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15 Things Only Loved Ones Of Alzheimer’s Patients Would Understand

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15 Things Only Loved Ones Of Alzheimer’s Patients Would Understand

Alzheimer’s is a physical ailment that damages the brain cells, leading to dementia. The decaying of brain cells causes severe memory loss, as well as reduced thinking skills and emotional capacity. The disease was first discovered by Dr. Alois Alzheimer, a German psychiatrist and neuropathologist, in 1906. Dr. Alzheimer noticed changes in the brain cells of a woman who died out of a peculiar mental illness. She suffered from memory loss, speech decay, and erratic behaviour. Upon her death, Dr. Alzheimer investigated her brain and discovered many abnormal clumps (they are now known as amyloid plaques) and tangled bundles of fiber (now known as neurofibrillary tangles). Therefore, it was concluded that plaques and tangles (the result of protein buildup in the brain) are the main two reasons for Alzheimer’s disease. Loss of connections among nerve cells in the brain is another contributing factor.

Alzheimer’s disease usually begins around the age of 65. This estimation varies, naturally. But experts say that 5 million Americans suffer from this disease by the time they are 65 or older. Of course, there are treatments for this illness. As these treatments have become more advanced over time, doctors have been injecting the missing chemicals into the brains, helping them to receive some signals. Alzheimer’s starts gradually, eventually interfering with daily life. Patients end up totally dependent on another person, unable to do even the simplest of work.

It is the patients’ loved ones who most understand the difficulties that Alzheimer’s patients face. This article is dedicated to those beautiful souls who undertake the full time job of taking care of these patients with utmost love. Here are 15 things only these loved ones would understand:

1. You know that the person is more than a disease.

Your loved one can be your father, or mother, or your partner. Regardless of the relationship you have to that person, you always know that the person means the world to you. This is the person, who at one time loved you and took care of you just like you are doing now. This person is who you have known all your life, even though they will never function like they used to.

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2. You use every process of communication to reach your loved one.

Your loved one has memory loss, no way to express emotions, or perhaps even worse, your loved one fails to recognize you. It doesn’t mean you stop taking care of him or her. You try your best to communicate with them through different mediums of connection. It can be music, reading books, watching television shows, or talking about daily occurrences. Even a simple touch on the arm can give them the message that they are loved.

3. You cannot argue with your loved one.

With the loss of behavioral abilities, a patient is left with little reasoning ability. They may react aggressively at times. You know there is no point in arguing with your loved one. Rather, arguments would lead to more upsetting situations and would frustrate both parties. It is better just to agree with the things they say.

4. You know your person is not changing, but the disease is.

It is extremely hard to see the gradual change the person is going through right in front of your eyes. The struggles in language, the lack of communication, the changes in mood, the shift in personality, and all other negative factors come from the disease. It is not the patient’s fault. Your loved one is the same person, even though he or she cannot control the situation anymore.

5. You have to be educated about this disease.

I have tried my best to summarize the term Alzheimer’s. But it is more than that. Researchers have been studying this disease for years. Here is a website where you can go and study it more in detail. Becoming more educated about the disease will help you to better understand the person you are taking care of.

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6. You must give them independence when possible.

If your loved one is in a more mild stage, you should give them some independence to do their own work. They should at least try to do some activities in order to stay active. In these ways, your loved ones can stimulate their brains to carry messages as much as possible. Of course, they will eventually stop being able to accomplish such tasks once they reach the moderate to severe stages. Until then, encourage them to do things like count money, keep a diary, or talk about things they are fond of or remember well.

7. You should develop set routines and schedules.

As the illness develops further, it becomes very hard for you and your loved one to keep track of daily routines. Just like nursing a baby, you should have a set rhythm with them. Remember, this person is like a child to you. Keeping a daily routine and schedule will make life much easier. This can help to eliminate confusion and frustration for your loved one.

8. You have to continue with good nutrition.

Your loved ones need a proper, balanced diet. Studies have shown that a lack of healthy food can contribute to worsening Alzheimer’s. It is recommended that a patient cut down on refined sugar and increase intake of fruits and vegetables to help better manage the disease.

9. You should plan time for physical exercise.

Did you know that physical exercise is extremely beneficial for your loved one? Their bodies need to stay healthy just like yours does. Regardless of the stage they are in (it is better if they start from an early stage, since the habits will build as time progresses), you can accompany them on daily walks, gardening, or even dancing!

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10. You should maintain the current list of medications.

You should take your loved one to regular check-ups. The doctors will fix the medications according to the stage that they are in. It is very important to maintain the list of current medicines. You should take extra caution to see to it that they don’t miss a single dose.

11. You cannot forget that your loved one has emotions too.

Yes, they may forget you, they may get angry at you, or they may ignore you for days, but they do have emotions. Your actions and words can have a great impact on them. One of my uncles suffers from Alzheimer’s. He cannot remember anyone, not even his children! But sometimes, he would smile at them, or laugh with them. Check out this article and see for yourself why emotions matter!

12. You have to be realistic in your expectations.

Whether it is your expectations for yourself or for your loved ones, you have to be realistic. This is very significant because setting practical goals will make you expect the unexpected. In this way, you won’t feel disappointed as you see your loved one struggle with this disease.

13. You should have fun with your loved one!

Just because your loved one is suffering from a horrible disease doesn’t mean that they cannot have fun. Plan a trip to the zoo, or to the nearest park, and take your family members with you as well. Take plenty of photos, and bear in mind that even though your loved one may not show emotions, they still certainly enjoyed your company!

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14. You should ALWAYS remember that Alzheimer’s detection is NOT a death sentence!

It is not the end of the world. No, a patient of Alzheimer’s can live for twenty or more years with the disease. Utilize whatever time you have at hand and make the most out of it. Don’t leave a hollow space that will leave you with regrets.

15. You must love your loved ones as they are now.

You should not try to change them, because they will never go back to their old selves. You should embrace them as they are, in their current situations, with their current behaviours, their frequent mood swings, and everything that is related to them. In other words, love them as they are right now!

You should not perceive your loved ones as burdens, because they are not! There will be total life changing experiences for you as you struggle to cope with your new role. You will get upset and emotionally challenged at times, but always remember that this is a person who has loved you very much. Respect them, love them, and live with them.

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Sumaiya Kabir

Sumaiya is a passionate writer who shares thoughts and ideas to help people improve themselves.

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Last Updated on January 24, 2022

21 Best Tips On Making A Long Distance Relationship Work

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21 Best Tips On Making A Long Distance Relationship Work

Having texting and video conferencing at our fingertips, it appears that maintaining a long-distance relationship is easier than ever. Long-distance calls are no longer a luxury; the days when they needed to be rationed are long gone.

Long-distance couples do not have to depend on 3 p.m. postal delivery, waiting for news that is at best four days old.

Now we’re no longer even in the days of waiting for our loved ones to check their e-mail when they get home from work. Instant messaging keeps us hooked to each other even when we are out shopping, working, playing, watching a movie and doing much more.

Technology, however, cannot compensate for everything in a long-distance relationship, as anyone with a long-distance relationship will tell you.

Many long-distance relationships still seem emotionally difficult despite the lack of regular physical proximity.

People often think long-distance relationships will never work. It may be discouraged by your family, and some of your best friends may tell you not to take it too seriously in case you end up heartbroken.

Many things are not possible due to the extra distance – no one can promise it will be easy. Things could get complicated, and you might feel lonely and sad at times.

Still, many of us try them.

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However, the extra distance also makes the simplest things the sweetest. Being able to hold the other person’s hand, eating together at the same table, feeling each other’s touch, taking a walk together, smelling each other’s hair… these small wishes could suddenly mean so much more in a long-distance relationship.

Long-distance relationships may be tough, but they have their own surprises too.

Here’re 21 tips on how to make a long distance relationship work:

1. Avoid excessive communication.

It is unwise to be overly “sticky” and possessive. You two don’t really have to communicate 12 hours a day to keep the relationship going. Many couples think that they need to compensate for the distance by doing more. This is not true. And it might only make things worse. Soon you would get tired of “loving.”

Remember: Less is more. It is not about spamming — you are only going to exhaust yourselves. It’s really about teasing at the right moments and tugging at the right spots.

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2. See it as an opportunity.

“If you want to live together, you first need to learn how to live apart.” – Anonymous

View it as a learning journey for both of you. This is an opportunity for you to prove your love for one another. According to a Chinese proverb, “Real gold is not afraid of the test of fire.” Instead of thinking that this long-distance relationship is pulling you two apart, you should believe that through this experience, the both of you will be bound together even stronger.

As Emma says it to Will in season four of Glee,

“I would rather be here, far from you, but feeling really close, rather than close to you but feeling really far away.” – Emma, Glee Season 4

3. Set some ground rules to manage your expectations.

Both of you need to be clear with what you expect of each other during this long-distance relationship. Set some ground rules so that none of you will do things that will take the other party by surprise.

For instance, are you two exclusive? Is it all right for the other person to go on dates? What is your commitment level? It’s better to be open with each other about all these things.

4. Try to communicate regularly, and creatively.

Greet each other “good morning” and “good night” every day — this is a must. On top of that, try to update your partner on your life and its happenings, however mundane some of the things may seem.

To up the game, send each other pictures, audio clips, and short videos from time to time. By putting in this kind of effort, you make the other person feel loved and attended to.

5. Talk dirty with each other.

Sexual tension is undoubtedly one of the most important things between couples. In a way, sexual desire is like the glue that keeps both parties from drifting apart. Sexual need is not only biological but also emotional.

Keep the flames burning by sending each other teasing texts filled with sexual innuendos and provocative descriptions. Sexy puns work pretty well too.

6. Avoid “dangerous” situations.

If you already know that going to the club or going drinking with your group of friends late at night will displease your partner, then you should either 1. Not do it or 2. Tell your partner beforehand to reassure them.

You should not let this sort of thing slip by because it will only make your partner extra worried or suspicious – and of course, very upset because they will feel powerless or lack control over the situation.

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You can fall victim to your traps by going out with eye candy from work after work or dating someone from your past who has been flirting with you without realizing it. Before entering a dangerous situation, you need to recognize the dangers.

Listen to your heart, but don’t just rely on it. Make sure you also listen to your mind.

7. Do things together.

Play a game online together. Watch a documentary at the same time on YouTube or Vimeo. Share a song on Skype while another plays the guitar. Video-call each other and go for a walk together. Together, go online shopping – and buy each other gifts (see #13).

You really have to be creative and spontaneous about it.

8. Do similar things.

Recommend books, TV shows, movies, music, news and etc., to each other. When you read, watch and listen to the same things, you get to have more topics in common to talk about.

Even if you live apart, it’s nice to have some shared experiences.

9. Make visits to each other.

Every long-distance relationship is enriched by visits.

After all the waiting and yearning and abstinence, you finally get to meet each other to fulfil all the little things like kissing, holding hands, etc. These are typical for couples in long-distance relationships but more special and intimate for long-distance couples.

The atmosphere will be filled with fireworks, glitter bombs, confetti, rainbows, and butterflies.

10. Have a goal in mind.

Are we going to be apart for a long time?” “what about the future?” These are the questions you should ask yourselves.

In fact, a couple cannot stay in a long-distance relationship forever. Eventually, we all need to settle down.

So make a plan with each other. Set up a timeline, mark down the estimated times apart and times together, and draw an end goal.

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It is important that you two are on the same page and have the same goals. So that even if you are not living in the same space and the same timezone, both of you are still motivated to work together in the same direction towards a future that includes one another.

That’s right, you need some motivation to make a relationship last too. Find out more about what motivates you here.

11. Enjoy your alone time and your time with your friends and family.

You are alone, but you are not lonely unless you choose to feel like it. You don’t have to let your world revolve around your partner — you still have you, your friends, and your family. Take this time apart to do more with your friends and family. Go to the gym more often. Get a new hobby. Binge-watch shows. There are plenty of things for you to do that don’t involve your partner.

12. Stay honest with each other.

Talk about your feelings of fear, insecurity, jealousy, apathy, whatsoever. If you try to hide anything from your partner, that secret will sooner or later swallow you up from the inside out. Don’t try to deal with things all by yourself. Be open and honest with each other. Let your partner help you and give you the support you need. It’s better to look at the problem during its initial stage than to only disclose it when it’s all too late.

13. Know each other’s schedules.

It’s helpful to know when the other person is busy and free. So that you can drop a text or make a call at the right time. You wouldn’t want to disturb your partner when they are in the middle of class or halfway through a business meeting. Make sure you are aware of everyone’s small and big events in their lives, i.e., college midterms and exams, important business trips and meetings, job interviews, etc. Particularly if you live in different time zones, this becomes more important.

14. Keep track of each other’s social media activities.

Facebook and Instagram photos of each other. Send each other tweets. Tag each other on Facebook. Post stuff on each other’s wall. Let them know you care. Be cool with stalking each other.

15. Gift a personal object for the other person to hold on to.

Memories have power. No matter what it is–a pendant, a ring, a keychain, a collection of songs and videos, or a perfume bottle. Everyday items and things have meanings to us, whether we realize it or not. We all try to store memories in material things so that when our minds fail, we will still be able to look at or hold onto something that will help us recall our memories. This is why something so simple can mean so much to a person when others may see little or no value in it.

16. Get a good messaging app.

This is extremely important because texting is the most frequent and common way of communication the two of you have. You need a good messaging app on your phones that allows interactions beyond words and emoticons.

Personally, I use this messaging app called LINE. I find it highly effective because it has a huge reserve of playful and very funny “stickers” that are free for its users to use. You can also go to the app’s “Sticker Shop” to download (or gift!) extra stickers of different themes (e.g., Hello Kitty, Pokemon, Snoopy, MARVEL, etc.) at a low price. Occasionally, the app will give out free sticker sets for promotions. This messaging app is cute and easy to learn to use.

17. Snail-mail your gift.

Mail each other postcards and hand-written love letters. Send each other gifts across the globe from time to time. Flower deliveries on birthdays, anniversaries, and Valentine’s Day. Shop online and surprise each other with cool T-shirts, sexy underwear, and such.

18. Stay positive.

You need to constantly inject positive energy into the long-distance relationship to keep it alive. Yes, the waiting can be painful, and you can sometimes feel lonely, but you need to remind yourself that the fruits at the end will be sweet as heaven.

One good trick to staying positive is to be grateful all the time. Be thankful that you have someone to love — someone who also loves you back. Be thankful for the little things, like the hand-made letter that arrived safely in your mailbox the other day. Be thankful for each other’s health and safety.

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19. Keep each other updated on each other’s friends and family.

This will help you two to know each other’s culture and values. Knowing small habits of each other helps in developing an understanding and building mutual trust.

Talking about family and friends gives you more matters to talk about. The best thing to talk about is gossip and scandals.

20. Video-call whenever possible.

Because sometimes looking into each other’s eyes and hearing each other’s voices can make everything feel alright again.

A video call is though nothing like being together, but it’s the best thing and the most to do for coziness in a long-distance relationship.

21. Give each other pet names.

Because it’s cute. It keeps the lovey-dovey going. Having special names for each other reserved only for one another are heart-warming. Hearing that one word with love lifts our spirits up, and we feel assured all over again.

Chaos seems to fade away just by hearing that special word from someone special.

With the best wishes…

Love (or like) is a force that is beyond your control. Love just happens. The same goes for turning off those feelings, even when you get the perfect job halfway across the country.

Neither one of us expects to be long-distance in a relationship. But if you’re in a relationship like this, you’ll just have to make the most out of a difficult situation. These advice for long distance relationships will hopefully help you stay strong and cheerful when living apart from one another.

More Recommended Relationships Experts on Lifehack
  • Carol Morgan —  A communication professor, dating/relationship and success coach
  • Dr. Magdalena Battles — A Doctor of Psychology with specialties include children, family relationships, domestic violence, and sexual assault
  • Randy Skilton —  An educator in the areas of relationships and self-help

Featured photo credit: Unsplash via unsplash.com

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