Advertising
Advertising

15 Things to Remember When You Love Someone with Autism

15 Things to Remember When You Love Someone with Autism

People with ASD (autism spectrum disorders) face enormous challenges. In many cases, autism flies under the radar. But if sufferers get the right kind of support and encouragement, it can make an enormous difference.

In the UK, about 1 in 100 people are liable to suffer from this incurable condition, while the CDC (Centers for Disease Control and Prevention) in the USA estimates that 1 in 68 births may have this disease. Some experts say that as many as 66% of adults with autism are not getting adequate support.

If you have a family member suffering from autism—which also includes Asperger’s and other co-morbid conditions—here are 15 ways you can love them and support them.

1. Learn about autism

Look out for some of the early symptoms so that you can get a diagnosis and make sure your child is on the fast track for better treatment and support at home and at school. The earlier, the better.

Some babies seem abnormally focused on certain objects and do not make eye contact. Toddlers may develop normally, but around the age of three you may notice that they are paying no attention to the normal social signals. The main problems occur when they display a lack of social interaction skills and will not want to share toys and mingle with other kids. They become obsessed with repetitive movements or behaviour which is often referred to as “stimming.”

Severity of symptoms will vary widely and some kids may only be mildly affected. But early symptoms usually center on a language delay, or the ability to relate to others and behave in a flexible way. Once you start learning about the disorder, you will feel more empowered and better able to cope as the child grows up.

Advertising

A must-read novel is The Curious Incident of the Dog in the Night-time by Mark Haddon, which provides a wonderful insight into the strange world of an autistic child who decides to become a detective!

2. Understand your child better

A key to great support will come from studying the child closely and realizing what makes them uncomfortable and badly behaved. Notice what makes them feel at ease and more co-operative. Listen to the sounds they make and notice their facial expressions especially when they are hungry, irritable, or tired.

3. Discover your child’s talents

We should keep in mind that 30% of these kids have an IQ which is in the normal range. About 10% of autistic children have rather special intellectual abilities and skills which are remarkable. This certainly makes up for their lack of social skills. Let me list a few for you:

  • Powerful memory skills
  • Musical talent
  • Artistic skills
  • Math skills
  • Honesty
  • Intense focusing skills

Check out this link for kids and teens with autism who displayed enormous talent.

Many children can read fluently, memorize large chunks of texts, do calendar calculation, and dismantle or assemble things. Help your child discover his or her niche by letting them explore their passions and interests.

If your child loves animals, get him to help out a local animal shelter.

Advertising

4. Help them overcome language difficulties

Autistic children may have problems with understanding idioms and metaphors, not to mention sarcasm and jokes. Time to simplify things by speaking clearly without using fancy metaphors.

Don’t tell a child that something is “a piece of cake.” Just say, “this is really easy.” Similarly, it is better to say you are “really busy” instead of “busy as a bee.”

5. Resist labelling your child

Everybody loves a label because it defines the problem and the boundaries. On the other hand, this can be negative because it classifies a person and this is too limiting. Full acceptance of what autism involves can help us to accept our children as they are. They will have quirks, oddities and limits. Accept the differences, celebrate little successes so that your child will gain self-esteem. Resist using ‘normal’ children as a yardstick for your child’s progress.

6. Break down instructions

Teachers of autistic children need to concentrate on the students’ strengths in concrete thinking and learning by heart. They can effectively use visual aids in helping students learn, gain self-esteem, and improve self-control.

Both parents and teachers need to break down instructions into individual units instead of giving too many in a short space of time.

7. Use more visuals

Using pictures and drawings in the home can often avoid problems and accidents. They are also an invaluable aid to bridging the communication gap between the child, parents, and teachers.

Advertising

The great thing about visuals is that they do not disappear, like words do, into thin air! They can help the child to put things in order so that they can learn a skill step by step. They are a great aid for rehearsing and practising, whether they are school tasks or household chores.

8. Use routines and schedules consistently

Children and adults suffering from autism thrive on well-established routines and schedules.

Having an organized schedule when meals, school, treatment and play time happen with unfailing regularity is a great help. It is advisable to keep interruptions or changes to a bare minimum, and as far as possible you should warn the child in advance. Kids tend to become fixated with one object or task and when this is removed, all hell can break loose.

9. Reach out for support

Find a local organization in your area which helps and supports families who are coping with autism. Sometimes they have a helpline and you will be able to exchange experiences and get advice from other people who are living with this condition.

10. Help with sensory issues

One of the things we learn about autism early on is how kids and adults can be hypersensitive to most sensory perceptions. This will include touch, light, smell and sounds. Researchers at UC San Francisco found that autistic children’s brains are wired differently, which partially accounts for their sensory perception issues. Basically, they have difficulty in processing all stimulation coming from the senses.

Attending shows or watching TV with its garish colors and loud crashing sounds can be traumatic for kids. This explains the success of The Lion King which was hailed as the first autism-friendly production in history!

Advertising

Common problems arise when kids scream uncontrollably if their faces get wet or they try to eat inedible things. One possible solution is to note what usually triggers these responses and make an effort to avoid them. It must be said that autistic kids are not always consistent in their reaction to certain stimuli.

11. Decide which treatment plan is best

No one size fits all when it comes to the best treatment. It is alarming to learn that there are over 400 treatments according to the WebMD site. Each treatment has to be tailor made for your child. It will certainly include a very predictable routine, your child’s interests, and activities which are highly structured. Teaching tasks are always step by step. In addition, there are features in place for rewarding positive behaviour and celebrating successes. Behavior therapy is the one treatment which has shown the most promise.

12. Get up to speed on your child’s rights

A child who suffers from autism or a similar disorder has certain rights at school and in society. The parents may be the only advocates they have so it is important to know what is available and how it can benefit your child. Again, your local support group will be able to help you out on this one. It will also depend on which country or state you live in. It is important that you know whether special education services or IEP is available in your state and you need to be actively involved in it. It will also help you deal with issues at home, and teamwork here can be of great assistance. You may have to insist on getting a second, independent opinion about your child’s diagnosis. You can also request an IEP meeting if you feel that your child’s needs are not being catered to.

13. Build in sensory breaks

Some repetitive actions and movements are a comfort to the autistic person. He or she will find solace in them and it is recommended that they have a sensory break every few hours. Individual needs will vary. But activities like rocking, spinning, rubbing something, or even wearing a weighted blanket can help. Getting exercise too is a great way to help with calming down. There is some excellent advice in the book by Martha Herbert, a researcher at Harvard, called The Autism Revolution: Whole-Body Strategies for Making Life All It Can Be.

14. Helping teens and adults look for jobs

Employment prospects for people with autism can be a problem. There are encouraging signs that nonprofit organizations are leading the way in making employers more aware of the unique talents that autistic people can bring to the workplace. One of these is Specialisterne USA which was founded by Thorkil Sonne whose youngest son has autism. Their organization is hoping to create 100,000 jobs in the next year or so in the USA.

15. Brad’s story will encourage you

Brad suffers from autism and cannot speak. But from an early age, his father spotted his enormous talent for putting things together, like model aeroplanes and furniture. He now has his own furniture assembly business. Watch the video to learn how autism can lead to great opportunities and creativity.

Let us know in the comments how you have supported a loved one with autism.

More by this author

Robert Locke

Author of Ziger the Tiger Stories, a health enthusiast specializing in relationships, life improvement and mental health.

10 Reasons Why People Are Unmotivated (And How to Be Motivated) 12 Secrets To a Super Productive Meeting You Should Know Work Smarter, Not Harder: 12 Smart Ways to Be More Productive What Your Fear of Being Alone Is Really About and How to Get over It 10 Simple Morning Exercises That Will Make You Feel Great All Day

Trending in Communication

1 5 Steps to Cultivate a Positive Mental Attitude 2 9 Ways to Prepare for Change and Live Your Dream Life 3 7 Steps to Start Living Your Dream Life Right Now 4 How to Be True to Yourself and Live the Life You Want 5 What Happiness Is and Is Not: The True Meaning of Being Happy

Read Next

Advertising
Advertising
Advertising

Last Updated on August 19, 2019

How to Be True to Yourself and Live the Life You Want

How to Be True to Yourself and Live the Life You Want

We live in a world that constantly tells us what to do, how to act, what to be. Knowing how to be true to yourself and live the life you want can be a challenge.

When someone asks how we are, we assume that the person does not mean the question sincerely, for it would lead to an in depth conversation. So telling them that you are good or fine, even if you’re not, is the usual answer.

In an ideal world, we would stop and truly listen. We wouldn’t be afraid to be ourselves. Instead, when we answer about how we are doing, our mask, the persona we show the world, tightens. Sometimes even more so than it might have been before. Eventually, it becomes hard to take off, even when you’re alone.

Imagine a world where we asked how someone was doing and they really told us. Imagine a world where there were no masks, only transparency when we talked to one another.

If you want to live in a world that celebrates who you are, mistakes and all, take off the mask. It doesn’t mean you have to be positive or fine all the time.

According to a Danish psychologist, Svend Brinkman, we expect each other to be happy and fine every second, and we expect it of ourselves. And that “has a dark side.”[1] Positive psychology can have its perks but not at the expense at hiding how you truly feel in order to remain seemingly positive to others.

No one can feel positive all the time and yet, that is what our culture teaches us to embrace. We have to unlearn this. That said, telling others you are ‘“fine”’ all the time is actually detrimental to your wellbeing, because it stops you from being assertive, from being authentic or your truest self.

When you acknowledge a feeling, it leads you to the problem that’s causing that feeling; and once you identify the problem, you can find a solution to it. When you hide that feeling, you stuff it way down so no one can help you.You can’t even help yourself.

Feelings are there for one reason: to be felt. That doesn’t mean you have to act on that feeling. It just means that you start the process of problem solving so you can live the life you want.

1. Embrace Your Vulnerability

When you are your true self, you can better self-advocate or stand up for what you need. Your self-expression matters, and you should value your voice. It’s okay to need things, it’s okay to speak up, and it’s okay not to be okay.

Telling someone you are simply “fine” when you are not, does your story and your journey a great disservice. Being true to yourself entails embracing all aspects of your existence.

When you bring your whole self to the table, there is nothing that you can’t beat. Here’re 7 benefits of being vulnerable you should learn.

Can you take off the mask? This is the toughest thing anyone can do. We have learned to wait until we are safe before we start to be authentic.

In relationships especially, this can be hard. Some people avoid vulnerability at any cost. And in our relationship with ourselves, we can look in the mirror and immediately put on the mask.

Advertising

It all starts with your story. You have been on your own unique journey. That journey has led you here, to the person you are today. You have to be unafraid, and embrace all aspects of that journey.

You should seek to thrive, not just survive. That means you do not have to compete or compare yourself with anyone.

Authenticity means you are enough. It’s enough to be who you are to get what you want.

What if for the first time ever, you were real? What if you said what you wanted to say, did what you wanted to do, and didn’t apologize for it?

You were assertive, forthcoming in your opinions or actions to stand for what is right for you, (rather than being passive or aggressive) in doing so. You didn’t let things get to you. You knew you had something special to offer.

That’s where we all should be.

So, answer me this:

How are you, really?

And know that no matter the answer, you should still be accepted.

Bravery is in the understanding that you still may not be accepted for your truth.

Bravery is knowing you matter even when others say that you do not.

Bravery is believing in yourself when all evidence counters doing so (i.e. past failures or losses)

Bravery is in being vulnerable while knowing vulnerability is a sign of strength.

It’s taking control.

Advertising

2. Choose Your Attitude in Adversity

You can take control of your destiny and live the life you want by being true to yourself. You can start anytime. You can start today.

You can start with one day at a time, just facing what happens that day. Most of us get overwhelmed when faced with the prospect of a big change. Even if the only thing we change is our attitude.

In one instant, you can become a different person with a change of attitude. When you take control of your attitude, you become able to better understand what is around you. This allows you to move forward.

Originally, you may have had a life plan. It could have started when you were little; you were hoping to become a mermaid, doctor, astronaut or all three when you grew up. You were hoping to be someone. You were hoping to be remembered.

You can still dream those dreams, but eventually reality sets in. Obstacles and struggles arise. You set on a different path when the last one didn’t work out. You think of all the “shoulds” in your life in living the life you want. You should be doing this…should be doing that…

Clayton Barbeau, psychologist, coined the term “shoulding yourself.’[2] When we are set on one path and find ourselves doing something different. It becomes all the things you should be doing rather than seeing the opportunities right in front of you.

But in all this disarray, did you lose sight of the real you?

It may be in our perceived failures and blunders that we lose sight of who we are, because we try to maintain position and status.

In being who we really are and achieving what we really want, we need to be resilient: How to Build Resilience to Face What Life Throws at You

It means that we do not see all possibilities of what might happen, but must trust ourselves to begin again, and continue to build the life we want. In the face of adversity, you must choose your attitude.

Can attitude overcome adversity? It certainly helps. While seeking to be true to yourself and live the life you want, you will have to face a fact:

Change will happen.

Whether that change is good or bad is unique to each person and their perspective.

You might have to start over, once, twice, a few times. It doesn’t mean that everything will be okay, but that you will be okay. What remains or should remain is the true you. When you’ve lost sight of that, you’ve lost sight of everything.

Advertising

And then, you rebuild. Moment after moment, day after day. We all have a choice, and in this moment, that matters.

You can choose to have a positive attitude, seeing the silver lining in each situation and, where there is none, the potential for one. Maybe that silver lining is you and what you will do with the situation. How will you use it for something good?

That’s how you can tap into yourself and your power. Sometimes it happens by accident, sometimes on purpose. It can happen when we aren’t even looking for it, or it can be your only focus. Everyone gets there differently.

You can rise, or you can remain. Your choice.

When the worst happens, you can rely on your authenticity to pull you through. That’s because Self Advocacy, speaking up to let others know what you need, is part of finding the real you.

There is nothing wrong with asking for help. Or sometimes, helping others can help us deal with the pain of a hurtful situation. You decide how you’re going to help others, and suddenly, you become your best self.

3. Do What Makes You Happy When No One’s Looking

Being the best version of you has nothing to do with your success or your status. It has everything to do with your Character, what you do when no one’s looking.

In order to create the life you want, you have to be the person you want to be. Faking it till you make it is just a way to white knuckle it through your journey. You have the fire inside of you to make things right, to put the pieces together, to live authentically. And Character is how you get there.

If you fall down and you help another up while you’re down there, it’s like you rise twice.

Along with attitude, your character is about the choices you make rather than what happens to you.

Yes, it’s about doing the right thing even when obstacles seem insurmountable.  It’s about using that mountain you’ve been given to show others it can be moved.  It’s about being unapologetically you, taking control, choosing your attitude in adversity and being the best version of you to create the life you want.

How do you know what you really want? Is it truly status or success?

Unfortunately, these things do not always bring happiness. And aspects of our image or “performance driven existence” may not achieve satisfaction. Materialism is part of our refusal to accept ourselves as enough. All the things we use to repress our true selves are about being enough.

“Enoughness” is what we truly seek, but ego gets in the way.

Advertising

Ego is the perception of self as outer worth. It’s not REAL self worth.

Ego represses our true self with a new self— the self of chasing ‘“Am I ever enough?”’ questions. And instead of filling our true selves with self-love and acceptance, when we “should ourselves” and chase “enoughness,” we feed the ego or our image.

It’s important to realize YOU ARE ENOUGH, without all the material trappings.

Stanford psychologist Meagan O’Reilly describes the damage of not thinking we are enough. One of her tactics for combating this is to complete the sentence,[3]

“If I believed I were already enough, I’d ____”

What would you do if you felt you were enough?

By believing you are enough, you can live the life you want.

So many fake it to try to get there, and they end up losing themselves when they lose more and more touch with their Authenticity.

Final Thoughts

By being yourself, you are being brave. By acknowledging all you can be, you tell the universe that you can until you believe it too. The steps are easy, and you are worth it. All of it is about the purpose you are leading and the passion that is your fuel.

Being true to yourself is all about mastering how to live life authentically rather than faking or forcing it. Having the life you want (and deserve) is about being trusting in yourself and the purpose you are living for. Both need passion behind it, fueling it each second, or you will experience burn out.

When you are authentic, you can call the road you walk your own. When you live your life for you and not just the results of all your actions (faking it till you make it), you can let go of what you don’t need. This clarifies and pushes purpose to you, living for something that is greater than you.

You will find that making decisions based on what will actually achieve your goals, will help you attain the life you want, and your success with each step, will allow you to enjoy the process. Good luck!

More About Living Your True Self

Featured photo credit: Ariana Prestes via unsplash.com

Reference

Read Next