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Behind #icebucketchallenge: 19 Things You Should Know About ALS

Behind #icebucketchallenge: 19 Things You Should Know About ALS

The “Ice Bucket Challenge” has been all over social media lately. Basically, the idea is that participants in the challenge film themselves getting doused in ice water in support of the ALS Association. Participants nominate friends and family to either complete the ice bucket challenge as well, or to donate to the ALS Association (most people are expected to donate around $100).

With all of the attention and donations that the ALSA has been getting (the organization has so far raised $88.5 million), many people still aren’t sure what ALS is. The point of the challenge is to raise awareness of the disease and to raise money to fight it, but not everyone is as informed as they could be. So consider this your comprehensive guide to all things ALS and educate yourself a little bit before participating in that bucket challenge.

Who gets ALS?

1. ALS stands for Amyotrophic lateral sclerosis.

It is also known as “Lou Gehrig’s Disease,” as American baseball player Lou Gehrig was diagnosed with the disease in his mid-30s, thus ending his career with the Yankees. ALS is what is known as a motor neuron disease.

2. Genetics is a risk factor.

According to the Mayo Clinic, between 5-10 % of people with the disease inherited it from a parent. Children of people with ALS have approximately a 50/50 chance of getting the disease.

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3. Smoking is also a factor.

Smokers have a greater chance of getting the disease than nonsmokers. The longer the smoker has been smoking, the greater the chance of getting ALS. Quitting can reduce these chances.

4. Middle age is when most are diagnosed.

Most people diagnosed with ALS are between the ages of 40 and 60.

What is ALS?

5. ALS causes nerve cells to die.

Nerve cells in ALS sufferers break down and eventually die, which leads to extreme difficulty in controlling muscle movement.

6. It starts with twitching.

In many ALS patients, the first signs of the disease are twitching in the arms and legs. Weakness in the limbs is also a possible sign of the disease.

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7. It eventually leads to bigger problems.

After diagnosis, most people only live for around 2-5 years, according to the ALS Association. People with ALS eventually have difficulty doing many basic tasks and struggle with speech. Near the end, people with ALS cannot swallow, and eventually, cannot breathe.

8. It is not contagious.

No one with ALS can give it to anyone else. This is good news for family members or friends who wish to keep their loved ones with ALS at home for as long as possible. Many family members take on the role of caregiver, and with no risk of contagion that is easier to do.

9. ALS is terminal and there is no cure.

People diagnosed with ALS die from the disease, and so far there is no cure. The ALS Association uses the money donated to research the disease, as well as provide care for people and families who are currently coping with the disease.

What is it like to have ALS?

10. Muscle weakness.

Picking up objects and doing what most of us might consider to be simple tasks like brushing our teeth become very difficult. One woman whose husband has ALS describes picking up a fork as being like picking up a 10 lb. weight again and again.

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11. Fatigue.

One symptom of ALS is extreme fatigue, including excessive yawning.

12. Pain.

ALS makes it hard to move when uncomfortable, and the muscles that waste away are no longer stimulated. Even turning over in bed may not be possible.

13. Paralysis.

Eventually, the disease leads to paralysis. Imagine not being able to move any part of your body but your eyes, and you’ve got a glimpse into what paralysis must feel like.

Can ALS be prevented?

14. Not smoking.

Nonsmokers have a lesser chance of getting the disease, as mentioned above. If you’re a smoker, quitting reduces your odds.

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15. Eating brightly colored fruits and veggies.

There is some evidence that eating brightly colored fruits and veggies (especially those that are red, orange, and yellow) can help prevent the disease.

What can I do?

16. Ice bucket challenge.

The ice bucket challenge has raised tons of awareness and money for the ALS Association. If you’re inspired to participate, please do! Nominate your friends and family and challenge them to continue raising awareness.

17. Donate money.

If you don’t want to dump ice water on your head, consider just making a donation at alsa.org. Any donation, no matter how small, will make a difference.

18. Raise awareness.

Share this post and any other information with your friends and family on social media to help spread the word and educate people about ALS.

19. Hold a fundraiser.

If you want to raise more money than you could donate on your own, consider holding a fundraiser at your school, church, or community center.

Featured photo credit: University of Central Arkansas via flickr.com

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Maggie Heath

Maggie is a passionate writer who blogs about communication and lifestyle on Lifehack.

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Last Updated on January 21, 2020

The Best Way to Create a Vision for the Life You Want

The Best Way to Create a Vision for the Life You Want

Creating a vision for your life might seem like a frivolous, fantastical waste of time, but it’s not: creating a compelling vision of the life you want is actually one of the most effective strategies for achieving the life of your dreams. Perhaps the best way to look at the concept of a life vision is as a compass to help guide you to take the best actions and make the right choices that help propel you toward your best life.

your vision of where or who you want to be is the greatest asset you have

    Why You Need a Vision

    Experts and life success stories support the idea that with a vision in mind, you are more likely to succeed far beyond what you could otherwise achieve without a clear vision. Think of crafting your life vision as mapping a path to your personal and professional dreams. Life satisfaction and personal happiness are within reach. The harsh reality is that if you don’t develop your own vision, you’ll allow other people and circumstances to direct the course of your life.

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    How to Create Your Life Vision

    Don’t expect a clear and well-defined vision overnight—envisioning your life and determining the course you will follow requires time, and reflection. You need to cultivate vision and perspective, and you also need to apply logic and planning for the practical application of your vision. Your best vision blossoms from your dreams, hopes, and aspirations. It will resonate with your values and ideals, and will generate energy and enthusiasm to help strengthen your commitment to explore the possibilities of your life.

    What Do You Want?

    The question sounds deceptively simple, but it’s often the most difficult to answer. Allowing yourself to explore your deepest desires can be very frightening. You may also not think you have the time to consider something as fanciful as what you want out of life, but it’s important to remind yourself that a life of fulfillment does not usually happen by chance, but by design.

    It’s helpful to ask some thought-provoking questions to help you discover the possibilities of what you want out of life. Consider every aspect of your life, personal and professional, tangible and intangible. Contemplate all the important areas, family and friends, career and success, health and quality of life, spiritual connection and personal growth, and don’t forget about fun and enjoyment.

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    Some tips to guide you:

    • Remember to ask why you want certain things
    • Think about what you want, not on what you don’t want.
    • Give yourself permission to dream.
    • Be creative. Consider ideas that you never thought possible.
    • Focus on your wishes, not what others expect of you.

    Some questions to start your exploration:

    • What really matters to you in life? Not what should matter, what does matter.
    • What would you like to have more of in your life?
    • Set aside money for a moment; what do you want in your career?
    • What are your secret passions and dreams?
    • What would bring more joy and happiness into your life?
    • What do you want your relationships to be like?
    • What qualities would you like to develop?
    • What are your values? What issues do you care about?
    • What are your talents? What’s special about you?
    • What would you most like to accomplish?
    • What would legacy would you like to leave behind?

    It may be helpful to write your thoughts down in a journal or creative vision board if you’re the creative type. Add your own questions, and ask others what they want out of life. Relax and make this exercise fun. You may want to set your answers aside for a while and come back to them later to see if any have changed or if you have anything to add.

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    What Would Your Best Life Look Like?

    Describe your ideal life in detail. Allow yourself to dream and imagine, and create a vivid picture. If you can’t visualize a picture, focus on how your best life would feel. If you find it difficult to envision your life 20 or 30 years from now, start with five years—even a few years into the future will give you a place to start. What you see may surprise you. Set aside preconceived notions. This is your chance to dream and fantasize.

    A few prompts to get you started:

    • What will you have accomplished already?
    • How will you feel about yourself?
    • What kind of people are in your life? How do you feel about them?
    • What does your ideal day look like?
    • Where are you? Where do you live? Think specifics, what city, state, or country, type of community, house or an apartment, style and atmosphere.
    • What would you be doing?
    • Are you with another person, a group of people, or are you by yourself?
    • How are you dressed?
    • What’s your state of mind? Happy or sad? Contented or frustrated?
    • What does your physical body look like? How do you feel about that?
    • Does your best life make you smile and make your heart sing? If it doesn’t, dig deeper, dream bigger.

    It’s important to focus on the result, or at least a way-point in your life. Don’t think about the process for getting there yet—that’s the next stepGive yourself permission to revisit this vision every day, even if only for a few minutes. Keep your vision alive and in the front of your mind.

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    Plan Backwards

    It may sound counter-intuitive to plan backwards rather than forwards, but when you’re planning your life from the end result, it’s often more useful to consider the last step and work your way back to the first. This is actually a valuable and practical strategy for making your vision a reality.

    • What’s the last thing that would’ve had to happen to achieve your best life?
    • What’s the most important choice you would’ve had to make?
    • What would you have needed to learn along the way?
    • What important actions would you have had to take?
    • What beliefs would you have needed to change?
    • What habits or behaviors would you have had to cultivate?
    • What type of support would you have had to enlist?
    • How long will it have taken you to realize your best life?
    • What steps or milestones would you have needed to reach along the way?

    Now it’s time to think about your first step, and the next step after that. Ponder the gap between where you are now and where you want to be in the future. It may seem impossible, but it’s quite achievable if you take it step-by-step.

    It’s important to revisit this vision from time to time. Don’t be surprised if your answers to the questions, your technicolor vision, and the resulting plans change. That can actually be a very good thing; as you change in unforeseeable ways, the best life you envision will change as well. For now, it’s important to use the process, create your vision, and take the first step towards making that vision a reality.

    Featured photo credit: Matt Noble via unsplash.com

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