the money donated to research the disease, as well as provide care for people and families who are currently coping with the disease.

What is it like to have ALS?

10. Muscle weakness.

Picking up objects and doing what most of us might consider to be simple tasks like brushing our teeth become very difficult. One woman whose husband has ALS describes picking up a fork as being like picking up a 10 lb. weight again and again.

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11. Fatigue.

One symptom of ALS is extreme fatigue, including excessive yawning.

12. Pain.

ALS makes it hard to move when uncomfortable, and the muscles that waste away are no longer stimulated. Even turning over in bed may not be possible.

13. Paralysis.

Eventually, the disease leads to paralysis. Imagine not being able to move any part of your body but your eyes, and you’ve got a glimpse into what paralysis must feel like.

Can ALS be prevented?

14. Not smoking.

Nonsmokers have a lesser chance of getting the disease, as mentioned above. If you’re a smoker, quitting reduces your odds.

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15. Eating brightly colored fruits and veggies.

There is some evidence that eating brightly colored fruits and veggies (especially those that are red, orange, and yellow) can help prevent the disease.

What can I do?

16. Ice bucket challenge.

The ice bucket challenge has raised tons of awareness and money for the ALS Association. If you’re inspired to participate, please do! Nominate your friends and family and challenge them to continue raising awareness.

17. Donate money.

If you don’t want to dump ice water on your head, consider just making a donation at alsa.org. Any donation, no matter how small, will make a difference.

18. Raise awareness.

Share this post and any other information with your friends and family on social media to help spread the word and educate people about ALS.

19. Hold a fundraiser.

If you want to raise more money than you could donate on your own, consider holding a fundraiser at your school, church, or community center.

Featured photo credit: University of Central Arkansas via flickr.com

More by this author

Maggie Heath

Maggie is a passionate writer who blogs about communication and lifestyle on Lifehack.

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Last Updated on September 16, 2019

How to Stop Procrastinating: 11 Practical Ways for Procrastinators

How to Stop Procrastinating: 11 Practical Ways for Procrastinators

You have a deadline looming. However, instead of doing your work, you are fiddling with miscellaneous things like checking email, social media, watching videos, surfing blogs and forums. You know you should be working, but you just don’t feel like doing anything.

We are all familiar with the procrastination phenomenon. When we procrastinate, we squander away our free time and put off important tasks we should be doing them till it’s too late. And when it is indeed too late, we panic and wish we got started earlier.

The chronic procrastinators I know have spent years of their life looped in this cycle. Delaying, putting off things, slacking, hiding from work, facing work only when it’s unavoidable, then repeating this loop all over again. It’s a bad habit that eats us away and prevents us from achieving greater results in life.

Don’t let procrastination take over your life. Here, I will share my personal steps on how to stop procrastinating. These 11 steps will definitely apply to you too:

1. Break Your Work into Little Steps

Part of the reason why we procrastinate is because subconsciously, we find the work too overwhelming for us. Break it down into little parts, then focus on one part at the time. If you still procrastinate on the task after breaking it down, then break it down even further. Soon, your task will be so simple that you will be thinking “gee, this is so simple that I might as well just do it now!”.

For example, I’m currently writing a new book (on How to achieve anything in life). Book writing at its full scale is an enormous project and can be overwhelming. However, when I break it down into phases such as –

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  • (1) Research
  • (2) Deciding the topic
  • (3) Creating the outline
  • (4) Drafting the content
  • (5) Writing Chapters #1 to #10,
  • (6) Revision
  • (7) etc.

Suddenly it seems very manageable. What I do then is to focus on the immediate phase and get it done to my best ability, without thinking about the other phases. When it’s done, I move on to the next.

2. Change Your Environment

Different environments have different impact on our productivity. Look at your work desk and your room. Do they make you want to work or do they make you want to snuggle and sleep? If it’s the latter, you should look into changing your workspace.

One thing to note is that an environment that makes us feel inspired before may lose its effect after a period of time. If that’s the case, then it’s time to change things around. Refer to Steps #2 and #3 of 13 Strategies To Jumpstart Your Productivity, which talks about revamping your environment and workspace.

3. Create a Detailed Timeline with Specific Deadlines

Having just 1 deadline for your work is like an invitation to procrastinate. That’s because we get the impression that we have time and keep pushing everything back, until it’s too late.

Break down your project (see tip #1), then create an overall timeline with specific deadlines for each small task. This way, you know you have to finish each task by a certain date. Your timelines must be robust, too – i.e. if you don’t finish this by today, it’s going to jeopardize everything else you have planned after that. This way it creates the urgency to act.

My goals are broken down into monthly, weekly, right down to the daily task lists, and the list is a call to action that I must accomplish this by the specified date, else my goals will be put off.

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Here’re more tips on setting deadlines: 22 Tips for Effective Deadlines

4. Eliminate Your Procrastination Pit-Stops

If you are procrastinating a little too much, maybe that’s because you make it easy to procrastinate.

Identify your browser bookmarks that take up a lot of your time and shift them into a separate folder that is less accessible. Disable the automatic notification option in your email client. Get rid of the distractions around you.

I know some people will out of the way and delete or deactivate their facebook accounts. I think it’s a little drastic and extreme as addressing procrastination is more about being conscious of our actions than counteracting via self-binding methods, but if you feel that’s what’s needed, go for it.

5. Hang out with People Who Inspire You to Take Action

I’m pretty sure if you spend just 10 minutes talking to Steve Jobs or Bill Gates, you’ll be more inspired to act than if you spent the 10 minutes doing nothing. The people we are with influence our behaviors. Of course spending time with Steve Jobs or Bill Gates every day is probably not a feasible method, but the principle applies — The Hidden Power of Every Single Person Around You

Identify the people, friends or colleagues who trigger you – most likely the go-getters and hard workers – and hang out with them more often. Soon you will inculcate their drive and spirit too.

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As a personal development blogger, I “hang out” with inspiring personal development experts by reading their blogs and corresponding with them regularly via email and social media. It’s communication via new media and it works all the same.

6. Get a Buddy

Having a companion makes the whole process much more fun. Ideally, your buddy should be someone who has his/her own set of goals. Both of you will hold each other accountable to your goals and plans. While it’s not necessary for both of you to have the same goals, it’ll be even better if that’s the case, so you can learn from each other.

I have a good friend whom I talk to regularly, and we always ask each other about our goals and progress in achieving those goals. Needless to say, it spurs us to keep taking action.

7. Tell Others About Your Goals

This serves the same function as #6, on a larger scale. Tell all your friends, colleagues, acquaintances and family about your projects. Now whenever you see them, they are bound to ask you about your status on those projects.

For example, sometimes I announce my projects on The Personal Excellence Blog, Twitter and Facebook, and my readers will ask me about them on an ongoing basis. It’s a great way to keep myself accountable to my plans.

8. Seek out Someone Who Has Already Achieved the Outcome

What is it you want to accomplish here, and who are the people who have accomplished this already? Go seek them out and connect with them. Seeing living proof that your goals are very well achievable if you take action is one of the best triggers for action.

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9. Re-Clarify Your Goals

If you have been procrastinating for an extended period of time, it might reflect a misalignment between what you want and what you are currently doing. Often times, we outgrow our goals as we discover more about ourselves, but we don’t change our goals to reflect that.

Get away from your work (a short vacation will be good, else just a weekend break or staycation will do too) and take some time to regroup yourself. What exactly do you want to achieve? What should you do to get there? What are the steps to take? Does your current work align with that? If not, what can you do about it?

10. Stop Over-Complicating Things

Are you waiting for a perfect time to do this? That maybe now is not the best time because of X, Y, Z reasons? Ditch that thought because there’s never a perfect time. If you keep waiting for one, you are never going to accomplish anything.

Perfectionism is one of the biggest reasons for procrastination. Read more about why perfectionist tendencies can be a bane than a boon: Why Being A Perfectionist May Not Be So Perfect.

11. Get a Grip and Just Do It

At the end, it boils down to taking action. You can do all the strategizing, planning and hypothesizing, but if you don’t take action, nothing’s going to happen. Occasionally, I get readers and clients who keep complaining about their situations but they still refuse to take action at the end of the day.

Reality check:

I have never heard anyone procrastinate their way to success before and I doubt it’s going to change in the near future.  Whatever it is you are procrastinating on, if you want to get it done, you need to get a grip on yourself and do it.

More About Procrastination

Featured photo credit: Malvestida Magazine via unsplash.com

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