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20 Things Children with Autism Want to Tell You

20 Things Children with Autism Want to Tell You

Autistic Spectrum Disorder (ASD) is a pervasive developmental disorder (ICD 10, DSM-IV) that occurs on a spectrum and thankfully is no longer considered a psychosis. Persons diagnosed with ASD are commonly accepted as presenting with a triad of impairment. These impairments usually include; 1) social skills deficits which mean that forming friendships is a frequent difficulty, 2) language and communication difficulties which often mean that the person will have trouble understanding and retaining information provided in the verbal format and will struggle with subtleties of language such as sarcasm or inuendo, and 3) difficulties with flexible thinking which often means that a person with ASD has difficulty taking different perspectives, empathy, and any sudden changes to routines. Persons with ASD will often find comfort in repetitive routines which others cannot understand or may find unusual. Persons with ASD also regularly have difficulties with motor coordination and may have difficulties processing incoming sensory information. This list of difficulties is by no means exhaustive. There are many other daily struggles for a person presenting anywhere on the Autistic spectrum. But whether you are into brain training for children, are a parent or a teacher of a child with ASD, or are a certified Applied Behavior Analyst, here is a list of things that I think a child with Autism wants you to know.

1. We struggle to make friends

This doesn’t mean that we don’t want to have friends, but we have varying degrees of success depending on how we seek people out. In Lorna Wing’s classic book, The Autistic Spectrum, she identifies four types of social interaction impairments faced by persons with the condition. These included the aloof type (who often behave as though other people simply don’t exist), the passive type (who accept social approaches but do not initiate them), the active-but-odd type (this group will often actively seek out social contact but often will do so in a peculiar, one-sided fashion, or can go on about their own interests only without realizing that others may not share those interests), and, finally, the overly formal or stilted type (who try very hard to behave well and rigidly adhere to all rules and conventions). So, whichever category your autistic person falls into, struggling socially tends to be part of their condition.

2. We struggle to communicate, but this does not mean we are not trying to be heard

In 1943, when Leo Kanner first started talking about ‘early infantile autism’, this was one of the things that he reported. A person with autism may or may not have difficulty with their grammar or vocabulary, but most of them will struggle in the manner in which they use language. Many children with autism never learn to speak. However, many others do learn to speak and can speak quite well, but may learn much later than their same-age peers. Please do not confuse a difficulty communicating with not wanting to be heard. A person with Autism may try very hard to have their needs met or their feelings understood, but it can be very difficult to effectively get your point across when your expressive language skills are limited or your manner of communicating is not the same as those around you.

3. We have difficulties understanding the spoken words of other people

People with autism have extremely varied abilities to understand language. Lorna Wing reports that most do have some understanding, but this often does not include things like jokes or the finer nuances of language. Many take a literal interpretation of language that can make things like sarcasm and analogy quite confusing. However, many persons with autism, with practice, can make great gains in these areas, even though it may not ever come as naturally to them as it does their to their peers. We also have trouble understanding and using non-verbal communication. Sign language may not be enough if our spoken language is not well developed, because we often have equal difficulties understanding facial expressions, body language, and any range of gestures that usually coincide with the spoken word.

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4. We sometimes use a different intonation than other people

In fact, sometimes we use a different accent from our families and communities completely. Sometimes our voices sound robotic or mechanical. This is not atypical for someone with autism, even though it might sound unusual to other people.

5. Imagination and pretend games are not fun for us

We like repetition and routine, not spontaneity and surprises. So, what seems like great fun for a person without Autism may actually be very upsetting for someone on the Autistic spectrum.

6. We love simple, repetitive activities, but we may graduate to more elaborate, repetitive routines as we get older

In 1973, Kanner described how some autistic children would invent routines for themselves such as tapping on a chair before sitting down or standing up and sitting down three times before eating a meal. He went on to describe how other children might require each member of the family to always sit in the exact same place at the dinner table or insist that a morning walk should always take exactly the same route. This is all part-and-parcel of how persons with ASD find comfort in sameness and are fearful of changes, but it can seem quite unusual to an outsider looking in. In fact, sometimes in our need for sameness, we might cling to an object that others simply cannot see the value of. Indeed, some of these objects may become our most preferred items.

7. Many of us like Thomas the Tank Engine

Some experts have speculated that this is because of the mechanical and repetitive characteristics of the characters in the show, but nobody really knows exactly why there is such a draw to Thomas the Tank Engine. Of course, there are many other shows and television characters that people with autism enjoy, but they often tend to be programs where there is a significant amount of repetition by the actors in a certain sequence.

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8. We often engage in stereotyped movements

In plain English, this means that we might do things like repetitively flick our fingers, flap our arms and hands, jump up and down, roll our heads around, or rock while standing up. It is not known why autistic people perform stereotyped movements, but there seems to be an escalation of these movements when the person is excited or when they are trying to seek sensory input. Typically-developing babies and toddlers will engage in a lot of these movements too, but with increasing age and self control, many of these physical behaviors cease or greatly decrease. However, they may not cease in people with ASD. In fact, a person with ASD can become very distressed if forced to suppress these movements. If you want to help a person with ASD when they are in distress, please be aware that they may need this type of sensory stimulation, and indeed it might be very calming for them to engage in it.

9. Some of us can be very clumsy, and we might have unusual gaits and posture

When Dr. Hans Asperger originally described the syndrome as he saw it in 1944, he noted that many of these children had underdeveloped motor coordination skills, handwriting, and time management. This is still true today, but not every person with ASD has awkward or underdeveloped fine or gross motor skills. Indeed, there are many persons, particularly those that are on the higher-functioning end of the Autistic spectrum, that can be very skilled athletes.

10. We have great difficulty imitating other people’s facial expressions, and yet we often imitate other people’s actions or echo their words

The technical terms for these behaviors are echopraxia and echolalia (Wing, 1996). It is often seen as paradoxical that it is so common for an autistic person to echo another person’s words and actions in what seems to be a meaningless fashion, when it is so essential to social development to meaningfully imitate things like two-way conversations, facial expressions, and eye contact.

11. We may ignore or seem not to hear loud noises, yet we might be extremely sensitive to sounds that other people barely notice

This is another paradox of the autistic spectrum. It was first noted by Itard in 1801 in Victor, The Wild Boy of Aveyron. Itard noted that Victor never responded at all to the loudest of noises like the explosion of firearms, yet never failed to respond to the sound of a walnut being cracked open or any other “eatable” which he enjoyed. Other children with autism can become extremely distressed by certain sounds and noises, but this will often fade with increased age.

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12. We can have seemingly contradictory responses to visual stimuli

For example, we may be fascinated by bright lights, but very distressed by flash photography. We also may not always look at a whole item or person, preferring instead to focus on an outline of a person or what others might consider some arbitrary physical features of an object (e.g., the leg of a chair rather than the whole chair). It has been suggested that the autistic child may make more use of the peripheral part of the retina which focuses on outline and movement, rather than central vision, for details. This part of the retina is mainly used by others in near-dark conditions. It is interesting to note that many autistic children can find their way perfectly well in the dark and may not always turn a light on. This, too, tends to fade with age.

13. Certain textures, tastes, and smells that are barely noticeable to others can be very offensive and distressing to us

While we might not be able to handle certain fabrics of clothing, we might not notice when something is too hot or too cold. We may not even notice if we have been badly hurt or injured. This seems unusual to non-ASD people, but it is seen regularly in someone with ASD. It seems that, like with all of our other senses, we just don’t seem to interpret incoming stimuli the same way that other people do.

14. Many of us prefer the same narrow range of foods again and again

This may be related to our need for uniformity, but some have speculated that we don’t always recognize the sensation of hunger. However, many of us drink liquids excessively and our thirst cannot seem to be quenched. One piece of good news here is that when we are engaged in other activities, we can forget about this sometimes constant thirst.

15. Many of us have high levels of anxiety and fear, but this is not necessarily because we are autistic

Much of this anxiety and fear comes simply from the fact that a situation has arisen that we do not understand or did not expect. If you were in our shoes, you might be scared too.

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16. Learning difficulties are common for those presenting with ASD

That being said, about 10% of autistic children have very strong skill sets, even compared with typically-developing, same-age peers. This can sometimes come about because we practice a task in such a repetitive manner that we can become much more skilled than others. We also tend to obsess about small details in our special area that other people may not take the time to notice. This can really be to our advantage in developing a specialized skill set and can set us apart in a very positive way.

17. We don’t always act the way you think we should

In fact, very often, because we struggle with language and communication, we might do things that other people think are downright strange. We might think nothing of stroking the hair of a stranger on the bus or taking off our clothes for a dip in a neighbor’s swimming pool. We might also say things that will make others very uncomfortable, like commenting on your friend’s weight gain or the bus driver’s bald patch. Furthermore, it is difficult for an autistic person to tell a lie. We describe the world as we see it, without sugar-coating or rose-colored glasses.

18. The most capable of us may go on to lead completely normal lives, and many of us might marry and even have children of our own

However, for those with more significant impairments in intellectual functioning and social skills, we may need lifelong care.

19. Whatever our age and intellectual ability, we can improve our skills

We can make progress beyond what anyone has ever thought possible through the understanding and application of the science of human behavior. Behavior analysts have published hundreds of research papers in the area of autism. For this reason, Applied Behavior Analysis is regarded as the only scientifically validated treatment for autism. Click here to see more on how ABA can be used in the treatment of autism. Click here for conferences and training for educators, parents and clinicians interested in using behavioral technologies for effective change.

20. Finally, and for the last time, the MMR vaccine does not cause autism!

There is no debate in the scientific community about this. Read Chapter 16 in Bad Science by Dr. Ben Goldacre if you don’t believe me. Check out the Centers for Disease Control and Prevention’s 2014 report if you don’t believe Dr. Goldacre. If you still remain unconvinced, you should note that the only scientist who ever published a paper suggesting that the MMR vaccine caused Autism was stripped of the right to practice medicine in the UK as a result of the paper he published being deemed fraudulent. The journal that published that paper, The Lancet, retracted the paper in part in 2004 and in full in 2010.

Featured photo credit: Shannon O’Brien via shannonrosephotography.weebly.com

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Last Updated on October 14, 2019

12 Inspirational Speeches That Teach You the Most Valuable Life Lessons

12 Inspirational Speeches That Teach You the Most Valuable Life Lessons

The most valuable thing an experienced person has is their experience. People make mistakes, learn from them, and adapt their life around them to become better people. Those people would then tell tales to others to help teach those lessons so that others would not have to make the same mistakes.

People still tell these stories today but in a slightly different format — they use speeches to express their experiences. Here are some valuable life lessons you can learn from some of the greatest inspirational speeches:

1. JK Rowling teaches us to not fear failure no matter how bad things become

It is a well-known fact that JK Rowling’s now-famous Harry Potter series was turned down by several publishers before it was finally picked up. Those publishers are likely kicking themselves in the pants right now. However, before that, JK Rowling was in a fairly dire situation and was on the brink of failure. Despite being turned down time and time again, she kept trying. Her efforts paid off. Harry Potter is now a ubiquitous character in today’s world culture. Despite failing over and over again, Rowling kept trying and fulfilled her dreams. You can watch her deliver some valuable life lessons in her Harvard commencement speech video above.

2. Steve Jobs teaches us to never settle

Steve Jobs had a fairly tumultuous life. He co-founded Apple, was kicked out of the company, came back, and then re-defined the mobile phone space with the iPhone. Even if iPhones aren’t the rage they once were, its iconic value is forever written in stone. One thing Jobs never did was settle. He lived life on his own terms and was rewarded for it by being dubbed one of the most revolutionary voices in technology of our time. In the Stanford commencement speech above, Jobs explains how you should never settle for what someone else wants out of your life. It’s your life and you should do what you want with it.

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3. Admiral William H McRaven teaches us to make our beds every day

Anyone who has gone through the basic training of a military service will tell you it’s pretty difficult. However, every seemingly obnoxious step is actually a life lesson in disguise. This even applies to flawlessly making one’s bed every single morning. As Admiral William H McRaven teaches us, recruits are taught to make their beds every morning to remind them that even the little things in life matter. After all, how can you be expected to handle the biggest obstacles in your life if you can’t even handle the small and the mundane like making your bed every day? You can watch the entire speech in the video above.

4. Author David Foster Wallace teaches us that we’re a part of a greater existence

David Foster Wallace found fame in 1987 with his book The Broom of the System. Nearly 20 years later in 2005 he game a commencement speech at Kenyon College that is worth listening to at least once. In his speech, he reminds us that was are but a part of a huge, dynamic, ever changing interaction of life forms. In order to truly experience life, we need to leave our personal bubbles and interact with others even if it’s in an unpleasant way. Wallace states, “It will actually be within your power to experience a crowded, hot, slow, consumer-hell type situation as not only meaningful, but sacred, on fire with the same force that made the stars: love, fellowship, the mystical oneness of all things deep down.” You can watch the whole speech above.

5. Stephen Colbert teaches us that life isn’t something you can plan

If there is anyone who knows about improvisation, it’s comedian Stephen Colbert. In his commencement speech at Northwestern University in 2011, Colbert reminded students that you cannot plan life. Life throws too many curve balls. There are too many unpredictable things that can happen. The most successful and happy people are not those who have a plan, but those who can roll with the punches and overcome the obstacles. He goes on to site his time as an improv comic and how all of the actors working together to create a scene out of literally nothing are all working for one another. He states that like improv comedy, you don’t know what happens next in life. You just make it up as you go along. You can watch the whole speech above.

6. Kurt Vonnegut teaches us to not sweat the small stuff

Some of our younger readers may not know Kurt Vonnegut. He is a famous author that found of of his success during the middle of last century. In 1999, Kurt Vonnegut was at Agnes Scott College giving a commencement speech. During the speech, he mentioned that in order to live a more complete life, people needed to let stuff go. He argued that you cannot reasonably expect others to forgive you for your mistakes if you cannot forgive others and that you cannot live life fostering a personal vendetta against others.

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7. Neil Gaiman teaches us that success can be distracting.

Neil Gaiman is most known for his work in a number of literary mediums including journalism, comic books, and novels. In 2012, Gaiman gave a speech at the University of the Arts where he talked about success. He stated that when you become successful, you may be unintentionally swayed from performing the actions that made you successful. Gaiman recalled his early success and how he felt pressured to answer emails all day long and it actually prevented him from writing as much as he wanted. So he reminds us to keep doing what makes us successful and to not let others get in the way.

8. Barack Obama’s life lessons teaches us that you really can beat the odds

We know that not everyone likes Barack Obama but that doesn’t mean the man can’t deliver an amazing speech. In this 2004 keynote speech at the Democratic National Convenction, Obama reminds that it is possible to beat the odds and become something great. He cites his own upbringing as an example and how he was never expected to make it as far as he did. It shows that when you’re passionate about something and when you try hard enough, you can accomplish almost anything. It’s important to note that Obama talks about this in 2004 and would become the President of the United States just four years later.

9. Robin Roberts reminds us that we each have the courage to overcome challenges

Robin Roberts knows a thing or two about courage. She is a breast cancer survivor and has done battle with a rare blood disease called myelodysplastic syndrome. Her sister once had to donate bone marrow just so Robin could remain alive. She was also ESPN’s first African American broadcaster in the early 1990’s. She’s a woman who works in an industry predominately populated by men. So when Robin Roberts takes the stage at the ESPYs and delivers a short lecture on having courage, we would do well to listen!

10. Martin Luther King Jr. reminds us that some things are more important than success

We all know the story of Martin Luther King Jr. So much so that we have a day of the year to celebrate him as a national holiday here in the United States. Most of us have listening to segments of his famous speech where he told the world about a dream he had. The main message of his famous speech is that racial inequalities needed to end and he was absolutely right. However, he also reminds us that there are things that are more important than success such as equal rights and treating each other with respect and kindness. If you somehow made it through school without watching the famous speech, we’ve got it linked above.

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11. Jim Carrey reminds us that even if you keep it safe, you can still fail so you might as well go big

Jim Carrey delivered a commencement speech at Maharishi University recently that went absolutely viral. You may know it as the one minute video that will change your life. They weren’t lying but they weren’t telling the whole truth because the speech was actually 28 minutes long. During the speech, Carrey talks about his father who wanted to be a comedian but decided to take the safe route and become an accountant. As it turns out, his father was laid off and his family ended up poor anyway. With that, Carrey tells us that you can still end up failing even if you play it safe so you might as well swing for the fences and do what you want to do.

12. Bill Murray teaches us that it’s the hard times that determine if someone really loves you

You may have heard the story about Bill Murray crashing someone’s bachelor party and delivering a speech. It turns out the speech was both short and fairly epic. During the speech, Bill Murray challenged the bachelors to travel around the world with the women they love and go to places that are difficult to go to and deal with. He says if you can get back to the United States and you still love each other, then you should get married right then and there. It’s a great message. It’s easy to love one another when times are good but do you still love each other when the times are bad? If so, that’s true love according to Bill Murray.

Final thoughts

Inspiration comes from everywhere and from anyone. There are a countless number of speeches and stories that can teach us an incalculable number of life lessons.

All these speeches almost share the same message: Don’t be afraid to fail and keep trying.

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If you also want to live your best life like the above successful people, this is what you should start doing:

You’ll Only Live Your Best Life Once You Step Out

At the end of the day, everything is inspirational. It’s just a matter of finding the message that we need to hear to change our lives.

Featured photo credit: Miguel Henriques via unsplash.com

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