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15 Things to Remember if You Love a Person with Crohn’s Disease

15 Things to Remember if You Love a Person with Crohn’s Disease

Many otherwise intelligent individuals have the rather insensitive view that Crohn’s Disease is simply a nice medical term for an illness that people have because they lack self-control. To them, everyone has bowel troubles, some more than others, and that all it takes is watching what one eats and drinks in order to have normal intestinal operation. They also become frustrated with Crohn’s sufferers, thinking that they exaggerate their symptoms and just need to take a few antacids or anti-diarrhoea pills.

Crohn’s is classified as an autoimmune disease, in which the body is actually producing antibodies that act against itself, much like the more commonly known Lupus. Just getting the fact out that it really is a serious disease and not just a “condition” is truly important, because misinformation makes it hard to develop empathy for a friend or partner with this disease. That said, here are 15 things that Crohn’s sufferers will endure that require understanding, patience, and support.

1. They can’t participate in a lot of sports and other social activities as young people

Imagine you are a 16-year old girl who would love to go out with her friends for the evening. Maybe they want to drive around, stop at a few other friends’ homes, and stop at a fast-food place for burgers and fries. For the teen with Crohn’s, this means not eating all day in order to avoid embarrassing diarrhoea accidents, and certainly not participating in the fast-food stop. Suppose you are a teen boy wearing an excretion bag – how do you shower with your classmates after PE class? Parents and other adults need to be happy to make comforting accommodations for these teens, and that includes the PE teacher-jock who may not have a tendency for a lot of empathy. Wise parents have meetings with school personnel and make certain that all reasonable accommodations have been made, including a quick exit from class without permission.

2. They know it’s better not to consume alcohol

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    So, when everyone is having a grand time at happy hour and putting pressure for the Crohn’s sufferer to have a beer, they wonder why they won’t drink. Are they anti-social; are they a recovering alcoholic? A sufferer with a pretty solid self-image may be able to explain the disease a bit. Good friends and partners understand and make an extra effort to make the sufferer feel comfortable, even in an environment of drinking.

    3. They get depressed easily, because the disease seems to control so much of their daily lives

    As Bethany Townsend, famous model and make-up artist claims, she left her career for years because of her “bag” and only recently was able to put on a bikini and post it on Facebook with the support and encouragement of her husband. Because of the overwhelming support she then received from Facebook fans she is back modeling and over her depression. Most Crohn’s sufferers do not give up public and promising careers, but they do have periods of depression. Making an effort to really understand how the simple things you take for granted can be big hurdles for your loved one will go a long way.

    4. They may skip meals in order to avoid having to go to the bathroom

    Weight is a rather sensitive topic for people with Chrohn’s. Oftentimes it’s easier for them to say they’ve been sticking to some brand new diet plan for weight loss than admitting they don’t want to have lunch with you because they might afterwards get stuck in the bathroom for hours. Skipping meals is one big concern for medical professionals dealing with Crohn’s patients because the potential for severe weight loss and even anemia are always present. A current study involving 3700 patients from over 40 countries is underway to research the efficacy of some new medications that will reduce the levels of the culprit antibodies and thus onset of acute and severe diarrhea is currently underway and does show some promise.

    5. They can suffer embarrassingly severe diarrhea, especially in public places

    They have to look for the nearest restroom when they are out, and this can be irritating to social acquaintances and partners who just don’t have the empathy they should. Being seated in a restaurant for the Crohn’s sufferer is a “huge” consideration, and others need to be supportive and kind about it, even if it means a bit longer wait for a table.

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    6. Being overly tired is a symptom of the disease, not an “avoidance” tactic as some have decided to believe

    Normal daily activities of school and work can be exhausting, and this is a real physical symptom. Friends, family members and partners need to cease complaining or showing irritation when the individual needs a nap or simply does not have the energy to engage in physically-demanding activities after a long day. Plan those activities on weekends when there are no other physical and mental demands on the sufferer.

    7. They may not be able to have the social lives that others do

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      Teens avoid sleepovers, swim parties, and overnight trips with friends; adults may avoid such things as camping trips or picnics and barbecues, or adventurous trips to far away lands where restrooms might not be immediately available.

      8. They may carry extra toilet paper, wear “Depends,” and always have an extra set of clothing with them (for serious cases)

      Again, that’s something they are really embarrassed to admit. Understanding these behaviors is critical for friends and partners who truly want to make life as comfortable as possible for a Crohn’s sufferer. Instead of showing irritation because a road trip may involve more than the average number of restroom stops along the way, the empathetic fellow traveler will take it all in stride, be cheerful and accommodating. Should an accident occur, it is important to know whether the “victim” wants help or wants to deal with the problem on his/her own.

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      9. They are self-conscious about the clothing they wear so that bags don’t show

      If you love this person, make extra efforts to compliment their dress and appearance.

      10. They can’t always sleep well

      There is discomfort a lot of the time, and this is not an exaggeration. Think of times when you have a bad bout of stomach gas with cramps and diarrhea. People with Crohn’s have to deal with this most of the time, even in the middle of the night. Stop complaining about being awakened, and give them a reassuring hug instead. Here are more tips about getting a better sleep if you have Crohn’s.

      11. They may prefer not to go out to eat

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        This can be a “bummer” when friends who are couples invite you to go out to dinner. If your loved one’s symptoms are acute, this is not going to be an option. If they are not acute, and the outing is planned, be certain that the restaurant chosen has mild foods that your loved can tolerate more easily. Several studies currently being conducted by the Crohn’s and Colitis Foundation are attempting to develop means by which normal microbe activity can be stimulated in the gastrointestinal tract that may ultimately allow those with the disease eat more normally. This would be a huge breakthrough!

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        12. They plan when they will eat certain foods, because they know how they will be affected and will need to be physically in a “safe” place

        Don’t try to “force” your loved one to eat anything or anywhere if they are not truly comfortable with the food and/or the environment. You certainly don’t have to change your eating habits because of their disease, but neither should they ever have to change theirs to please yours. Certainly there a lot of great foods both for you and your loved one to digest normally.

        13. Airline bookings may seem like a minor deal to you, but to the Crohn’s sufferer, maybe not

        Be mindful that seating has to be close to the bathroom, and, if there is an accident because the bathroom is occupied at a moment of crisis, be reassuring and comforting. They are embarrassed enough without your expression of embarrassment too.

        14. They understand that there is no cure and that researchers are looking at multiple causes

        Those include but not limited to genetics, previous infections, immune system failures, and environmental factors such as junk food and too many antibiotics earlier in life. Understand that they are keeping apprised of any research that is ongoing and any new promising treatments, and that they will certainly take it up with their doctor. Instead of resenting, the time spent on reading up on these potential treatments and the conversation that they may want to have about them, be a good listener, be encouraging and be positive.

        15. They have fears that they may seem abnormal to you

        Just walking the dog can cause anxiety, if the walk will be pretty long; they fear that they may embarrass themselves or you. Imagine the anxiety of going to your boss’s home for dinner or a barbecue; imagine the anxiety of going to a child’s soccer or basketball game, sitting up in the stands and not being able to get down through the crowd to reach a restroom in time. You have to validate these fears and be willing to compromise. You can’t truly understand the fears because you don’t have the disease, but you must be willing to validate them with both words and behaviors.

        Featured photo credit: Single woman alone swinging on the beach and looking the other seat missing a boyfriend via shutterstock.com

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        Elena Prokopets

        Elena is a passionate blogger who shares about lifestyle tips on Lifehack.

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        Published on June 29, 2020

        8 Best Air Purifiers for a Healthy Home

        8 Best Air Purifiers for a Healthy Home

        Whether you suffer from allergies, have pet friends, or live in a climate where bacteria thrive, the best air purifier will make sure that your home’s air is clean and fresh at all times. We all clean our houses regularly, but it is easy to look over the most important element in our homes, apart from the surfaces, and that’s air. Thanks to the best air purifier, the air in your home will be more breathable and cleaner.

        Why You Should Trust Us

        If you are looking for which best air purifier is for you, we here at Lifehack have put in the time and effort to find it. There are so many to pick and choose from, so we sifted through dozens to find purifiers suitable for many people.

        For these air purifier reviews, we will be suggesting home filters based on three criteria:

        • CADR: The rating that’s used to determine an air purifier’s effectiveness.
        • Room Size: The area that an air purifier takes up in a room.
        • Noise: How loud and distracting it can get.

        With these in mind, here are the suggestions for the best air purifiers you can get.

        1. Winix 5500-2 Air Purifier

          If you’re looking for an ozone air purifier, this is a solid option. The HEPA filter is capable of capturing up to 99.97% of airborne pollutants, dust mites, and more. The filters provided are able to be washed, and the air purifier has a CADR of 360 square feet. It’s suitable for kitchens and medium to large bedrooms or living spaces.

          That said, the air purifier does have some issues with the sensor, particularly in the auto mode. You’re also stuck with the color of this air purifier as is: black.

          Buy this Air Purifier!

          2. Blueair Blue Pure 211+ Air Purifier

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            When considering an alternative, we suggest Blueair’s air purifier. It’s an air purifier that addresses allergies and is safe for pets. It’s able to capture 99% of airborne pollutants and is capable of filtering odors from smoking, pets, cooking, and wildfires. Even the sound it makes isn’t loud. The lowest setting is a sound equivalent to a whisper, and the highest is a sound equivalent to rainfall.

            One downside is the fact this filter is relatively small and is meant to be stationed on the floor. It’s about as tall as a small child, so it’s easy for children to stick their fingers or other objects into the air cleaner. Also, considering the size, it’s not built to handle larger rooms unless you get multiple. Even then, customers noted that the sound could be irritating when using multiple filters in a room.

            Buy this Air Purifier!

            3. Hathaspace Smart True HEPA Air Purifier

              For the best air purifier for your money, the Hathaspace air purifier is a good option. It allows you to adjust settings manually and works well as an air purification system capable of capturing 99.97% of air pollutants, gas, and more. It also comes with a 2-year warranty, so it’s not as risky as other brands that may only have a month or three-month warranty.

              That said, many customers noted that it’s not good at keeping back odors as much. The air purifier has a tendency to shut off when the air quality is good, regardless of if the room smells bad.

              Buy this Air Purifier!

              4. GENIANI Home Air Purifier

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                The air purifier from Geniani is another solid option for those looking to fight off allergies and want efficiency in their air purifier. The air cleanser comes with a 2-year warranty and is known for its power while still remaining quiet. You can choose between three speeds, and it even has a nightlight option, too.

                All in all, it’s a great product, though people struggled a little bit with the nightlight option. The light is a little too bright when it’s in the dark, making it disruptive if you’re the type of person who prefers completely dark rooms when sleeping.

                Buy this Air Purifier!

                5. Honeywell HFD-120-Q QuietClean Oscillating Air Purifier

                  Another consideration for air purifier home use is Honeywell’s air purifier. One of the big perks from this air cleanser is that the three filters are able to be washed and used permanently, saving you the struggle of buying additional filters. The company also provides replacement filters should the filters perform poorly or get worn down. Beyond that, it’s capable of capturing 99% of air pollutants and is energy efficient, too.

                  The air purifier itself is quiet, however, and if you allow it to swivel, the parts themselves could make a loud squeaking sound after a while. It’s also not as strong as other air purifiers around, with customers noting that a ceiling fan may be better.

                  Buy this Air Purifier!

                  6. PARTU Air Purifier

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                    Another cheap option is the PARTU air purifier. Some of the main selling points is that it has an ultra-silent sleep mode, a 4-step filtration process, and serves as a night light thanks to the color ring on it.

                    Similar to other small filters, this filter isn’t going to be very strong. Furthermore, many customers noted that the filter emitted a sweet scent from it after a while.

                    Buy this Air Purifier!

                    7. LEVOIT Air Purifier

                      The LEVOIT air purifier is a compact air cleaner that actually is actually quite strong for its size. Its CADR is high enough it can cover a 219 square foot space. And although it’s strong, it’s designed to make minimal noise. Pair that up with it being ozone-free and energy-efficient, and you have a solid air cleaner.

                      However, like most other air filters you’ll find, it is good at cleaning the air but isn’t as strong when dealing with odors in particular. Furthermore, despite its strength, it struggles to handle larger rooms, making it more suitable for small rooms.

                      Buy this Air Purifier!

                      8. Coway White HEPA Air Purifier

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                        The final filter that we have found is this one from Coway. It’s designed to handle room sizes of up to 361 square feet, offers a 4-stage filtration system, and also has an eco-mode to conserve energy when it’s done filtering.

                        One of the largest criticisms for this air purifier is that the fan settings range widely from the noise pollution. Some customers compared the settings between 2 and 3 to a weaker version of the 1st setting (barely making a sound) to a jet engine starting up. Some people also noted that the air purifier tends to wobble and shake, too.

                        Buy this Air Purifier!

                        FAQ

                        Q: Do air purifiers really work?
                        A: In short, yes. An air purifier consists of one filter (or more) and a fan that pulls in and circulates the air. Exactly like water filters, the idea is that the home air purifiers will capture all of the pollutants and particles before pushing out the rest of the air.

                        As for the filters, depending on the brand, you’ll have different kinds of filters. Filters can be made of paper, fiberglass, or mesh.

                        So long as you are taking care of the air purifier by replacing the filters on occasion, an air purifier should work smoothly and without any major issues.

                        Q: Can HEPA Air Purifiers prevent Covid-19?
                        A: Unfortunately, there is no air purifier that can do anything to prevent or kill the coronavirus. As mentioned above, air purifiers focus on collecting particles and pollutants. 

                        As such, an air purifier, HEPA or any air cleaner, can capture the virus, but the virus will be able to live within the filter for a period of time.

                        Final Thoughts

                        The market is filled with all kinds of air purifiers, and overall, many of them are capable of handling air quality. That said, there may be slight issues depending on what you’re looking for. No matter the case, you are taking the risk of potentially getting a purifier that may run into issues with smells or making too much noise. It’s part of the territory it seems. However, any one of the above air purifiers will help clean up the air and leave your house at least a little fresher. 

                        More Tips on Improving Air Quality

                        Featured photo credit: Progressive Insurance via unsplash.com

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