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20 Things Children with Autism Want to Tell You

20 Things Children with Autism Want to Tell You

Autistic Spectrum Disorder (ASD) is a pervasive developmental disorder (ICD 10, DSM-IV) that occurs on a spectrum and thankfully is no longer considered a psychosis. Persons diagnosed with ASD are commonly accepted as presenting with a triad of impairment. These impairments usually include; 1) social skills deficits which mean that forming friendships is a frequent difficulty, 2) language and communication difficulties which often mean that the person will have trouble understanding and retaining information provided in the verbal format and will struggle with subtleties of language such as sarcasm or inuendo, and 3) difficulties with flexible thinking which often means that a person with ASD has difficulty taking different perspectives, empathy, and any sudden changes to routines. Persons with ASD will often find comfort in repetitive routines which others cannot understand or may find unusual. Persons with ASD also regularly have difficulties with motor coordination and may have difficulties processing incoming sensory information. This list of difficulties is by no means exhaustive. There are many other daily struggles for a person presenting anywhere on the Autistic spectrum. But whether you are into brain training for children, are a parent or a teacher of a child with ASD, or are a certified Applied Behavior Analyst, here is a list of things that I think a child with Autism wants you to know.

1. We struggle to make friends

This doesn’t mean that we don’t want to have friends, but we have varying degrees of success depending on how we seek people out. In Lorna Wing’s classic book, The Autistic Spectrum, she identifies four types of social interaction impairments faced by persons with the condition. These included the aloof type (who often behave as though other people simply don’t exist), the passive type (who accept social approaches but do not initiate them), the active-but-odd type (this group will often actively seek out social contact but often will do so in a peculiar, one-sided fashion, or can go on about their own interests only without realizing that others may not share those interests), and, finally, the overly formal or stilted type (who try very hard to behave well and rigidly adhere to all rules and conventions). So, whichever category your autistic person falls into, struggling socially tends to be part of their condition.

2. We struggle to communicate, but this does not mean we are not trying to be heard

In 1943, when Leo Kanner first started talking about ‘early infantile autism’, this was one of the things that he reported. A person with autism may or may not have difficulty with their grammar or vocabulary, but most of them will struggle in the manner in which they use language. Many children with autism never learn to speak. However, many others do learn to speak and can speak quite well, but may learn much later than their same-age peers. Please do not confuse a difficulty communicating with not wanting to be heard. A person with Autism may try very hard to have their needs met or their feelings understood, but it can be very difficult to effectively get your point across when your expressive language skills are limited or your manner of communicating is not the same as those around you.

3. We have difficulties understanding the spoken words of other people

People with autism have extremely varied abilities to understand language. Lorna Wing reports that most do have some understanding, but this often does not include things like jokes or the finer nuances of language. Many take a literal interpretation of language that can make things like sarcasm and analogy quite confusing. However, many persons with autism, with practice, can make great gains in these areas, even though it may not ever come as naturally to them as it does their to their peers. We also have trouble understanding and using non-verbal communication. Sign language may not be enough if our spoken language is not well developed, because we often have equal difficulties understanding facial expressions, body language, and any range of gestures that usually coincide with the spoken word.

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4. We sometimes use a different intonation than other people

In fact, sometimes we use a different accent from our families and communities completely. Sometimes our voices sound robotic or mechanical. This is not atypical for someone with autism, even though it might sound unusual to other people.

5. Imagination and pretend games are not fun for us

We like repetition and routine, not spontaneity and surprises. So, what seems like great fun for a person without Autism may actually be very upsetting for someone on the Autistic spectrum.

6. We love simple, repetitive activities, but we may graduate to more elaborate, repetitive routines as we get older

In 1973, Kanner described how some autistic children would invent routines for themselves such as tapping on a chair before sitting down or standing up and sitting down three times before eating a meal. He went on to describe how other children might require each member of the family to always sit in the exact same place at the dinner table or insist that a morning walk should always take exactly the same route. This is all part-and-parcel of how persons with ASD find comfort in sameness and are fearful of changes, but it can seem quite unusual to an outsider looking in. In fact, sometimes in our need for sameness, we might cling to an object that others simply cannot see the value of. Indeed, some of these objects may become our most preferred items.

7. Many of us like Thomas the Tank Engine

Some experts have speculated that this is because of the mechanical and repetitive characteristics of the characters in the show, but nobody really knows exactly why there is such a draw to Thomas the Tank Engine. Of course, there are many other shows and television characters that people with autism enjoy, but they often tend to be programs where there is a significant amount of repetition by the actors in a certain sequence.

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8. We often engage in stereotyped movements

In plain English, this means that we might do things like repetitively flick our fingers, flap our arms and hands, jump up and down, roll our heads around, or rock while standing up. It is not known why autistic people perform stereotyped movements, but there seems to be an escalation of these movements when the person is excited or when they are trying to seek sensory input. Typically-developing babies and toddlers will engage in a lot of these movements too, but with increasing age and self control, many of these physical behaviors cease or greatly decrease. However, they may not cease in people with ASD. In fact, a person with ASD can become very distressed if forced to suppress these movements. If you want to help a person with ASD when they are in distress, please be aware that they may need this type of sensory stimulation, and indeed it might be very calming for them to engage in it.

9. Some of us can be very clumsy, and we might have unusual gaits and posture

When Dr. Hans Asperger originally described the syndrome as he saw it in 1944, he noted that many of these children had underdeveloped motor coordination skills, handwriting, and time management. This is still true today, but not every person with ASD has awkward or underdeveloped fine or gross motor skills. Indeed, there are many persons, particularly those that are on the higher-functioning end of the Autistic spectrum, that can be very skilled athletes.

10. We have great difficulty imitating other people’s facial expressions, and yet we often imitate other people’s actions or echo their words

The technical terms for these behaviors are echopraxia and echolalia (Wing, 1996). It is often seen as paradoxical that it is so common for an autistic person to echo another person’s words and actions in what seems to be a meaningless fashion, when it is so essential to social development to meaningfully imitate things like two-way conversations, facial expressions, and eye contact.

11. We may ignore or seem not to hear loud noises, yet we might be extremely sensitive to sounds that other people barely notice

This is another paradox of the autistic spectrum. It was first noted by Itard in 1801 in Victor, The Wild Boy of Aveyron. Itard noted that Victor never responded at all to the loudest of noises like the explosion of firearms, yet never failed to respond to the sound of a walnut being cracked open or any other “eatable” which he enjoyed. Other children with autism can become extremely distressed by certain sounds and noises, but this will often fade with increased age.

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12. We can have seemingly contradictory responses to visual stimuli

For example, we may be fascinated by bright lights, but very distressed by flash photography. We also may not always look at a whole item or person, preferring instead to focus on an outline of a person or what others might consider some arbitrary physical features of an object (e.g., the leg of a chair rather than the whole chair). It has been suggested that the autistic child may make more use of the peripheral part of the retina which focuses on outline and movement, rather than central vision, for details. This part of the retina is mainly used by others in near-dark conditions. It is interesting to note that many autistic children can find their way perfectly well in the dark and may not always turn a light on. This, too, tends to fade with age.

13. Certain textures, tastes, and smells that are barely noticeable to others can be very offensive and distressing to us

While we might not be able to handle certain fabrics of clothing, we might not notice when something is too hot or too cold. We may not even notice if we have been badly hurt or injured. This seems unusual to non-ASD people, but it is seen regularly in someone with ASD. It seems that, like with all of our other senses, we just don’t seem to interpret incoming stimuli the same way that other people do.

14. Many of us prefer the same narrow range of foods again and again

This may be related to our need for uniformity, but some have speculated that we don’t always recognize the sensation of hunger. However, many of us drink liquids excessively and our thirst cannot seem to be quenched. One piece of good news here is that when we are engaged in other activities, we can forget about this sometimes constant thirst.

15. Many of us have high levels of anxiety and fear, but this is not necessarily because we are autistic

Much of this anxiety and fear comes simply from the fact that a situation has arisen that we do not understand or did not expect. If you were in our shoes, you might be scared too.

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16. Learning difficulties are common for those presenting with ASD

That being said, about 10% of autistic children have very strong skill sets, even compared with typically-developing, same-age peers. This can sometimes come about because we practice a task in such a repetitive manner that we can become much more skilled than others. We also tend to obsess about small details in our special area that other people may not take the time to notice. This can really be to our advantage in developing a specialized skill set and can set us apart in a very positive way.

17. We don’t always act the way you think we should

In fact, very often, because we struggle with language and communication, we might do things that other people think are downright strange. We might think nothing of stroking the hair of a stranger on the bus or taking off our clothes for a dip in a neighbor’s swimming pool. We might also say things that will make others very uncomfortable, like commenting on your friend’s weight gain or the bus driver’s bald patch. Furthermore, it is difficult for an autistic person to tell a lie. We describe the world as we see it, without sugar-coating or rose-colored glasses.

18. The most capable of us may go on to lead completely normal lives, and many of us might marry and even have children of our own

However, for those with more significant impairments in intellectual functioning and social skills, we may need lifelong care.

19. Whatever our age and intellectual ability, we can improve our skills

We can make progress beyond what anyone has ever thought possible through the understanding and application of the science of human behavior. Behavior analysts have published hundreds of research papers in the area of autism. For this reason, Applied Behavior Analysis is regarded as the only scientifically validated treatment for autism. Click here to see more on how ABA can be used in the treatment of autism. Click here for conferences and training for educators, parents and clinicians interested in using behavioral technologies for effective change.

20. Finally, and for the last time, the MMR vaccine does not cause autism!

There is no debate in the scientific community about this. Read Chapter 16 in Bad Science by Dr. Ben Goldacre if you don’t believe me. Check out the Centers for Disease Control and Prevention’s 2014 report if you don’t believe Dr. Goldacre. If you still remain unconvinced, you should note that the only scientist who ever published a paper suggesting that the MMR vaccine caused Autism was stripped of the right to practice medicine in the UK as a result of the paper he published being deemed fraudulent. The journal that published that paper, The Lancet, retracted the paper in part in 2004 and in full in 2010.

Featured photo credit: Shannon O’Brien via shannonrosephotography.weebly.com

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Last Updated on March 30, 2020

What Does Self-Conscious Mean? (And How to Stop Being It)

What Does Self-Conscious Mean? (And How to Stop Being It)

Have you ever walked into a room and felt like your nerves simply couldn’t handle it? Your heart beats fast, you start to sweat, and you feel like all eyes are on you (even if they’re really not). This is just one of the many ways that being self-conscious can rear its ugly head.

You may not even realize you’re self-conscious, and you may be wondering, “What does self-conscious mean?” That’s a good place to start.

This article will define self-consciousness, show how practically everyone has faced it at one point or another, and give you tips to avoid it.

What Does Self-Conscious Mean?

According to the Merriam-Webster dictionary, self-conscious is defined as “conscious of one’s own acts or states as belonging to or originating in oneself.”[1]

Not so bad, right? There’s another definition, though — one that speaks more to what you’re going through: “feeling uncomfortably conscious of oneself as an object of the observation of others.” For those of us who regularly deal with extreme self-consciousness, that second definition sounds about right.

There are many different ways self-consciousness can spring up. You may feel self-conscious around people you know, like your family members or closest friends. You may feel self-conscious at work, even though you spend hours every week around your co-workers. Or you may feel self-conscious when out in public and surrounded by strangers. However, you probably don’t feel self-conscious when you’re home alone.

How to Stop Being Too Self-Conscious

When you’re in the throes of self-consciousness, it’s nearly impossible to remember how to stop feeling that way. That’s why it’s so important to prepare ahead of time, when you’re feeling ready to tackle the problem instead of succumbing to it.

Here are a variety of ways to feel better about yourself and stop thinking about how others see you.

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1. Ask Yourself, “So What?”

One way to banish negative, self-conscious thoughts is to do just that: banish them.

The next time you walk into a room and feel your face getting red, think to yourself, “So what?” How much does it really matter if people don’t like how you look or act? What’s the worst that could happen?

Most of the time, you’ll find that you don’t have a good answer to this question. Then, you can immediately start assigning such thoughts less importance. With self-awareness, you can acknowledge that your negative thoughts are present and realize that you don’t agree with them.[2] They’re just thoughts, after all.

2. Be Honest

A lie that self-consciousness might tell is that there’s one way to act or feel. Honestly, though, everyone else is just figuring life out as well. There isn’t a preferred way to show up to an event, gathering, or public place. What you can do is be honest with your feelings and thoughts.[3]

If you feel offended by something someone says, you don’t have to smile to be polite or laugh to fit in with the crowd. Instead, you can politely say why you disagree or excuse yourself and find a group of people who you relate to better. If you’re nervous, don’t overcompensate by trying to look relaxed and casual — it’ll be obvious you’re putting on a front. Instead, nothing is more endearing than saying, “I’m a little nervous!” to a room of people who probably feel the exact same way.

On the same note, if you don’t understand why someone wants you to do something, question it. You can do this at work, at home, or even with people you don’t know well. Nobody should force you to do something you don’t want to do.

Also, even if you’re willing to do what’s asked of you, there’s nothing wrong with asking for more clarification. People will realize that you’re not a person to be bossed around.

3. Understand Why You’re Struggling at Work

Being self-conscious at work can get in the way of your daily responsibilities, your relationships with co-workers, and even your career as a whole. If you’re facing some sort of conflict but you’re too nervous to speak up, you may be at the whim of what happens to you instead of taking some control.

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If you’re usually confident at work, you may be wondering where this new self-consciousness is coming from. It’s possible that you’re dealing with burnout.[4] Common signs are anxiety, fatigue and distraction, all of which can leave you feeling under-confident.

4. Succeed at Something

When you create success in your life, it’s easier to feel confident[5] and less self-conscious. If you feel self-conscious at work, finish the project that’s been looming over your head. If you feel self-conscious in the gym, complete an advanced workout class.

Exposing yourself to what you’re scared of and then succeeding at it in some way (even just by finishing it) can do wonders for your self-esteem. The more confidence you build, the more likely you are to have more success in the future, which will create a cycle of confidence-building.

5. Treat All of You — Not Just Your Self-Consciousness

Trying to solve your self-consciousness alone may not treat the root of the problem. Instead, take a well-rounded approach to lower your self-consciousness and build confidence in areas where you may struggle.

Even professional counselors are embracing this holistic type of treatment[6] because they feel that the health of the mind and body are inextricably linked. This approach combines physical, spiritual, and psychological components. Common activities and treatments include meditation, yoga, massage, and healthy changes to diet and exercise.

If much of this is new to you, it will pay to give it a try. You never know how it will impact you.

If you’re feeling self-conscious about how your body looks, a massage that makes you feel great could boost your confidence. If you try a new workout, you could have something exciting to talk about the next time you’re in a group setting.

Putting yourself in a new situation and learning that you can get through it with grace can give you the confidence to get through all sorts of events and nerve-wracking moments.

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6. Make the Changes That Are Within Your Control

Let’s say you walk into a room and you’re self-conscious about how you look. However, you may have put a lot of time and effort into your outfit. Even though it may stand out, this is how you have chosen to express yourself.

You have to work on your internal confidence, not your external appearance. There’s nothing to change other than your outlook.

On the other hand, maybe there’s something that you don’t like about yourself that you can change. For example, maybe you hate how a birthmark on your face looks or have varicose veins that you think are unsightly. If you can do something about these things, do it! There’s nothing wrong with changing your appearance (or skills, education, etc.) if it’s going to make you more confident.

You don’t have to accept your current situation for acceptance’s sake. There’s no award for putting up with something you hate. Confidence is also required to make changes that are scary, even if they’re for the better. Plus, it may be an easier fix than you thought. For example, treating varicose veins doesn’t have to involve surgery — sometimes simple compression stockings will take care of the problem.[7]

7. Realize That Everyone Has Awkward Moments

Everyone has said something awkward to someone else and lived to tell the tale. We’ve all forgotten somebody’s name or said, “You too!” when the concession stand girl says to enjoy our movie. Not only are these things uber-common, but they’re not nearly as embarrassing as you feel they are.

Think about how you react when someone else does something awkward. Do you think, “Wow, that person’s such a loser!” or do you think, “What a relief, I’m not the only one who does that.” Chances are good that’s the same reaction others have to you when you stumble.

Remember, self-consciousness is a state of mind that you have control over. You don’t have to feel this way. Do what you need to in order to build your confidence, put your self-consciousness in perspective, and start exercising your “I feel awesome about myself” muscle. It’ll get easier with time.

When Is Being Self-Conscious a Good Thing?

Self-consciousness can sometimes be a good thing[8], but you have to take the awkwardness and nerves out of it.

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In this case, “self-aware” is a much better term. Knowing how you come off to people is an excellent trait; you’ll be able to read a room and understand how what you do and say affects others. These are fantastic skills for people work and personal relationships.

Self-awareness helps you dress appropriately for the occasion, tells you that you’re talking too loud or not loud enough, and guides a conversation so you don’t offend or bore anyone.

It’s not about being someone you’re not — that can actually have adverse effects, just like self-consciousness. Instead, it’s about turning up certain aspects of yourself to perform well in the situation.

Final Thoughts

When you’re self-conscious, you’re constantly battling with yourself in an effort to control how other people view you. You try to change yourself to suit what you think other people want to see.

The truth, though, is that you can’t actually control how other people view you — and you may not even be correct about how they view you in the first place.

Being confident doesn’t happen overnight. Instead, it happens in small steps as you slowly build your confidence and say “no” to your self-consciousness. It also requires accepting that you’re going to feel self-conscious sometimes, and that’s okay.

Sometimes worrying that there is a problem can be more stressful than the problem itself. Feeling bad for feeling self-conscious can be more troublesome than simply feeling it and getting on with the day.

Forgive yourself for being human and make the small changes that will lead to better confidence in the future.

More Tips for Improving Your Self-Esteem

Featured photo credit: Cata via unsplash.com

Reference

[1] Merriam-Webster: Self-conscious
[2] Bustle: 7 Tips On How To Stop Feeling Self-Conscious
[3] Marc and Angel: 10 Things to Remember When You Feel Unsure of Yourself
[4] Bostitch: How to Protect Small Businesses From Burnout
[5] Psychology Today: Self-conscious? Get Over It
[6] Wake Forest University: Embracing Holistic Medicine
[7] Center for Vein Restoration: What Causes Venous Ulcers, and How Are They Treated?
[8] Scientific American: The Pros and Cons of Being Self-Aware

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