Advertising
Advertising

15 Things to Remember if You Love a Person with Crohn’s Disease

15 Things to Remember if You Love a Person with Crohn’s Disease

Many otherwise intelligent individuals have the rather insensitive view that Crohn’s Disease is simply a nice medical term for an illness that people have because they lack self-control. To them, everyone has bowel troubles, some more than others, and that all it takes is watching what one eats and drinks in order to have normal intestinal operation. They also become frustrated with Crohn’s sufferers, thinking that they exaggerate their symptoms and just need to take a few antacids or anti-diarrhoea pills.

Crohn’s is classified as an autoimmune disease, in which the body is actually producing antibodies that act against itself, much like the more commonly known Lupus. Just getting the fact out that it really is a serious disease and not just a “condition” is truly important, because misinformation makes it hard to develop empathy for a friend or partner with this disease. That said, here are 15 things that Crohn’s sufferers will endure that require understanding, patience, and support.

1. They can’t participate in a lot of sports and other social activities as young people

Imagine you are a 16-year old girl who would love to go out with her friends for the evening. Maybe they want to drive around, stop at a few other friends’ homes, and stop at a fast-food place for burgers and fries. For the teen with Crohn’s, this means not eating all day in order to avoid embarrassing diarrhoea accidents, and certainly not participating in the fast-food stop. Suppose you are a teen boy wearing an excretion bag – how do you shower with your classmates after PE class? Parents and other adults need to be happy to make comforting accommodations for these teens, and that includes the PE teacher-jock who may not have a tendency for a lot of empathy. Wise parents have meetings with school personnel and make certain that all reasonable accommodations have been made, including a quick exit from class without permission.

2. They know it’s better not to consume alcohol

Advertising

picjumbo.com_IMG_6999

    So, when everyone is having a grand time at happy hour and putting pressure for the Crohn’s sufferer to have a beer, they wonder why they won’t drink. Are they anti-social; are they a recovering alcoholic? A sufferer with a pretty solid self-image may be able to explain the disease a bit. Good friends and partners understand and make an extra effort to make the sufferer feel comfortable, even in an environment of drinking.

    3. They get depressed easily, because the disease seems to control so much of their daily lives

    As Bethany Townsend, famous model and make-up artist claims, she left her career for years because of her “bag” and only recently was able to put on a bikini and post it on Facebook with the support and encouragement of her husband. Because of the overwhelming support she then received from Facebook fans she is back modeling and over her depression. Most Crohn’s sufferers do not give up public and promising careers, but they do have periods of depression. Making an effort to really understand how the simple things you take for granted can be big hurdles for your loved one will go a long way.

    4. They may skip meals in order to avoid having to go to the bathroom

    Weight is a rather sensitive topic for people with Chrohn’s. Oftentimes it’s easier for them to say they’ve been sticking to some brand new diet plan for weight loss than admitting they don’t want to have lunch with you because they might afterwards get stuck in the bathroom for hours. Skipping meals is one big concern for medical professionals dealing with Crohn’s patients because the potential for severe weight loss and even anemia are always present. A current study involving 3700 patients from over 40 countries is underway to research the efficacy of some new medications that will reduce the levels of the culprit antibodies and thus onset of acute and severe diarrhea is currently underway and does show some promise.

    5. They can suffer embarrassingly severe diarrhea, especially in public places

    They have to look for the nearest restroom when they are out, and this can be irritating to social acquaintances and partners who just don’t have the empathy they should. Being seated in a restaurant for the Crohn’s sufferer is a “huge” consideration, and others need to be supportive and kind about it, even if it means a bit longer wait for a table.

    Advertising

    6. Being overly tired is a symptom of the disease, not an “avoidance” tactic as some have decided to believe

    Normal daily activities of school and work can be exhausting, and this is a real physical symptom. Friends, family members and partners need to cease complaining or showing irritation when the individual needs a nap or simply does not have the energy to engage in physically-demanding activities after a long day. Plan those activities on weekends when there are no other physical and mental demands on the sufferer.

    7. They may not be able to have the social lives that others do

    1SS73IFWWN

      Teens avoid sleepovers, swim parties, and overnight trips with friends; adults may avoid such things as camping trips or picnics and barbecues, or adventurous trips to far away lands where restrooms might not be immediately available.

      8. They may carry extra toilet paper, wear “Depends,” and always have an extra set of clothing with them (for serious cases)

      Again, that’s something they are really embarrassed to admit. Understanding these behaviors is critical for friends and partners who truly want to make life as comfortable as possible for a Crohn’s sufferer. Instead of showing irritation because a road trip may involve more than the average number of restroom stops along the way, the empathetic fellow traveler will take it all in stride, be cheerful and accommodating. Should an accident occur, it is important to know whether the “victim” wants help or wants to deal with the problem on his/her own.

      Advertising

      9. They are self-conscious about the clothing they wear so that bags don’t show

      If you love this person, make extra efforts to compliment their dress and appearance.

      10. They can’t always sleep well

      There is discomfort a lot of the time, and this is not an exaggeration. Think of times when you have a bad bout of stomach gas with cramps and diarrhea. People with Crohn’s have to deal with this most of the time, even in the middle of the night. Stop complaining about being awakened, and give them a reassuring hug instead. Here are more tips about getting a better sleep if you have Crohn’s.

      11. They may prefer not to go out to eat

      picjumbo.com_IMG_0895

        This can be a “bummer” when friends who are couples invite you to go out to dinner. If your loved one’s symptoms are acute, this is not going to be an option. If they are not acute, and the outing is planned, be certain that the restaurant chosen has mild foods that your loved can tolerate more easily. Several studies currently being conducted by the Crohn’s and Colitis Foundation are attempting to develop means by which normal microbe activity can be stimulated in the gastrointestinal tract that may ultimately allow those with the disease eat more normally. This would be a huge breakthrough!

        Advertising

        12. They plan when they will eat certain foods, because they know how they will be affected and will need to be physically in a “safe” place

        Don’t try to “force” your loved one to eat anything or anywhere if they are not truly comfortable with the food and/or the environment. You certainly don’t have to change your eating habits because of their disease, but neither should they ever have to change theirs to please yours. Certainly there a lot of great foods both for you and your loved one to digest normally.

        13. Airline bookings may seem like a minor deal to you, but to the Crohn’s sufferer, maybe not

        Be mindful that seating has to be close to the bathroom, and, if there is an accident because the bathroom is occupied at a moment of crisis, be reassuring and comforting. They are embarrassed enough without your expression of embarrassment too.

        14. They understand that there is no cure and that researchers are looking at multiple causes

        Those include but not limited to genetics, previous infections, immune system failures, and environmental factors such as junk food and too many antibiotics earlier in life. Understand that they are keeping apprised of any research that is ongoing and any new promising treatments, and that they will certainly take it up with their doctor. Instead of resenting, the time spent on reading up on these potential treatments and the conversation that they may want to have about them, be a good listener, be encouraging and be positive.

        15. They have fears that they may seem abnormal to you

        Just walking the dog can cause anxiety, if the walk will be pretty long; they fear that they may embarrass themselves or you. Imagine the anxiety of going to your boss’s home for dinner or a barbecue; imagine the anxiety of going to a child’s soccer or basketball game, sitting up in the stands and not being able to get down through the crowd to reach a restroom in time. You have to validate these fears and be willing to compromise. You can’t truly understand the fears because you don’t have the disease, but you must be willing to validate them with both words and behaviors.

        Featured photo credit: Single woman alone swinging on the beach and looking the other seat missing a boyfriend via shutterstock.com

        More by this author

        Elena Prokopets

        Freelance Writer

        22 Amazing Pineapple Health Benefits (With Simple Pineapple Recipes) 15 Cool And Practical Apps For Couples 14 Things No One Tells You About Being in a Long-Distance Relationship 9 Tips to Prepare For Your First Multi Day Hike 10 Tips For Traveling in Europe With Class on a Budget

        Trending in Health

        1Science Says Screaming Is Good For You 2What Really Works: How to Relieve Lower Back Pain Effectively 310 Benefits of Sleeping Naked You Probably Didn’t Know 47 Super Fast Remedies for a Pulled Muscle in Neck 5Signs Your Lack of Sleep Is Slowly Killing You (And How to Turn Around)

        Read Next

        Advertising
        Advertising

        Science Says Screaming Is Good For You

        Science Says Screaming Is Good For You

        There are many reasons why people might scream – they’re angry, scared, or in pain (or maybe they’re in a metal band!). Some might say that screaming is bad, but here’s why science says it’s good for you.

        “For the first time in the history of psychology there is a way to access feelings, hidden away, in a safe way and thus to reduce human suffering. It is, in essence, the first science of psychotherapy.” — Dr. Arthur Janov

        Primal Therapy

        Dr. Arthur Janov invented Primal Therapy in the late 1960’s. It is a practice that allows the patient to face their repressed emotions from past trauma head on and let those emotions go. This treatment is intended to cure any mental illness the patient may have that surfaced from this past trauma. In most cases, Primal Therapy has lead Dr. Janov’s patients to scream towards the end of their session, though it was not part of the original procedure. During a group therapy session that was at a standstill, Dr. Janov says that one of his patients, a student he called Danny, told a story that inspired him to implement a technique that he never would have thought of on his own.

        Advertising

        How it Started

        “During a lull in our group therapy session, he told us a story about a man named Ortiz who was currently doing an act on the London stage in which he paraded around in diapers drinking bottles of milk. Throughout his number, Ortiz is shouting, ‘Mommy! Daddy! Mommy! Daddy!’ at the top of his lungs. At the end of his act he vomits. Plastic bags are passed out, and the audience is requested to follow suit.”

        It doesn’t end there, though. Dr. Janov said that his patient was quite fascinated with that story, and that alone moved him to suggest something even he believed to be a little elementary.

        “I asked him to call out, ‘Mommy! Daddy!’ Danny refused, saying that he couldn’t see the sense in such a childish act, and frankly, neither could I. But I persisted, and finally, he gave in. As he began, he became noticeably upset. Suddenly he was writhing on the floor in agony. His breathing was rapid, spasmodic. ‘Mommy! Daddy!’ came out of his mouth almost involuntarily in loud screeches. He appeared to be in a coma or hypnotic state. The writhing gave way to small convulsions, and finally, he released a piercing, deathlike scream that rattled the walls of my office. The entire episode lasted only a few minutes, and neither Danny nor I had any idea what had happened. All he could say afterward was: ‘I made it! I don’t know what, but I can feel.’”

        Delving deeper

        Dr. Janov says he was baffled for months, but then he decided to experiment with another patient with the same method, which lead to a similar result as before. The patient started out calling “Mommy! Daddy!” then experienced convulsions, heavy breathing, and then eventually screamed. After the session, Dr. Janov says his patient was transformed and became “virtually another human being. He became alert… he seemed to understand himself.”

        Although the initial intention of this particular practice wasn’t to get the patient to scream, more than once did his Primal Therapy sessions end with the patient screaming and feeling lighter, revived, and relieved of stresses that were holding them down in life.

        Some Methods To Practice Screaming

        If you want to try it out for yourself, keep reading!

        Advertising

        • Step 1: Be Alone — Be alone. If you live in a place that you can’t be alone, it might be a good idea to talk to your family or roommates and explain to them what you’re about to do and make sure they’re okay with it. If you’re good to go, move on to step 2.
        • Step 2: Lie Down — Lie down on a yoga mat on your back and place a pillow underneath your head. If you don’t own a yoga mat, you can use a rug or even a soft blanket.
        • Step 3: Think — Think of things that have hurt you or made you angry. It can be anything from your childhood or even something that happened recently to make yourself cry, if you’re not already crying or upset. You could even scream “Mommy! Daddy!” just like Dr. Janov’s patients did to get yourself started.
        • Step 4: Scream — Don’t hold anything back; cry and scream as loud as you can. You can also pound your fists on the ground, or just lie there and scream at the top of your lungs.

        After this, you should return your breathing to a normal and steady pace. You should feel lighter, like a weight has been lifted off of you. If not, you can also try these other methods.

        Scream Sing

        Scream singing” is referring to what a lot of lead singers in metal or screamo bands will do. I’ve tried it and although I wasn’t very good at it, it was fun and definitely relieved me of any stress I was feeling from before. It usually ends up sounding like a really loud grunt, but nonetheless, it’s considered screaming.

        Advertising

        • Step 1 — Bear down and make a grunting sound.
        • Step 2 — Hiss like a snake and make sure to do this from your diaphragm (your stomach) for as long as you can.
        • Step 3 — Breathe and push your stomach out for more air when you are belting notes, kind of like you would if you were singing.
        • Step 4 — Try different ways to let out air to control how long the note will last, just make sure not to let out too much air.
        • Step 5 — Distort your voice by pushing air out from your throat, just be careful not to strain yourself.
        • Step 6 — Play around with the pitch of your screams and how wide your mouth is open – the wider your mouth is open, the higher the screams will sound. The narrower or rounder your mouth is (and most likely shaped like an “o”), the lower the screams will sound.
        • Step 7 — Start screaming to metal music. If you’re not a huge metal fan, it’s okay. You don’t have to use this method if you don’t want to.

        If you want a more thorough walkthrough of how to scream sing, here’s a good video tutorial. If this method is too strenuous on your vocal chords, stop. Also, make sure to stay hydrated when scream singing and drink lots of water.

        Scream into a pillow

        Grab a pillow and scream into it. This method is probably the fastest and easiest way to practice screaming. Just make sure to come up for air.

        Advertising

        Always remember to make sure that you’re not going to disturb anyone while practicing any of these methods of screaming. And with that, happy screaming!

        Featured photo credit: Sharon Mollerus via flickr.com

        Read Next