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11 Things To Remember If Your Love Someone With ALS

11 Things To Remember If Your Love Someone With ALS

It is not easy to love someone who is sick; it is especially difficult when it comes to loving someone who has ALS.

ALS is a motor-neuron disease, commonly known in the USA as Lou Gehrig’s disease. It strikes certain cells in the spinal cord and brain, making it difficult or even impossible to move. It starts by making a patient generally weak, unable to lift things and walk and then talk and even swallow. The disease is mostly diagnosed among people of 50 years and older. But there are cases when young people or even children are diagnosed with a light form of ALS. True love is unconditional, but ALS tests everyone. Understanding how a person with ALS feels will help you deal with the hard mental and physical work it requires.

1. ALS is not a death sentence.

Although statistics are rather sad, there are people diagnosed with ALS who have managed to live to see their grandchildren. Take Stephen Hawking as the best example. The world’s smartest man was diagnosed with ALS when he was 21. Soon, he will be celebrating his 70th birthday. Being wheelchair-bounded, he helped to formulate ideas on quantum gravity and black holes. His books are bestsellers, and his life is a legend. Although he lost the ability to move or speak, he has been working as a professor at Cambridge for over 30 years and became director of research at the center of Theoretical Cosmology.

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THE HAWKING PARADOX

    2. It is not their fault.

    ALS can happen to anybody with no clearly associated risk factors. Only 10 percent of ALS cases are genetic or based on gene mutation. Most people die from respiratory failure caused by ALS approximately 3-5 years from the onset of symptoms. Nevertheless, there are those who manage to live 15 years or more.

    3. They need your help.

    No one can deny that people with ALS need help. It is going to take a lot of time and adjustment to learn how to help your friend with ALS. Be patient and listen very attentively to what they say or show you.

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    4. They can sometimes cry or laugh uncontrollably.

    People who have ALS can sometimes experience uncontrollable laughter or crying without feeling particularly happy or sad. This effect is mostly seen in people suffering from upper motor neuron disease. Although this has nothing to do with actual depression, it has been successfully cured with antidepressants.

    5. ALS doesn’t affect them mentally.

    They are the same people they used to be. Yes, they cannot walk, lift things, or in some cases even talk. But just because they have changed physically doesn’t mean that they have changed mentally. They are still your best friend, cousin, wife, or mother. Treat them the same way you used to.

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    11-things-to-remember-if-you-love-someone-with-ALS

      6. They can hear you well.

      The biggest stereotype for people with ALS is that they cannot hear you well. Motor-neuron disease does not affect hearing. Talking loud or screaming will not make them answer faster.

      7. They are smart.

      Those suffering from ALS are able to use their brain’s potential to the fullest. They can even concentrate on everything amazingly. They are big book warms and excellent scientists, businessmen, directors, and journalists.

      8. They can be sexually active.

      ALS does not affect sexuality. Sufferers can be sexually active and even have children. Stephen Hawking, for example, has three beautiful kids who don’t have their father’s disease. The only thing that can make sexual relationship difficult is difficulties with the respiratory system. Nevertheless, there are special positive pressure ventilation systems that can help.

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      Stephen-in-1983-with-his-children-Robert-Lucy-and-Timothy-and-his-wife-Jane-215093

        9. They have a good sense of humor.

        In order to survive through hard times, you have to have an excellent sense of humor. ALS patients can be extremely funny when you get to know them. If you want to help them and show your love, you need to make jokes and tell funny stories, and you will see that it works both ways. Our ALS hero Mr. Hawking is known throughout the world for his exquisite sense of humor.

        10. They can tell you more about life than you think.

        Spending time with people who have ALS is a great experience. These people are alone with their thoughts a great deal of the time, so when they finally talk, they surprise you with accuracy and wisdom. You cannot help but be inspired by people who have lost everything at one point and gained even more than we can imagine.

        11.   They can continue leading a normal life.  

        Although normal is an abstract word when it comes to ALS, it has been proven that people suffering from this disease can continue leading a normal life. They can work (if it doesn’t involve physical labor), they can communicate with friends, watch movies, enjoy entertainment, and even travel.

        Featured photo credit: Girl with Heart, by Dannie via picjumbo.com

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        Last Updated on July 18, 2019

        What Makes People Happy? 20 Secrets of “Always Happy” People

        What Makes People Happy? 20 Secrets of “Always Happy” People

        Some people just seem to float through life with a relentless sense of happiness – through the toughest of times, they’re unfazed and aloof, stopping to smell the roses and drinking out of a glass half full.

        They may not have much to be happy about, but the simplicity behind that fact itself may make them happy.

        It’s all a matter of perspective, conscious effort and self-awareness. Listed below are a number of reasons why some people are always happy.

        1. They Manage Their Expectations

        They’re not crushed when they don’t get what they want – or misled into expecting to get the most out of every situation. They approach every situation pragmatically, hoping for the best but being prepared for the worst.

        2. They Don’t Set Unrealistic Standards

        Similar to the last point, they don’t live their lives in a constant pursuit towards impossible visions of perfection, only to always find themselves falling short of what they want.

        3. They Don’t Take Anything for Granted

        Happiness rests with feeling fulfilled – those who fail to stop and appreciate what they have every now and again will never experience true fulfillment.

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        4. They’re Not Materialistic

        There are arguing viewpoints on whether or not money can really buy happiness; if it can, then we know from experience that we can never be satisfied because there will always be something newer or better that we want. Who has ever had enough money?

        5. They Don’t Dwell

        They don’t sweat the small things or waste time worrying about things that don’t really matter at the end of the day. They don’t let negative thoughts latch onto them and drain them or distract them. Life’s too short to worry.

        6. They Care About Themselves First

        They’re independent, care for themselves and understand that they must put their needs first in order to accommodate the needs of others.

        They indulge, aim to get what they want, make time for themselves and are extremely self-reliant.

        7. They Enjoy the Little Things

        They stop to smell the roses. They’re accustomed to find serenity when it’s available, to welcome entertainment or a stimulating discussion with a stranger when it crosses their path. They don’t overlook the small things in life that can be just as important.

        8. They Can Adapt

        They’re not afraid of change and they work to make the most out of new circumstances, good or bad. They thrive under pressure, are not overwhelmed easily and always embrace a change of pace.

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        9. They Experiment

        They try new things, experience new flavors and never shy away from something they have yet to experience. They never order twice from the same menu.

        10. They Take Their Time

        They don’t unnecessarily rush through life. They work on their own schedule to the extent that they can and maneuver through life at their own relaxing pace.

        11. They Employ Different Perspectives

        They’re not stuck in one perspective; a loss can result in a new opportunity, hitting rock bottom can mean that there’s no where to go but up.

        12. They Seek to Learn

        Their constant pursuit of knowledge keeps them inspired and interested in life. They cherish information and are on a life-long quest to learn as much as they can.

        13. They Always Have a Plan

        They don’t find themselves drifting without purpose. When something doesn’t go as planned, they have a plan for every letter in the alphabet to fall back on.

        14. They Give Respect to Get It

        They are respectful and, in turn, are seen as respectable; the respect they exude earns them the respect they deserve.

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        15. They Consider Every Opportunity

        They always have their eyes open for a new road, a new avenue worth exploring. They know how to recognize opportune moments and pounce on them to make the most of every situation. Success is inevitable for them.

        16. They Always Seek to Improve

        Perpetual self-improvement is the key towards their ongoing thirst for success. Whatever it is they do, they take pride in getting better and better, from social interactions to mundane tasks. Their pursuit at being the best eventually materializes.

        17. They Don’t Take Life Too Seriously

        They’re not ones to get offended easily over-analyze or complicate matters. They laugh at their own faults and misfortunes.

        18. They Live in the Moment

        They don’t live for tomorrow or dwell on what may have happened yesterday. Every day is a new opportunity, a new chapter. They live in the now, and in doing so, get the most out of every moment.

        You can learn how to do so too: How to Live in the Moment and Stop Worrying About the Past or Future

        19. They Say Yes

        Much more often than they say no. They don’t have to be badgered to go out, don’t shy away from new opportunities or anything that may seem inconvenient.

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        20. They’re Self-Aware

        Most important, they’re wholly aware of themselves. They self-reflect and are conscious of their states of mind. If somethings bothering them, they fix it.

        We’re all susceptible to feeling down every now and again, but we are all equipped with the necessary solutions that just have to be discovered.

        Lack of confidence, inability to feel fulfilled, and susceptibility to stress are all matters that can be controlled through the way we handle our lives and perceive our circumstances.

        Learn about How Self-Reflection Gives You a Happier and More Successful Life.

        Final Thoughts

        The main philosophy employed by the happiest includes the idea that life’s simply too short: life’s too short to let things get you down, to take things for granted, to pursue absolute and unrealistic perfection.

        For some, employing these characteristics is a second nature – they do it without knowing. For others, a conscious effort must be put forth every now and again. Self-Awareness is key.

        More About Happiness

        Featured photo credit: Charles Postiaux via unsplash.com

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