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20 Things Children with Autism Want to Tell You

20 Things Children with Autism Want to Tell You

Autistic Spectrum Disorder (ASD) is a pervasive developmental disorder (ICD 10, DSM-IV) that occurs on a spectrum and thankfully is no longer considered a psychosis. Persons diagnosed with ASD are commonly accepted as presenting with a triad of impairment. These impairments usually include; 1) social skills deficits which mean that forming friendships is a frequent difficulty, 2) language and communication difficulties which often mean that the person will have trouble understanding and retaining information provided in the verbal format and will struggle with subtleties of language such as sarcasm or inuendo, and 3) difficulties with flexible thinking which often means that a person with ASD has difficulty taking different perspectives, empathy, and any sudden changes to routines. Persons with ASD will often find comfort in repetitive routines which others cannot understand or may find unusual. Persons with ASD also regularly have difficulties with motor coordination and may have difficulties processing incoming sensory information. This list of difficulties is by no means exhaustive. There are many other daily struggles for a person presenting anywhere on the Autistic spectrum. But whether you are into brain training for children, are a parent or a teacher of a child with ASD, or are a certified Applied Behavior Analyst, here is a list of things that I think a child with Autism wants you to know.

1. We struggle to make friends

This doesn’t mean that we don’t want to have friends, but we have varying degrees of success depending on how we seek people out. In Lorna Wing’s classic book, The Autistic Spectrum, she identifies four types of social interaction impairments faced by persons with the condition. These included the aloof type (who often behave as though other people simply don’t exist), the passive type (who accept social approaches but do not initiate them), the active-but-odd type (this group will often actively seek out social contact but often will do so in a peculiar, one-sided fashion, or can go on about their own interests only without realizing that others may not share those interests), and, finally, the overly formal or stilted type (who try very hard to behave well and rigidly adhere to all rules and conventions). So, whichever category your autistic person falls into, struggling socially tends to be part of their condition.

2. We struggle to communicate, but this does not mean we are not trying to be heard

In 1943, when Leo Kanner first started talking about ‘early infantile autism’, this was one of the things that he reported. A person with autism may or may not have difficulty with their grammar or vocabulary, but most of them will struggle in the manner in which they use language. Many children with autism never learn to speak. However, many others do learn to speak and can speak quite well, but may learn much later than their same-age peers. Please do not confuse a difficulty communicating with not wanting to be heard. A person with Autism may try very hard to have their needs met or their feelings understood, but it can be very difficult to effectively get your point across when your expressive language skills are limited or your manner of communicating is not the same as those around you.

3. We have difficulties understanding the spoken words of other people

People with autism have extremely varied abilities to understand language. Lorna Wing reports that most do have some understanding, but this often does not include things like jokes or the finer nuances of language. Many take a literal interpretation of language that can make things like sarcasm and analogy quite confusing. However, many persons with autism, with practice, can make great gains in these areas, even though it may not ever come as naturally to them as it does their to their peers. We also have trouble understanding and using non-verbal communication. Sign language may not be enough if our spoken language is not well developed, because we often have equal difficulties understanding facial expressions, body language, and any range of gestures that usually coincide with the spoken word.

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4. We sometimes use a different intonation than other people

In fact, sometimes we use a different accent from our families and communities completely. Sometimes our voices sound robotic or mechanical. This is not atypical for someone with autism, even though it might sound unusual to other people.

5. Imagination and pretend games are not fun for us

We like repetition and routine, not spontaneity and surprises. So, what seems like great fun for a person without Autism may actually be very upsetting for someone on the Autistic spectrum.

6. We love simple, repetitive activities, but we may graduate to more elaborate, repetitive routines as we get older

In 1973, Kanner described how some autistic children would invent routines for themselves such as tapping on a chair before sitting down or standing up and sitting down three times before eating a meal. He went on to describe how other children might require each member of the family to always sit in the exact same place at the dinner table or insist that a morning walk should always take exactly the same route. This is all part-and-parcel of how persons with ASD find comfort in sameness and are fearful of changes, but it can seem quite unusual to an outsider looking in. In fact, sometimes in our need for sameness, we might cling to an object that others simply cannot see the value of. Indeed, some of these objects may become our most preferred items.

7. Many of us like Thomas the Tank Engine

Some experts have speculated that this is because of the mechanical and repetitive characteristics of the characters in the show, but nobody really knows exactly why there is such a draw to Thomas the Tank Engine. Of course, there are many other shows and television characters that people with autism enjoy, but they often tend to be programs where there is a significant amount of repetition by the actors in a certain sequence.

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8. We often engage in stereotyped movements

In plain English, this means that we might do things like repetitively flick our fingers, flap our arms and hands, jump up and down, roll our heads around, or rock while standing up. It is not known why autistic people perform stereotyped movements, but there seems to be an escalation of these movements when the person is excited or when they are trying to seek sensory input. Typically-developing babies and toddlers will engage in a lot of these movements too, but with increasing age and self control, many of these physical behaviors cease or greatly decrease. However, they may not cease in people with ASD. In fact, a person with ASD can become very distressed if forced to suppress these movements. If you want to help a person with ASD when they are in distress, please be aware that they may need this type of sensory stimulation, and indeed it might be very calming for them to engage in it.

9. Some of us can be very clumsy, and we might have unusual gaits and posture

When Dr. Hans Asperger originally described the syndrome as he saw it in 1944, he noted that many of these children had underdeveloped motor coordination skills, handwriting, and time management. This is still true today, but not every person with ASD has awkward or underdeveloped fine or gross motor skills. Indeed, there are many persons, particularly those that are on the higher-functioning end of the Autistic spectrum, that can be very skilled athletes.

10. We have great difficulty imitating other people’s facial expressions, and yet we often imitate other people’s actions or echo their words

The technical terms for these behaviors are echopraxia and echolalia (Wing, 1996). It is often seen as paradoxical that it is so common for an autistic person to echo another person’s words and actions in what seems to be a meaningless fashion, when it is so essential to social development to meaningfully imitate things like two-way conversations, facial expressions, and eye contact.

11. We may ignore or seem not to hear loud noises, yet we might be extremely sensitive to sounds that other people barely notice

This is another paradox of the autistic spectrum. It was first noted by Itard in 1801 in Victor, The Wild Boy of Aveyron. Itard noted that Victor never responded at all to the loudest of noises like the explosion of firearms, yet never failed to respond to the sound of a walnut being cracked open or any other “eatable” which he enjoyed. Other children with autism can become extremely distressed by certain sounds and noises, but this will often fade with increased age.

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12. We can have seemingly contradictory responses to visual stimuli

For example, we may be fascinated by bright lights, but very distressed by flash photography. We also may not always look at a whole item or person, preferring instead to focus on an outline of a person or what others might consider some arbitrary physical features of an object (e.g., the leg of a chair rather than the whole chair). It has been suggested that the autistic child may make more use of the peripheral part of the retina which focuses on outline and movement, rather than central vision, for details. This part of the retina is mainly used by others in near-dark conditions. It is interesting to note that many autistic children can find their way perfectly well in the dark and may not always turn a light on. This, too, tends to fade with age.

13. Certain textures, tastes, and smells that are barely noticeable to others can be very offensive and distressing to us

While we might not be able to handle certain fabrics of clothing, we might not notice when something is too hot or too cold. We may not even notice if we have been badly hurt or injured. This seems unusual to non-ASD people, but it is seen regularly in someone with ASD. It seems that, like with all of our other senses, we just don’t seem to interpret incoming stimuli the same way that other people do.

14. Many of us prefer the same narrow range of foods again and again

This may be related to our need for uniformity, but some have speculated that we don’t always recognize the sensation of hunger. However, many of us drink liquids excessively and our thirst cannot seem to be quenched. One piece of good news here is that when we are engaged in other activities, we can forget about this sometimes constant thirst.

15. Many of us have high levels of anxiety and fear, but this is not necessarily because we are autistic

Much of this anxiety and fear comes simply from the fact that a situation has arisen that we do not understand or did not expect. If you were in our shoes, you might be scared too.

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16. Learning difficulties are common for those presenting with ASD

That being said, about 10% of autistic children have very strong skill sets, even compared with typically-developing, same-age peers. This can sometimes come about because we practice a task in such a repetitive manner that we can become much more skilled than others. We also tend to obsess about small details in our special area that other people may not take the time to notice. This can really be to our advantage in developing a specialized skill set and can set us apart in a very positive way.

17. We don’t always act the way you think we should

In fact, very often, because we struggle with language and communication, we might do things that other people think are downright strange. We might think nothing of stroking the hair of a stranger on the bus or taking off our clothes for a dip in a neighbor’s swimming pool. We might also say things that will make others very uncomfortable, like commenting on your friend’s weight gain or the bus driver’s bald patch. Furthermore, it is difficult for an autistic person to tell a lie. We describe the world as we see it, without sugar-coating or rose-colored glasses.

18. The most capable of us may go on to lead completely normal lives, and many of us might marry and even have children of our own

However, for those with more significant impairments in intellectual functioning and social skills, we may need lifelong care.

19. Whatever our age and intellectual ability, we can improve our skills

We can make progress beyond what anyone has ever thought possible through the understanding and application of the science of human behavior. Behavior analysts have published hundreds of research papers in the area of autism. For this reason, Applied Behavior Analysis is regarded as the only scientifically validated treatment for autism. Click here to see more on how ABA can be used in the treatment of autism. Click here for conferences and training for educators, parents and clinicians interested in using behavioral technologies for effective change.

20. Finally, and for the last time, the MMR vaccine does not cause autism!

There is no debate in the scientific community about this. Read Chapter 16 in Bad Science by Dr. Ben Goldacre if you don’t believe me. Check out the Centers for Disease Control and Prevention’s 2014 report if you don’t believe Dr. Goldacre. If you still remain unconvinced, you should note that the only scientist who ever published a paper suggesting that the MMR vaccine caused Autism was stripped of the right to practice medicine in the UK as a result of the paper he published being deemed fraudulent. The journal that published that paper, The Lancet, retracted the paper in part in 2004 and in full in 2010.

Featured photo credit: Shannon O’Brien via shannonrosephotography.weebly.com

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Last Updated on August 19, 2019

How to Be True to Yourself and Live the Life You Want

How to Be True to Yourself and Live the Life You Want

We live in a world that constantly tells us what to do, how to act, what to be. Knowing how to be true to yourself and live the life you want can be a challenge.

When someone asks how we are, we assume that the person does not mean the question sincerely, for it would lead to an in depth conversation. So telling them that you are good or fine, even if you’re not, is the usual answer.

In an ideal world, we would stop and truly listen. We wouldn’t be afraid to be ourselves. Instead, when we answer about how we are doing, our mask, the persona we show the world, tightens. Sometimes even more so than it might have been before. Eventually, it becomes hard to take off, even when you’re alone.

Imagine a world where we asked how someone was doing and they really told us. Imagine a world where there were no masks, only transparency when we talked to one another.

If you want to live in a world that celebrates who you are, mistakes and all, take off the mask. It doesn’t mean you have to be positive or fine all the time.

According to a Danish psychologist, Svend Brinkman, we expect each other to be happy and fine every second, and we expect it of ourselves. And that “has a dark side.”[1] Positive psychology can have its perks but not at the expense at hiding how you truly feel in order to remain seemingly positive to others.

No one can feel positive all the time and yet, that is what our culture teaches us to embrace. We have to unlearn this. That said, telling others you are ‘“fine”’ all the time is actually detrimental to your wellbeing, because it stops you from being assertive, from being authentic or your truest self.

When you acknowledge a feeling, it leads you to the problem that’s causing that feeling; and once you identify the problem, you can find a solution to it. When you hide that feeling, you stuff it way down so no one can help you.You can’t even help yourself.

Feelings are there for one reason: to be felt. That doesn’t mean you have to act on that feeling. It just means that you start the process of problem solving so you can live the life you want.

1. Embrace Your Vulnerability

When you are your true self, you can better self-advocate or stand up for what you need. Your self-expression matters, and you should value your voice. It’s okay to need things, it’s okay to speak up, and it’s okay not to be okay.

Telling someone you are simply “fine” when you are not, does your story and your journey a great disservice. Being true to yourself entails embracing all aspects of your existence.

When you bring your whole self to the table, there is nothing that you can’t beat. Here’re 7 benefits of being vulnerable you should learn.

Can you take off the mask? This is the toughest thing anyone can do. We have learned to wait until we are safe before we start to be authentic.

In relationships especially, this can be hard. Some people avoid vulnerability at any cost. And in our relationship with ourselves, we can look in the mirror and immediately put on the mask.

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It all starts with your story. You have been on your own unique journey. That journey has led you here, to the person you are today. You have to be unafraid, and embrace all aspects of that journey.

You should seek to thrive, not just survive. That means you do not have to compete or compare yourself with anyone.

Authenticity means you are enough. It’s enough to be who you are to get what you want.

What if for the first time ever, you were real? What if you said what you wanted to say, did what you wanted to do, and didn’t apologize for it?

You were assertive, forthcoming in your opinions or actions to stand for what is right for you, (rather than being passive or aggressive) in doing so. You didn’t let things get to you. You knew you had something special to offer.

That’s where we all should be.

So, answer me this:

How are you, really?

And know that no matter the answer, you should still be accepted.

Bravery is in the understanding that you still may not be accepted for your truth.

Bravery is knowing you matter even when others say that you do not.

Bravery is believing in yourself when all evidence counters doing so (i.e. past failures or losses)

Bravery is in being vulnerable while knowing vulnerability is a sign of strength.

It’s taking control.

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2. Choose Your Attitude in Adversity

You can take control of your destiny and live the life you want by being true to yourself. You can start anytime. You can start today.

You can start with one day at a time, just facing what happens that day. Most of us get overwhelmed when faced with the prospect of a big change. Even if the only thing we change is our attitude.

In one instant, you can become a different person with a change of attitude. When you take control of your attitude, you become able to better understand what is around you. This allows you to move forward.

Originally, you may have had a life plan. It could have started when you were little; you were hoping to become a mermaid, doctor, astronaut or all three when you grew up. You were hoping to be someone. You were hoping to be remembered.

You can still dream those dreams, but eventually reality sets in. Obstacles and struggles arise. You set on a different path when the last one didn’t work out. You think of all the “shoulds” in your life in living the life you want. You should be doing this…should be doing that…

Clayton Barbeau, psychologist, coined the term “shoulding yourself.’[2] When we are set on one path and find ourselves doing something different. It becomes all the things you should be doing rather than seeing the opportunities right in front of you.

But in all this disarray, did you lose sight of the real you?

It may be in our perceived failures and blunders that we lose sight of who we are, because we try to maintain position and status.

In being who we really are and achieving what we really want, we need to be resilient: How to Build Resilience to Face What Life Throws at You

It means that we do not see all possibilities of what might happen, but must trust ourselves to begin again, and continue to build the life we want. In the face of adversity, you must choose your attitude.

Can attitude overcome adversity? It certainly helps. While seeking to be true to yourself and live the life you want, you will have to face a fact:

Change will happen.

Whether that change is good or bad is unique to each person and their perspective.

You might have to start over, once, twice, a few times. It doesn’t mean that everything will be okay, but that you will be okay. What remains or should remain is the true you. When you’ve lost sight of that, you’ve lost sight of everything.

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And then, you rebuild. Moment after moment, day after day. We all have a choice, and in this moment, that matters.

You can choose to have a positive attitude, seeing the silver lining in each situation and, where there is none, the potential for one. Maybe that silver lining is you and what you will do with the situation. How will you use it for something good?

That’s how you can tap into yourself and your power. Sometimes it happens by accident, sometimes on purpose. It can happen when we aren’t even looking for it, or it can be your only focus. Everyone gets there differently.

You can rise, or you can remain. Your choice.

When the worst happens, you can rely on your authenticity to pull you through. That’s because Self Advocacy, speaking up to let others know what you need, is part of finding the real you.

There is nothing wrong with asking for help. Or sometimes, helping others can help us deal with the pain of a hurtful situation. You decide how you’re going to help others, and suddenly, you become your best self.

3. Do What Makes You Happy When No One’s Looking

Being the best version of you has nothing to do with your success or your status. It has everything to do with your Character, what you do when no one’s looking.

In order to create the life you want, you have to be the person you want to be. Faking it till you make it is just a way to white knuckle it through your journey. You have the fire inside of you to make things right, to put the pieces together, to live authentically. And Character is how you get there.

If you fall down and you help another up while you’re down there, it’s like you rise twice.

Along with attitude, your character is about the choices you make rather than what happens to you.

Yes, it’s about doing the right thing even when obstacles seem insurmountable.  It’s about using that mountain you’ve been given to show others it can be moved.  It’s about being unapologetically you, taking control, choosing your attitude in adversity and being the best version of you to create the life you want.

How do you know what you really want? Is it truly status or success?

Unfortunately, these things do not always bring happiness. And aspects of our image or “performance driven existence” may not achieve satisfaction. Materialism is part of our refusal to accept ourselves as enough. All the things we use to repress our true selves are about being enough.

“Enoughness” is what we truly seek, but ego gets in the way.

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Ego is the perception of self as outer worth. It’s not REAL self worth.

Ego represses our true self with a new self— the self of chasing ‘“Am I ever enough?”’ questions. And instead of filling our true selves with self-love and acceptance, when we “should ourselves” and chase “enoughness,” we feed the ego or our image.

It’s important to realize YOU ARE ENOUGH, without all the material trappings.

Stanford psychologist Meagan O’Reilly describes the damage of not thinking we are enough. One of her tactics for combating this is to complete the sentence,[3]

“If I believed I were already enough, I’d ____”

What would you do if you felt you were enough?

By believing you are enough, you can live the life you want.

So many fake it to try to get there, and they end up losing themselves when they lose more and more touch with their Authenticity.

Final Thoughts

By being yourself, you are being brave. By acknowledging all you can be, you tell the universe that you can until you believe it too. The steps are easy, and you are worth it. All of it is about the purpose you are leading and the passion that is your fuel.

Being true to yourself is all about mastering how to live life authentically rather than faking or forcing it. Having the life you want (and deserve) is about being trusting in yourself and the purpose you are living for. Both need passion behind it, fueling it each second, or you will experience burn out.

When you are authentic, you can call the road you walk your own. When you live your life for you and not just the results of all your actions (faking it till you make it), you can let go of what you don’t need. This clarifies and pushes purpose to you, living for something that is greater than you.

You will find that making decisions based on what will actually achieve your goals, will help you attain the life you want, and your success with each step, will allow you to enjoy the process. Good luck!

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Featured photo credit: Ariana Prestes via unsplash.com

Reference

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