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15 Things To Remember If Your Loved Ones Suffer From Multiple Sclerosis

15 Things To Remember If Your Loved Ones Suffer From Multiple Sclerosis

Has someone important to you been diagnosed with multiple sclerosis (MS)?  This disease can be hard for patients — as well as their family and friends — to live with.  Here are some important things to remember if you love someone with this disease.

1. They Value Their Independence

Many MS patients, as the diseases progresses, can have problems with muscle control and mobility — and everyday tasks like preparing a meal, walking or going to the bathroom can become a challenge.  But they want to maintain their independence and do for themselves for as long as they possibly can.  It is an important part of their dignity.

2. They Live in Hope

MS is a progressive disease and there is no cure for it. However, they do have hope that this might change.  And research is underway around the world to help find eventually find a cure for this difficult disease. And in the meantime, new MS treatments are offering the hope for a better quality of life.

3. They Want to be Acknowledged

As the MS advances, many patients will often become confined to a wheelchair and may have difficulty speaking and some short term memory loss. Oftentimes, other people will feel uncomfortable about this and talk to relatives or doctors as though the patient is not there. People with MS want to be acknowledged and spoken to directly: their IQ is not affected by this disease and they want to be able to communicate just like everyone else.

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4. They are Not Helpless

People with MS can be empowered to take control of managing their disease through many lifestyle choices.  Diet, for instance, can play an important role in MS management and although it cannot cure the disease, it can help with the health of the immune system and the body in general.

5. They are Not Alone

Over 2.5 million people all around the world live with multiple sclerosis every day.  There are 400,000 in the United States alone and around 200 new people are diagnosed with this disease each week.  Because of its prevalence, there are MS support groups all over the country and many people find that joining a support group and getting connected with other who also struggle with this disease is emotionally helpful.

6. They Have Choices

Many patients with MS are choosing the route of complementary and alternative medicines to help manage with condition. Some will do this along with traditional treatments and some in place of them.  These alternatives include herbal therapy, acupuncture and massage therapy, among others.

7. They Do Not All Have the Same Signs and Symptoms

Multiple sclerosis is not a “one size fits all” disease!  It is different for each person who experiences it. There are four types of multiple sclerosis and each one can be mild, moderate or severe.  Not all people with MS will wind up with walkers or wheelchairs.  Not all will have vision or memory problems, either.

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8. They Do Not Have a Fatal Disease

Multiple sclerosis is not considered to be a fatal disease. The life expectancy of someone with MS is only 5-10 years less than that of the general population and with new treatments and better understanding of the disease, even that gap is beginning to close. It is important to note, however, that some complications from MS, like pneumonia, can become life-threatening.

9. They have the Same Interests as Everyone Else

People with MS enjoying going out to eat with friends, visiting a park or museum or going to a place of worship — in short, they have much the same interests as everyone else!  While it can take more planning and preparation to do these things with MS, it is still possible and still an enjoyable experience to get out and live life as fully as possible.

10. They Like to Be Active

Don’t assume that because someone has to use a walker or a wheelchair that they have to “rest” or “take it easy” all the time.  Even as the disease progresses, exercise within reason is considered to be beneficial for MS patients and activity in general can help to keep to boost the immune system and help with symptoms like depression.

11. They Can Struggle with Depression

Because multiple sclerosis can lead to a loss of independence as the diseases progresses and because this disease has no cure, people with MS can struggle with feelings of depression.  It is important to talk to the doctor about these feelings and seek therapy and/or medications — but loving support from family and friends can really help them, too.

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12. They Can Have Vision Problems, Too

Multiple sclerosis affects nerves throughout the body — including the optic nerve which controls vision.  As a result of this, people with MS can struggle with vision at times and have symptoms like blurred or double vision, difficulty controlling the movements of their eyes or even blindness (this is usually in just one eye and usually temporary).

13. They Might have Periods of Remission

Depending upon the type of MS a person has, they can have periods of remission, where the signs and symptoms of the disease seem to get better. This does not mean that they are cured of the disease, however, and these times should be enjoyed as a sort of reprieve when it is possible to get out and do more.  Keep in mind, though, that sooner or later, the MS symptoms will return.

14. They are Sexual Beings like Everyone Else

Even in an age of rights for the disabled, many people are uncomfortable with the idea that people with disabilities have sexual thoughts and feelings — and are capable of sexual expression.  While sex with MS can be more challenging, it is still possible for a couple to have a intimate and satisfying sex life even with this disease.  Good communication between the sexual partners is very important — just as it is in any relationship!

15. They Can Still Have Children

Women who get MS are often diagnosed in their 20’s or 30’s — when they are still of childbearing age.  And many women with this disease go on to have healthy pregnancies and give birth to healthy children — though often they must deliver by Caesarian section (C-section).  Don’t assume that because a young woman has MS that she is infertile and not interested in having children.

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So if someone you love has MS, keep these things in mind.  Because as with many chronic diseases, the loving support of family and friends is vital for emotional health and a good quality of life.

Featured photo credit: IM Free via depositphotos.com

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Brian Wu

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Last Updated on October 18, 2018

50+ Best Motivational Quotes To Prepare You For Any Challenges In Life

50+ Best Motivational Quotes To Prepare You For Any Challenges In Life

Life is filled with highs and lows —happiness and struggles that will test your resilience and integrity, push you to overcome challenges and leave you with lessons that will make you even stronger on your way up.

It’s the way you feel and think about yourself, including your expectations and beliefs about what is possible to you, greatly determines everything that happens to you.

It all starts with your thoughts. When you change your thoughts, you transform the quality of your life. (Right, Nancy’s story is a typical example!)

Below is a list of the best motivational quotes to inspire you to start your day with a blast:

Quotes for self-assurance

1. Don’t downgrade your dream just to fit your reality, upgrade your conviction to match your destiny.

    2. You are braver than you believe, stronger than you seem and smarter than you think.

      3. You are confined only by the walls you build yourself.

        4. The man who has confidence in himself gains the confidence of others

          5. You attract what you are, not what you want. If you want great, then be great.

            6. It’s not who you are that holds you behind, it’s who you think your are not.

              Quotes about positivity

              7. Stop being afraid of what could go wrong and think of what could go right.

                8. You should never regret anything in life. If it’s good, it’s wonderful. If it’s bad, it is experience.

                  9. Falling down is an accident, staying down is a choice.

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                    10. If you have the power to make someone happy, do it. The world needs more of that.

                      11. Always believe that something wonderful is about to happen.

                        12. Don’t be afraid to give up the good and go for great.

                          13. Remember that life’s greatest lessons are usually learned from worst times and from the worst mistakes.

                            Quotes for work and success

                            14. Don’t talk, just act. Don’t say, just show. Don’t promise, just prove.

                              15. Never stop doing great just because someone doesn’t give you credit.

                                16. Discipline is doing what needs to be done, even if you don’t want to.

                                  17. Work while they sleep. Learn while they party. Save while they spend. Live like they dream.

                                    18. The key to success is to focus our conscious mind on things we desire, not things we fear.

                                      19. Never apologize for having high standards, people who really want to be in your life will rise to meet them.

                                        20. If it doesn’t challenge you, it won’t change you.

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                                          21. Never give up on a dream just because of the time it will take to accomplish it, time will pass anyway.

                                            22. Don’t fear failure. Fear being in the exact same place next year as you are today.

                                              23. A hill is just another opportunity to leave your competition behind.

                                                24. Don’t quit. You’re already in pain. You’re already hurt. Get a reward from it.

                                                  25. Hustle until you no longer need to introduce yourself.

                                                    26. You didn’t come this far only to come this far.

                                                      27. Be selective in your battles for sometimes peace is better than being right.

                                                        28 If we keep doing what we are doing, we’re going to keep getting what we’re getting.

                                                          29. You will never know your limits until you push yourself to them.

                                                            30. Do what you have to do until you can do what you want to do.

                                                              31. The man on top of the mountain didn’t fall there.

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                                                                32. If your dreams don’t scare you, they are not big enough.

                                                                  33. If you can’t handle stress, you won’t manage success.

                                                                    34. Don’t be pushed by your problems, be led by your dreams.

                                                                      35. Don’t mistake silence for weakness. Smart people don’t plan big moves out loud.

                                                                        36. Simplicity is the ultimate sophistication.

                                                                          37. Obsessed is the word the lazy use to describe dedicated.

                                                                            38. You become who you spend your time with.

                                                                              39. Be stubborn about your goals and flexible about your methods.

                                                                                40. Hard work beats talent when talent doesn’t work hard.

                                                                                  41. If you don’t build your dreams, someone else will hire you to build theirs.

                                                                                    42. Between stimulus and response is our greatest power –the freedom to choose.

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                                                                                      43. What comes easy won’t last, what lasts won’t come easy.

                                                                                        44. Don’t limit your challenges, challenge your limits.

                                                                                          45. Work until your idols become your rivals.

                                                                                            Quotes about money

                                                                                            46. Formal education will make you a living. Self-education will make you a fortune.

                                                                                              47. I create new enemies every day, it’s called business.

                                                                                                48. When you have a Million Dollar vision, don’t surround yourself with 1 cent minds.

                                                                                                  49. You can’t get rich thinking poor.

                                                                                                    50. Doing what is comfortable is rarely profitable.

                                                                                                      51. If you can count your money, work harder.

                                                                                                        If you find yourself feeling lost and frustrated, it’s never too late to change things up. Check out this guide:

                                                                                                        How to Start Over and Reboot Your Life When It Seems Too Late

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