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15 Things To Remember If Your Loved Ones Suffer From Multiple Sclerosis

15 Things To Remember If Your Loved Ones Suffer From Multiple Sclerosis

Has someone important to you been diagnosed with multiple sclerosis (MS)?  This disease can be hard for patients — as well as their family and friends — to live with.  Here are some important things to remember if you love someone with this disease.

1. They Value Their Independence

Many MS patients, as the diseases progresses, can have problems with muscle control and mobility — and everyday tasks like preparing a meal, walking or going to the bathroom can become a challenge.  But they want to maintain their independence and do for themselves for as long as they possibly can.  It is an important part of their dignity.

2. They Live in Hope

MS is a progressive disease and there is no cure for it. However, they do have hope that this might change.  And research is underway around the world to help find eventually find a cure for this difficult disease. And in the meantime, new MS treatments are offering the hope for a better quality of life.

3. They Want to be Acknowledged

As the MS advances, many patients will often become confined to a wheelchair and may have difficulty speaking and some short term memory loss. Oftentimes, other people will feel uncomfortable about this and talk to relatives or doctors as though the patient is not there. People with MS want to be acknowledged and spoken to directly: their IQ is not affected by this disease and they want to be able to communicate just like everyone else.

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4. They are Not Helpless

People with MS can be empowered to take control of managing their disease through many lifestyle choices.  Diet, for instance, can play an important role in MS management and although it cannot cure the disease, it can help with the health of the immune system and the body in general.

5. They are Not Alone

Over 2.5 million people all around the world live with multiple sclerosis every day.  There are 400,000 in the United States alone and around 200 new people are diagnosed with this disease each week.  Because of its prevalence, there are MS support groups all over the country and many people find that joining a support group and getting connected with other who also struggle with this disease is emotionally helpful.

6. They Have Choices

Many patients with MS are choosing the route of complementary and alternative medicines to help manage with condition. Some will do this along with traditional treatments and some in place of them.  These alternatives include herbal therapy, acupuncture and massage therapy, among others.

7. They Do Not All Have the Same Signs and Symptoms

Multiple sclerosis is not a “one size fits all” disease!  It is different for each person who experiences it. There are four types of multiple sclerosis and each one can be mild, moderate or severe.  Not all people with MS will wind up with walkers or wheelchairs.  Not all will have vision or memory problems, either.

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8. They Do Not Have a Fatal Disease

Multiple sclerosis is not considered to be a fatal disease. The life expectancy of someone with MS is only 5-10 years less than that of the general population and with new treatments and better understanding of the disease, even that gap is beginning to close. It is important to note, however, that some complications from MS, like pneumonia, can become life-threatening.

9. They have the Same Interests as Everyone Else

People with MS enjoying going out to eat with friends, visiting a park or museum or going to a place of worship — in short, they have much the same interests as everyone else!  While it can take more planning and preparation to do these things with MS, it is still possible and still an enjoyable experience to get out and live life as fully as possible.

10. They Like to Be Active

Don’t assume that because someone has to use a walker or a wheelchair that they have to “rest” or “take it easy” all the time.  Even as the disease progresses, exercise within reason is considered to be beneficial for MS patients and activity in general can help to keep to boost the immune system and help with symptoms like depression.

11. They Can Struggle with Depression

Because multiple sclerosis can lead to a loss of independence as the diseases progresses and because this disease has no cure, people with MS can struggle with feelings of depression.  It is important to talk to the doctor about these feelings and seek therapy and/or medications — but loving support from family and friends can really help them, too.

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12. They Can Have Vision Problems, Too

Multiple sclerosis affects nerves throughout the body — including the optic nerve which controls vision.  As a result of this, people with MS can struggle with vision at times and have symptoms like blurred or double vision, difficulty controlling the movements of their eyes or even blindness (this is usually in just one eye and usually temporary).

13. They Might have Periods of Remission

Depending upon the type of MS a person has, they can have periods of remission, where the signs and symptoms of the disease seem to get better. This does not mean that they are cured of the disease, however, and these times should be enjoyed as a sort of reprieve when it is possible to get out and do more.  Keep in mind, though, that sooner or later, the MS symptoms will return.

14. They are Sexual Beings like Everyone Else

Even in an age of rights for the disabled, many people are uncomfortable with the idea that people with disabilities have sexual thoughts and feelings — and are capable of sexual expression.  While sex with MS can be more challenging, it is still possible for a couple to have a intimate and satisfying sex life even with this disease.  Good communication between the sexual partners is very important — just as it is in any relationship!

15. They Can Still Have Children

Women who get MS are often diagnosed in their 20’s or 30’s — when they are still of childbearing age.  And many women with this disease go on to have healthy pregnancies and give birth to healthy children — though often they must deliver by Caesarian section (C-section).  Don’t assume that because a young woman has MS that she is infertile and not interested in having children.

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So if someone you love has MS, keep these things in mind.  Because as with many chronic diseases, the loving support of family and friends is vital for emotional health and a good quality of life.

Featured photo credit: IM Free via depositphotos.com

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Brian Wu

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Last Updated on June 19, 2019

6 Ways to Be a Successful Risk Taker and Take More Chances

6 Ways to Be a Successful Risk Taker and Take More Chances

I’ve stood on the edge of my own personal cliffs many times. Each time I jumped, something different happened. There were risks that started off great, but eventually faded. There were risks that left me falling until I hit the ground. There were risks that started slow, but built into massive successes.

Every risk is different, but every risk is the same. You need to have some fundamentals ready before you jump, but not too many.

It wouldn’t be a risk if you knew everything that was about to happen, would it? Here’re 6 ways to be a successful risk taker.

1. Understand That Failure Is Going to Happen a Lot

It’s part of life. Everything we do has failure attached to it. All successful people have stories of massive failure attached to them. Thinking that your risk is going to be pain free and run as smooth as silk is insane.

Expect some pain and failure. Actually, expect a lot of it. Expect the sleepless nights with crazy thoughts of insecurity that leave you trembling under the covers. It’s going to happen, no matter how positive you are about the risk you are about to take.

When failure hits, the only options are to keep going or quit. If you expect falling into a meadow of flowers and frolicking unicorns, then you’re going to immediately quit once you realize that getting to that meadow requires you to go through a rock filled cave filled with hungry bats.

2. Trust the Muse

Writing a story isn’t a big risk. It’s really just a risk on my time. So when I start writing a story, I’m scared it will be time wasted. Of course, it never really is. Even if the story doesn’t turn out fabulous, I still practiced.

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When I’ve taken risks in my life, the successful ones always seemed to happen when I followed the muse. Steven Pressfield describes the muse,

“The Muse demands depth. Shallow does not work for her. If we’re seeking her help, we can’t stay in the kiddie end. When we work, we have to go hard and go deep.”

The muse is a goddess who wants our attention and wants us to work on our passion.

If you’re taking a risk in anything, it’s assumed that there is some passion built up behind that risk. That passion, deep inside you, is the muse. Trust it, focus on it, listen to it.

The most successful articles and stories I write are the ones I’ve focused all my attention on. There were no interruptions during their creative development. I didn’t check my phone or go watch my Twitter feed. I was fully engaged in my work.

Trust the muse, focus your attention on your risk, let the ideas and path develop themselves, and leave the distractions at the side of the road.

3. Remember to Be Authentic

Taking a risk and then turning into something you’re not, is only going to lead to disaster. Whether you are risking a new relationship or new opportunity, you must be yourself throughout the entire process.

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How many times have you acted like you loved something just because the men or woman you just started going out with loved it?

For example, I’m not an office worker. I have an incredibly hard time working in a confined timeline (ie. 9-5). That’s why I write. I can do it whenever the mood strikes, I don’t have somebody breathing down my neck, telling me that I’m five minutes late, or missed a comma somewhere. I don’t have to walk on eggshells wondering if what I’m writing will get me fired or make me lose a promotion. I can just be myself, period.

One girlfriend didn’t understand that. She believed solely in the 9-5 motto, specifically something in human resources because that was a very stable job. I was scared for my future, but I stuck with the relationship because of my own insecurities and acted like I would do it to make her happy.

Here’s a tip: NEVER take away from your happiness to make somebody else satisfied (note I didn’t say happy).

Making somebody else happy will make you happy. Doing something to satisfy somebody is murder on your soul.

4. Don’t Take Any Risks While You’re Not Clearheaded

I’d been considering the risk for a couple weeks. It all sounded good. I was 22 and I could be rich in a couple of years. That’s what they were selling me, anyways.

One night, while at a house party with some friends, I found myself at a computer. A couple of my friends were standing nearby and asked me what I was doing. I told them I was considering starting my own business and it was only going to cost me $1,500.

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Of course, when a bunch of drunk people are surrounded by more drunk people, things get enthusiastic. It sounded like the best business venture in the world to everybody, including me. So I signed up and gave them my credit card number.

A few painful months and close to $4,000 dollars lost later, I quit the business. I was young and fell into the pyramid scheme trap. It was an expensive drunk decision.

Drinking heavily and making decisions has a proven track record of failure. So when you have something important to decide, don’t let your emotions take over your brain.

5. Fully Understand What You’re Risking

It was the start of my baseball comeback. I got a tryout with a professional scout and killed it. After the tryout, he talked to my girlfriend and myself, making sure we understood I would be gone for up to 6 months at a time. That strain on the relationship could be tough.

We understood. I left to play ball, chose to stay in the city I played in, and a year later we broke up. Not because of baseball, see point 3 above. Taking big risks can have massive impacts on everything in your life from relationships to money. Know what you’re risking before you take the risk.

If you believe the risk will be worth it or you have the support you need from your family, then go ahead and make the leap.

You can get more guidance on how to take calculated risks from this article: How to Take Calculated Risk to Achieve More and Become Successful

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6. Remember This Is Your One Shot Only

As far as we know officially, this is our one shot at life, so why not take some risks?

The top thing people are saddened by on their deathbeds are these regrets. They wish they did more, asked that girl in the coffee shop out, spoke out when they should have, or did what they were passionate about.

Don’t regret. Learn and experience. Live. Take the risks you believe in. Be yourself and make the world a better place.

Now go ahead, take that risk and be successful at it!

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Featured photo credit: Unsplash via unsplash.com

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