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15 Things To Remember If Your Loved Ones Suffer From Multiple Sclerosis

15 Things To Remember If Your Loved Ones Suffer From Multiple Sclerosis

Has someone important to you been diagnosed with multiple sclerosis (MS)?  This disease can be hard for patients — as well as their family and friends — to live with.  Here are some important things to remember if you love someone with this disease.

1. They Value Their Independence

Many MS patients, as the diseases progresses, can have problems with muscle control and mobility — and everyday tasks like preparing a meal, walking or going to the bathroom can become a challenge.  But they want to maintain their independence and do for themselves for as long as they possibly can.  It is an important part of their dignity.

2. They Live in Hope

MS is a progressive disease and there is no cure for it. However, they do have hope that this might change.  And research is underway around the world to help find eventually find a cure for this difficult disease. And in the meantime, new MS treatments are offering the hope for a better quality of life.

3. They Want to be Acknowledged

As the MS advances, many patients will often become confined to a wheelchair and may have difficulty speaking and some short term memory loss. Oftentimes, other people will feel uncomfortable about this and talk to relatives or doctors as though the patient is not there. People with MS want to be acknowledged and spoken to directly: their IQ is not affected by this disease and they want to be able to communicate just like everyone else.

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4. They are Not Helpless

People with MS can be empowered to take control of managing their disease through many lifestyle choices.  Diet, for instance, can play an important role in MS management and although it cannot cure the disease, it can help with the health of the immune system and the body in general.

5. They are Not Alone

Over 2.5 million people all around the world live with multiple sclerosis every day.  There are 400,000 in the United States alone and around 200 new people are diagnosed with this disease each week.  Because of its prevalence, there are MS support groups all over the country and many people find that joining a support group and getting connected with other who also struggle with this disease is emotionally helpful.

6. They Have Choices

Many patients with MS are choosing the route of complementary and alternative medicines to help manage with condition. Some will do this along with traditional treatments and some in place of them.  These alternatives include herbal therapy, acupuncture and massage therapy, among others.

7. They Do Not All Have the Same Signs and Symptoms

Multiple sclerosis is not a “one size fits all” disease!  It is different for each person who experiences it. There are four types of multiple sclerosis and each one can be mild, moderate or severe.  Not all people with MS will wind up with walkers or wheelchairs.  Not all will have vision or memory problems, either.

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8. They Do Not Have a Fatal Disease

Multiple sclerosis is not considered to be a fatal disease. The life expectancy of someone with MS is only 5-10 years less than that of the general population and with new treatments and better understanding of the disease, even that gap is beginning to close. It is important to note, however, that some complications from MS, like pneumonia, can become life-threatening.

9. They have the Same Interests as Everyone Else

People with MS enjoying going out to eat with friends, visiting a park or museum or going to a place of worship — in short, they have much the same interests as everyone else!  While it can take more planning and preparation to do these things with MS, it is still possible and still an enjoyable experience to get out and live life as fully as possible.

10. They Like to Be Active

Don’t assume that because someone has to use a walker or a wheelchair that they have to “rest” or “take it easy” all the time.  Even as the disease progresses, exercise within reason is considered to be beneficial for MS patients and activity in general can help to keep to boost the immune system and help with symptoms like depression.

11. They Can Struggle with Depression

Because multiple sclerosis can lead to a loss of independence as the diseases progresses and because this disease has no cure, people with MS can struggle with feelings of depression.  It is important to talk to the doctor about these feelings and seek therapy and/or medications — but loving support from family and friends can really help them, too.

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12. They Can Have Vision Problems, Too

Multiple sclerosis affects nerves throughout the body — including the optic nerve which controls vision.  As a result of this, people with MS can struggle with vision at times and have symptoms like blurred or double vision, difficulty controlling the movements of their eyes or even blindness (this is usually in just one eye and usually temporary).

13. They Might have Periods of Remission

Depending upon the type of MS a person has, they can have periods of remission, where the signs and symptoms of the disease seem to get better. This does not mean that they are cured of the disease, however, and these times should be enjoyed as a sort of reprieve when it is possible to get out and do more.  Keep in mind, though, that sooner or later, the MS symptoms will return.

14. They are Sexual Beings like Everyone Else

Even in an age of rights for the disabled, many people are uncomfortable with the idea that people with disabilities have sexual thoughts and feelings — and are capable of sexual expression.  While sex with MS can be more challenging, it is still possible for a couple to have a intimate and satisfying sex life even with this disease.  Good communication between the sexual partners is very important — just as it is in any relationship!

15. They Can Still Have Children

Women who get MS are often diagnosed in their 20’s or 30’s — when they are still of childbearing age.  And many women with this disease go on to have healthy pregnancies and give birth to healthy children — though often they must deliver by Caesarian section (C-section).  Don’t assume that because a young woman has MS that she is infertile and not interested in having children.

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So if someone you love has MS, keep these things in mind.  Because as with many chronic diseases, the loving support of family and friends is vital for emotional health and a good quality of life.

Featured photo credit: IM Free via depositphotos.com

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Last Updated on May 22, 2020

What Makes a Good Leader: 9 Critical Leadership Qualities

What Makes a Good Leader: 9 Critical Leadership Qualities

The word “leader” makes you think of people in charge, high-ranking people: your boss, politicians, presidents, CEOs…

But leadership really isn’t about a particular position or a person’s seniority. Just because someone has worked for many years doesn’t mean s/he has gained the qualities and skills to lead a team.

Getting promoted to a managerial position doesn’t automatically turn you into a leader either. CEOs and other high-ranking officials don’t always have great leadership skills.

So what makes a good leader? What are the characteristics of a leader?

Good leadership is about acquiring and honing specific skills. Leadership skills enable you to be a role model for a team in any environment. With great leadership qualities, successful leaders come in all shapes and sizes: in the home, at school, or in the workplace.

The following are some of the many characteristics great leaders exhibit.

1. A Positive Attitude

Great leaders know that they won’t have a happy and motivated team unless they themselves exhibit a positive attitude. This can be done by remaining positive when things go wrong and by creating a relaxed and happy atmosphere in the workplace.

Even some simple things like providing snacks or organizing a team Happy Hour can make a world of difference. An added perk is that team members are likely to work harder and do overtime when needed if they’re happy and appreciated.

Even in the worst situations, such as experiencing low team morale or team members having made a big mistake at work, a great leader stays positive and figures out ways to keep the team motivated to solve the problems.

Walt Disney had his share of hardships and challenges, and like any great leader, he managed to stay positive and find new opportunities. In 1928, Disney found that his film producer, Charles Mintz, wanted to reduce his payments for the Oswald series. Mintz threatened to cut ties entirely if Disney didn’t accept his terms, and Disney chose to part ways. But in leaving Oswald, Disney decided to create something new: the iconic Mickey Mouse[1].

The key is to break down huge challenges into smaller ones and find ways to tackle them one by one.

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Think about the lessons you can learn from the mistake and jot them down because sometimes you win, and sometimes you learn.

2. Confidence

All great leaders have to exhibit an air of confidence if they’re going to succeed. Please don’t confuse this with self-satisfaction and arrogance. You want people to look up to you for inspiration, not so they can punch you in the face.

Confidence is important because people will be looking to you on how to behave, particularly if things aren’t going 100% right. If you remain calm and poised, team members are far more likely to as well. As a result, morale and productivity will remain high, and the problem will be solved more quickly.

If you panic and give up, they will know immediately and things will simply go downhill from there.

Elon Musk is a great example of a leader with confidence. He truly believes that Tesla will be successful, which he has shown many times through his actions. He converted 532,000 stock options at $6.63 each, their value on Dec. 4, 2009, before Tesla went public. It was a hefty bargain considering Tesla’s stock price stood at around $195 per share at that time. He doesn’t apologize for his beliefs and has drawn fire from just about everyone for his political actions.

You can’t instantly become a very confident person, but all the small things you do every day will gradually make you more confident:

  • List 5 things you like about yourself every day (something different every day), and you’ll appreciate yourself more.
  • Work on your strengths and do your best to enhance them.

3. A Sense of Humor

It’s imperative for any kind of leader to have a sense of humor, particularly when things go wrong. And they will.

Your team members are going to be looking to you for how to react in a seemingly dire situation. It would probably be best if you weren’t stringing up a noose for yourself in the corner. You need to be able to laugh things off because if staff morale goes down, so will productivity.

Establish this environment prior to any kind of meltdown by encouraging humor and personal discussions in the workplace.

As a president, Barack Obama exuded confidence and calm during stressful situations. But he was also known for his “dad jokes,”[2] his genuinely funny speeches at the White House Correspondents’ Dinner, and appearing on Zack Galifianakis’s Between Two Ferns.[3] Obama’s sense of humor made him grounded, realistic, and honest, which no doubt helped during some tense moments in the White House!

Learn to laugh at yourself. Confident people laugh about their own silly mistakes, and when you do this, others will also trust you more because you’re willing to share your experiences.

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Be observant and learn from the jokes others make. You can also get a lot of inspiration from the internet.

4. Ability to Embrace Failure

No matter how hard you try to avoid it, failures will happen; that’s okay. You just need to know how to deal with them.

Great leaders take them in strides. They remain calm and logically think through the situation and utilize their resources. What they don’t do is fall apart and reveal to their team how worried they are, which leads to negative morale, fear, and binge-drinking under desks.

Great leaders do, in fact, lead, even when they’re faced with setbacks.

Henry Ford experienced a major setback after designing and improving the Ford Quadricycle. He founded the Detroit Automobile Company in 1899, but the resulting cars they produced did not live up to his standards and were too expensive. The company dissolved in 1901. Ford took this in stride and formed the Henry Ford Company. The sales were slow and the company had financial problems; it wasn’t until 1903 that the Ford Motor Company was successful and put the Ford on the map.

Get to the root cause of any problem so you can prevent it from happening again and learn from the mistake.

By asking “why” 5 times (or more) on why something happened, you can find out the key factor that caused the problem and can find the best solution to tackle the problem.

You’ll also learn how to prevent this from happening again in the future after finding out a problem’s root cause.

5. Careful Listening and Feedback

This is far more complex than it actually sounds. Good communication skills are essential for a great leader. You may very well understand the cave of crazy that is your brain, but that doesn’t mean that you can adequately take the ideas out of it and explain them to someone else.

The best leaders need to be able to communicate clearly with the people around them. They also need to be able to interpret other people properly and not take what they say personally.

The Dalai Lama, as a symbol of the unification of the state of Tibet, represents and practices Buddhist values. The Dalai Lama’s leadership is benevolent and aims toward truth and understanding, alongside the other Buddhist precepts. This is a great example for all leaders: if you want to give good directions to others, you have to get feedback from others to understand the situation properly.

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Encourage communication between team members and establish an open door policy.

Practice not interrupting team members when they’re talking. Instead, summarize what they say and ask for feedback after you have talked about your ideas.

6. Knowing How and When to Delegate

No matter how much you might want to, you can’t actually do everything yourself. Even if you could, in a team environment that would be a terrible idea anyway.

Good leaders recognize that delegation does more than simply alleviate their own stress levels (although that’s obviously a nice perk). Delegating to others shows that you have confidence in their abilities, which subsequently results in higher morale in the workplace, as well as loyalty from your staff. They want to feel appreciated and trusted.

Although Steve Jobs was known for focusing in on the smallest of details, he knew how to delegate. By finding, cultivating, and trusting capable team members, Jobs was able to make Apple run smoothly, even when he had to be absent for extended periods of time.

To know when and how to delegate work to team members, you have to be very familiar with each of them:

  • List out all of their strengths, weaknesses, and personalities.
  • Talk with your team members more to know about their passion and interests.

Take a look at this guide and learn more about delegation: How to Delegate Work Effectively (The Definitive Guide for Leaders)

7. Growth Mindset

Any good leader knows how important it is to develop the skills of those around them. The best can recognize those skills early on. Not only will development make work easier as they improve and grow, it will also foster morale. In addition, they may develop some skills that you don’t possess that will be beneficial to the workplace.

Great leaders share their knowledge with the team and give them the opportunity to achieve. This is how leaders gain their respect and loyalty.

Pope Francis has been unusually popular with many Catholics and many non-Catholics. His position isn’t totally traditional, which is part of his appeal, but he also has admirable leadership skills. Pope Francis’s TED talk[4] drew attention because he encouraged leaders to be humble and to demonstrate solidarity with others. This inclusive, kind, and respectful style of leadership is incredibly important for any situation.

It’s important to spend time talking with other team members individually to understand them.

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Find out team members’ current challenges and try to give feedback and encouragement so they will grow and do better.

8. Responsibility

Great leaders know that when it comes to their company, work place or whatever situation they’re in, they need to take personal responsibility for failure. How can they expect employees to hold themselves accountable if they themselves don’t?

The best leaders don’t make excuses; they take the blame and then work out how to fix the problem as soon as possible. This proves that they’re trustworthy and possess integrity.

Howard Gillman is the chancellor of UC Irvine. You might have heard of how the university rescinded a bunch of acceptances, and then changed its mind[5], This past spring, an unusually high number of accepted students decided to matriculate; the school initially responded by rescinding offers over things like missed deadlines. But the college realized this was a mistake and reversed its decision. Gillman and the university accepted responsibility and decided to move past their earlier bad decision.

Always ask yourself what you can do better or what you should change. Take responsibility and think about what you can do better to prevent this from happening next time.

9. A Desire to Learn

It’s safe to say that all great leaders will have to enter unchartered waters at some point during their career. Because of this, they have to be able to trust their intuition and draw on past experiences to guide them.

Great leaders know that there’s always something to learn from everything they have experienced before. They are able to connect the present challenges with the lessons learned in the past to make decisions and take actions promptly.

You can either recall what you’ve learned from your memories or search your notes (ideally, a software that you can access anywhere with things well-organized).

Warren Buffett, one of the richest people in the world, has mostly made the right calls. But in dealing with huge amounts of money, Buffett has also made several multi-million (and sometimes multi-billion) dollar mistakes. He has stated that buying the company Berkshire Hathaway was his biggest mistake[6]. From that poor choice, he realized that it was unwise to pursue “improvements” and “expansions” in the existing textile industry. Despite mistakes like this, Buffett has invested wisely, and it shows.

To effectively learn from the past, write down lessons you’ve learned from any mistakes you’ve made. Have all the lessons well organized, and when similar things happen again in future, take these lessons as references.

The Bottom Line

Leadership traits are learnable. If you practice consistently, you can be a great leader, too.

Make small changes to your habits when you work with your team, wherever that may be. Most of us aren’t presidents or CEOs, but we all work with other people, and our actions always impact others. This gives every person the chance to develop leadership skills and to stand out from the crowd.

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Featured photo credit: Markus Spiske via unsplash.com

Reference

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