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15 Things to Remember if You Love a Person with Crohn’s Disease

15 Things to Remember if You Love a Person with Crohn’s Disease

Many otherwise intelligent individuals have the rather insensitive view that Crohn’s Disease is simply a nice medical term for an illness that people have because they lack self-control. To them, everyone has bowel troubles, some more than others, and that all it takes is watching what one eats and drinks in order to have normal intestinal operation. They also become frustrated with Crohn’s sufferers, thinking that they exaggerate their symptoms and just need to take a few antacids or anti-diarrhoea pills.

Crohn’s is classified as an autoimmune disease, in which the body is actually producing antibodies that act against itself, much like the more commonly known Lupus. Just getting the fact out that it really is a serious disease and not just a “condition” is truly important, because misinformation makes it hard to develop empathy for a friend or partner with this disease. That said, here are 15 things that Crohn’s sufferers will endure that require understanding, patience, and support.

1. They can’t participate in a lot of sports and other social activities as young people

Imagine you are a 16-year old girl who would love to go out with her friends for the evening. Maybe they want to drive around, stop at a few other friends’ homes, and stop at a fast-food place for burgers and fries. For the teen with Crohn’s, this means not eating all day in order to avoid embarrassing diarrhoea accidents, and certainly not participating in the fast-food stop. Suppose you are a teen boy wearing an excretion bag – how do you shower with your classmates after PE class? Parents and other adults need to be happy to make comforting accommodations for these teens, and that includes the PE teacher-jock who may not have a tendency for a lot of empathy. Wise parents have meetings with school personnel and make certain that all reasonable accommodations have been made, including a quick exit from class without permission.

2. They know it’s better not to consume alcohol

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    So, when everyone is having a grand time at happy hour and putting pressure for the Crohn’s sufferer to have a beer, they wonder why they won’t drink. Are they anti-social; are they a recovering alcoholic? A sufferer with a pretty solid self-image may be able to explain the disease a bit. Good friends and partners understand and make an extra effort to make the sufferer feel comfortable, even in an environment of drinking.

    3. They get depressed easily, because the disease seems to control so much of their daily lives

    As Bethany Townsend, famous model and make-up artist claims, she left her career for years because of her “bag” and only recently was able to put on a bikini and post it on Facebook with the support and encouragement of her husband. Because of the overwhelming support she then received from Facebook fans she is back modeling and over her depression. Most Crohn’s sufferers do not give up public and promising careers, but they do have periods of depression. Making an effort to really understand how the simple things you take for granted can be big hurdles for your loved one will go a long way.

    4. They may skip meals in order to avoid having to go to the bathroom

    Weight is a rather sensitive topic for people with Chrohn’s. Oftentimes it’s easier for them to say they’ve been sticking to some brand new diet plan for weight loss than admitting they don’t want to have lunch with you because they might afterwards get stuck in the bathroom for hours. Skipping meals is one big concern for medical professionals dealing with Crohn’s patients because the potential for severe weight loss and even anemia are always present. A current study involving 3700 patients from over 40 countries is underway to research the efficacy of some new medications that will reduce the levels of the culprit antibodies and thus onset of acute and severe diarrhea is currently underway and does show some promise.

    5. They can suffer embarrassingly severe diarrhea, especially in public places

    They have to look for the nearest restroom when they are out, and this can be irritating to social acquaintances and partners who just don’t have the empathy they should. Being seated in a restaurant for the Crohn’s sufferer is a “huge” consideration, and others need to be supportive and kind about it, even if it means a bit longer wait for a table.

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    6. Being overly tired is a symptom of the disease, not an “avoidance” tactic as some have decided to believe

    Normal daily activities of school and work can be exhausting, and this is a real physical symptom. Friends, family members and partners need to cease complaining or showing irritation when the individual needs a nap or simply does not have the energy to engage in physically-demanding activities after a long day. Plan those activities on weekends when there are no other physical and mental demands on the sufferer.

    7. They may not be able to have the social lives that others do

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      Teens avoid sleepovers, swim parties, and overnight trips with friends; adults may avoid such things as camping trips or picnics and barbecues, or adventurous trips to far away lands where restrooms might not be immediately available.

      8. They may carry extra toilet paper, wear “Depends,” and always have an extra set of clothing with them (for serious cases)

      Again, that’s something they are really embarrassed to admit. Understanding these behaviors is critical for friends and partners who truly want to make life as comfortable as possible for a Crohn’s sufferer. Instead of showing irritation because a road trip may involve more than the average number of restroom stops along the way, the empathetic fellow traveler will take it all in stride, be cheerful and accommodating. Should an accident occur, it is important to know whether the “victim” wants help or wants to deal with the problem on his/her own.

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      9. They are self-conscious about the clothing they wear so that bags don’t show

      If you love this person, make extra efforts to compliment their dress and appearance.

      10. They can’t always sleep well

      There is discomfort a lot of the time, and this is not an exaggeration. Think of times when you have a bad bout of stomach gas with cramps and diarrhea. People with Crohn’s have to deal with this most of the time, even in the middle of the night. Stop complaining about being awakened, and give them a reassuring hug instead. Here are more tips about getting a better sleep if you have Crohn’s.

      11. They may prefer not to go out to eat

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        This can be a “bummer” when friends who are couples invite you to go out to dinner. If your loved one’s symptoms are acute, this is not going to be an option. If they are not acute, and the outing is planned, be certain that the restaurant chosen has mild foods that your loved can tolerate more easily. Several studies currently being conducted by the Crohn’s and Colitis Foundation are attempting to develop means by which normal microbe activity can be stimulated in the gastrointestinal tract that may ultimately allow those with the disease eat more normally. This would be a huge breakthrough!

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        12. They plan when they will eat certain foods, because they know how they will be affected and will need to be physically in a “safe” place

        Don’t try to “force” your loved one to eat anything or anywhere if they are not truly comfortable with the food and/or the environment. You certainly don’t have to change your eating habits because of their disease, but neither should they ever have to change theirs to please yours. Certainly there a lot of great foods both for you and your loved one to digest normally.

        13. Airline bookings may seem like a minor deal to you, but to the Crohn’s sufferer, maybe not

        Be mindful that seating has to be close to the bathroom, and, if there is an accident because the bathroom is occupied at a moment of crisis, be reassuring and comforting. They are embarrassed enough without your expression of embarrassment too.

        14. They understand that there is no cure and that researchers are looking at multiple causes

        Those include but not limited to genetics, previous infections, immune system failures, and environmental factors such as junk food and too many antibiotics earlier in life. Understand that they are keeping apprised of any research that is ongoing and any new promising treatments, and that they will certainly take it up with their doctor. Instead of resenting, the time spent on reading up on these potential treatments and the conversation that they may want to have about them, be a good listener, be encouraging and be positive.

        15. They have fears that they may seem abnormal to you

        Just walking the dog can cause anxiety, if the walk will be pretty long; they fear that they may embarrass themselves or you. Imagine the anxiety of going to your boss’s home for dinner or a barbecue; imagine the anxiety of going to a child’s soccer or basketball game, sitting up in the stands and not being able to get down through the crowd to reach a restroom in time. You have to validate these fears and be willing to compromise. You can’t truly understand the fears because you don’t have the disease, but you must be willing to validate them with both words and behaviors.

        Featured photo credit: Single woman alone swinging on the beach and looking the other seat missing a boyfriend via shutterstock.com

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        Elena Prokopets

        Elena is a passionate blogger who shares about lifestyle tips on Lifehack.

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        Last Updated on September 18, 2020

        7 Simple Rules to Live by to Get in Shape in Two Weeks

        7 Simple Rules to Live by to Get in Shape in Two Weeks

        Learning how to get in shape and set goals is important if you’re looking to live a healthier lifestyle and get closer to your goal weight. While this does require changes to your daily routine, you’ll find that you are able to look and feel better in only two weeks.

        Over the years, I’ve learned a lot about what it takes to get in shape. Although anyone can cover the basics (eat right and exercise), there are some things that I could only learn through trial and error. Let’s cover some of the most important points for how to get in shape in two weeks.

        1. Exercise Daily

        It is far easier to make exercise a habit if it is a daily one. If you aren’t exercising at all, I recommend starting by exercising a half hour every day. When you only exercise a couple times per week, it is much easier to turn one day off into three days off, a week off, or a month off.

        If you are already used to exercising, switching to three or four times a week to fit your schedule may be preferable, but it is a lot harder to maintain a workout program you don’t do every day.

        Be careful to not repeat the same exercise routine each day. If you do an intense ab workout one day, try switching it up to general cardio the next. You can also squeeze in a day of light walking to break up the intensity.

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        If you’re a morning person, check out these morning exercises that will start your day off right.

        2. Duration Doesn’t Substitute for Intensity

        Once you get into the habit of regular exercise, where do you go if you still aren’t reaching your goals? Most people will solve the problem by exercising for longer periods of time, turning forty-minute workouts into two hour stretches. Not only does this drain your time, but it doesn’t work particularly well.

        One study shows that “exercising for a whole hour instead of a half does not provide any additional loss in either body weight or fat”[1].

        This is great news for both your schedule and your levels of motivation. You’ll likely find it much easier to exercise for 30 minutes a day instead of an hour. In those 30 minutes, do your best to up the intensity to your appropriate edge to get the most out of the time.

        3. Acknowledge Your Limits

        Many people get frustrated when they plateau in their weight loss or muscle gaining goals as they’re learning how to get in shape. Everyone has an equilibrium and genetic set point where their body wants to remain. This doesn’t mean that you can’t achieve your fitness goals, but don’t be too hard on yourself if you are struggling to lose weight or put on muscle.

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        Acknowledging a set point doesn’t mean giving up, but it does mean realizing the obstacles you face.

        Expect to hit a plateau in your own fitness results[2]. When you expect a plateau, you can manage around it so you can continue your progress at a more realistic rate. When expectations meet reality, you can avoid dietary crashes.

        4. Eat Healthy, Not Just Food That Looks Healthy

        Know what you eat. Don’t fuss over minutia like whether you’re getting enough Omega 3’s or tryptophan, but be aware of the big things. Look at the foods you eat regularly and figure out whether they are healthy or not. Don’t get fooled by the deceptively healthy snacks just pretending to be good for you.

        The basic nutritional advice includes:

        • Eat unprocessed foods
        • Eat more veggies
        • Use meat as a side dish, not a main course
        • Eat whole grains, not refined grains[3]

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        Eat whole grains when you want to learn how to get in shape.

          5. Watch Out for Travel

          Don’t let a four-day holiday interfere with your attempts when you’re learning how to get in shape. I don’t mean that you need to follow your diet and exercise plan without any excursion, but when you are in the first few weeks, still forming habits, be careful that a week long break doesn’t terminate your progress.

          This is also true of schedule changes that leave you suddenly busy or make it difficult to exercise. Have a backup plan so you can be consistent, at least for the first month when you are forming habits.

          If travel is on your schedule and can’t be avoided, make an exercise plan before you go[4], and make sure to pack exercise clothes and an exercise mat as motivation to keep you on track.

          6. Start Slow

          Ever start an exercise plan by running ten miles and then puking your guts out? Maybe you aren’t that extreme, but burnout is common early on when learning how to get in shape. You have a lifetime to be healthy, so don’t try to go from couch potato to athletic superstar in a week.

          If you are starting a running regime, for example, run less than you can to start. Starting strength training? Work with less weight than you could theoretically lift. Increasing intensity and pushing yourself can come later when your body becomes comfortable with regular exercise.

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          7. Be Careful When Choosing a Workout Partner

          Should you have a workout partner? That depends. Workout partners can help you stay motivated and make exercising more fun. But they can also stop you from reaching your goals.

          My suggestion would be to have a workout partner, but when you start to plateau (either in physical ability, weight loss/gain, or overall health) and you haven’t reached your goals, consider mixing things up a bit.

          If you plateau, you may need to make changes to continue improving. In this case it’s important to talk to your workout partner about the changes you want to make, and if they don’t seem motivated to continue, offer a thirty day break where you both try different activities.

          I notice that guys working out together tend to match strength after a brief adjustment phase. Even if both are trying to improve, something seems to stall improvement once they reach a certain point. I found that I was able to lift as much as 30-50% more after taking a short break from my regular workout partner.

          Final Thoughts

          Learning how to get in shape in as little as two weeks sounds daunting, but if you’re motivated and have the time and energy to devote to it, it’s certainly possible.

          Find an exercise routine that works for you, eat healthy, drink lots of water, and watch as the transformation begins.

          More Tips on Getting in Shape

          Featured photo credit: Alexander Redl via unsplash.com

          Reference

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