Advertising
Advertising

10 Best Ways To Support A Loved One With Alzheimer’s Disease

10 Best Ways To Support A Loved One With Alzheimer’s Disease

Last year, we met a man wandering our street who asked us how to get home but could not remember where he lived. He said he had come to see his brother who lived on our street but could not remember the address. Fortunately, he had a sheet of paper with a contact number and we were able to put him in the car and return him safely to his home. This was a classic case of a person suffering from mild to moderate Alzheimer’s disease.

The first things an Alzheimer’s patient has to deal with are the problems with memory and making decisions. The patient will start feeling despondent. One of the first things to reassure them about is that you will always be there and that they are going to have bad days and good days. The patient and you will probably notice some or all of the following problems:

  • Repeating questions
  • Problems with paying bills and handling money
  • Delay in completing normal routine tasks
  • Personality changes where the patient may be withdrawn or extremely irritable
  • Difficulty in expressing thoughts
  • Misplacing items.

When moderate Alzheimer’s is present, the patient becomes even more confused and memory loss begins to interfere with daily functioning. Getting dressed becomes difficult and they may suffer from delusions and hallucinations. When severe Alzheimer’s sets in, the patient will be unable to communicate, will not be able to function at all and will spend most of the time in bed. They will need constant care and attention.

If you really want to understand what an Alzheimer’s patient is going through, an excellent book is The Best Friends Approach to Alzheimer’s Care by Virginia Bell and David Troxel. This book makes us aware of the patient’s feelings of being embarrassed, frightened and lonely as they experience a loss of memory and self-care skills. One of the most important pieces of advice in this book is that we should never correct a patient who tells us that a certain relative, who is long deceased, has been around recently. They also recommend imagining what it must be like not to be able to do any of our favorite activities anymore.

Advertising

Here are 10 things to keep in mind if you have a loved one with Alzheimer’s or if you are a caregiver.

1. Medication can help to maintain mental health

There are several drugs now approved by the FDA which can help a patient by delaying the disease’s progress. They will not work for everybody and they may only work for a time. The important thing is to help your loved one get an early diagnosis and treatment which may include these drugs.

As a supportive caregiver you can help in the following ways in managing the medication process:

  • Keep a list of the meds and dosages in a safe place at the patient’s home and also a copy for your own purse or wallet
  • Learn the times they should be given. You may have to call the patient to remind them if they are inclined to forget
  • Note any side effects and what progress has been made and report them to the doctor
  • Buy a pillbox with different compartments and a built-in alarm reminder.
  • Shared calendars can be a great help

As the disease progresses, you may have to make sure that someone is present when the meds are taken.

Advertising

2. Helping a patient to deal with memory loss

The patient will be upset at having to repeat questions and not take in the answers. While they can remember the long distant past perfectly, their memory of recent faces and events is at best patchy, at worst a complete blank. Their main worry at this stage is probably one of abandonment. You, as a caregiver and/or family member have to balance their desire to be independent with living safely. Here are some practical, easy ways you can help them cope:

  • Use post its at strategic points in the house to remind them to do certain things, taking keys, turning off the gas and so on. You can also get a personal voice prompt recording which kicks in as they approach the door.
  • Calendar clocks which show the month, date and time clearly are useful.
  • Color coded devices can help the patient find misplaced items.
  • Sensors built in to set off alarms in case of flooding or gas leaks.

3. Get help and support

Reach out to the many associations which will help you to support and assist a loved one. Find your local chapter of the Alzheimer’s Association if you live in the USA. They have a wealth of information and will help you with workshops and other resources. They also have a 24 hour helpline. You are not alone. They will also help you to look after yourself so that you do not suffer from burnout. In the USA, there are 15 million caregivers looking after people with this disease. If you live in another country, there may be similar organizations. It is well worthwhile reaching out.

4. Help them feel valued

The Alzheimer’s patient usually feels that their self worth is at risk and they want to retain their sense of identity and above all they want to be respected. Here are some of the ways you can help to prevent these feelings from being eroded:

  • Do not be too fussy about household routines and faulty memory when there are no safety issues
  • Dedicate time to chatting and avoid memory problems- let them go
  • Spend time with them doing things they still enjoy
  • Always include them in conversations
  • Always be affectionate and reassuring – avoid criticism at all costs.

 5. Coming to terms with skills erosion

These issues will inevitably come up as decreased cognitive abilities may mean that a patient will no longer be able to drive. Watch the video below on how a supportive conversation will help this man to come to terms with not being able to drive anymore. In the moving video, his wife hits the nail on the head when she states: “A real man tries to understand change tries to act in a responsible way.” Acknowledging the difficulties that giving up driving can involve demands empathy. Also, talking about possible solutions and reinforcing your affection are other ways to approach what can be a very thorny subject.

Advertising

6. How to help a patient to dress

Dealing with this can be easier if you try to encourage the patient to make choices. You can also help by making the most frequently worn clothes easily accessible. Make sure that buttons are undone and that zips are open. If they have problems in remembering how to dress, encourage them by giving them step by step instructions, one at a time. You can get the full dressing cheat sheet here.

7. Help with vision/spatial problems

One of the consequences of this disease is that the patient may have difficulty with vision and also interpreting colors and distance. Once the regular eye check ups have been dome and you are helping the patient wear the right glasses, it is important to look at the home environment so that they can negotiate it safely, without fear of falling. An occupational therapist is the best person to do this. The following changes may be recommended:

  • Suitable handrails at critical points in the house
  • Try using contrasting colors when setting the table. A white plate on a red tablecloth is much more easily recognizable than plates and cloths of the same color.
  • Use similar color contrasts for toilet seats so they are more noticeable
  • Improve lighting all over the house to reduce the risk of falls
  • Keep wall and floor designs plain. If they contain any geometrical patterns, these may be seen as obstacles by the patient.

8. Adjust to dramatic changes

As the disease goes through its various stages, there may be challenges which will seem overwhelming at first. But the rewards are also considerable as you will be able to strengthen the bonds through compassion and caring. In addition, there will be new relationships as you avail of support groups. Accept all the help you can get whether it is cleaning, shopping or transporting. You are going to need a network of people to help, so rally round friends and family.

9. Plan ahead

Further down the road, you have to make plans for 24/7 care. That may mean making decisions fairly early on. Most patients know that this is a distinct possibility and they want to be able to decide with their loved ones, sooner rather than later. Being involved in such a decision is important for them.

Advertising

You will have to assess whether your finances can permit extra care and help. Look at all the options. There is a series of videos here which will help you to deal with various issues.

10. Learn how to reflect

Learning acceptance of each new loss of memory or erosion of skills is very hard to bear for both caregivers and patients. Caregivers need to reflect on what the new reality means and make the necessary adjustments. There are still many positive things that can come out of this experience:

  • Be grateful for what your loved one can still achieve
  • Organize activities in which you can both still participate and enjoy
  • Keep a diary and write down your sad thoughts, your successes and your unfailing love
  • Make mindfulness and relaxation an integral part of your daily routine

I once watched a YouTube video of a man talking about his wife and her steady loss of cognitive function and abilities as she went through the various stages of Alzheimer’s. One phrase has stuck in my mind. He said: ‘Today is going to be her best ever.’ Living one day at a time and savoring any joyful moments is probably one of the best things a caregiver and a patient can do.

“Dementia is often regarded as an embarrassing condition that should be hushed up and not spoken about. But I feel passionately that more needs to be done to raise awareness, which is why I became an ambassador for the Alzheimer’s Society.” – Kevin Whately

More by this author

Robert Locke

Author of Ziger the Tiger Stories, a health enthusiast specializing in relationships, life improvement and mental health.

What Your Fear of Being Alone Is Really About and How to Get over It Write A Personal Mission Statement to Achieve Your Goal More Easily 10 Reasons Why People Are Unmotivated (And How to Be Motivated) 7 Things You Can Do to Deal with Low-Energy Days 40 Powerful Productivity Quotes From Highly Successful People

Trending in Communication

1 50 Unique and Really Fun Date Ideas for Couples 2 Take Back Your Personal Power (Part 1) 3 Take Back Your Personal Power (Part 2) 4 When You Start to Let Go of Your Past, These 10 Things Will Happen 5 How to Learn to Let Go of What You Can’t Control

Read Next

Advertising
Advertising
Advertising

Last Updated on January 24, 2021

How to Say No When You Know You Say Yes Too Often

How to Say No When You Know You Say Yes Too Often

Do you say yes so often that you no longer feel that your own needs are being met? Are you wondering how to say no to people?

For years, I was a serial people pleaser[1]. Known as someone who would step up, I would gladly make time, especially when it came to volunteering for certain causes. I proudly carried this role all through grade school, college, even through law school. For years, I thought saying “no” meant I would disappoint a good friend or someone I respected.

But somewhere along the way, I noticed I wasn’t quite living my life. Instead, I seem to have created a schedule that was a strange combination of meeting the expectations of others, what I thought I should be doing, and some of what I actually wanted to do. The result? I had a packed schedule that left me overwhelmed and unfulfilled.

It took a long while, but I learned the art of saying no. Saying no meant I no longer catered fully to everyone else’s needs and could make more room for what I really wanted to do. Instead of cramming too much in, I chose to pursue what really mattered. When that happened, I became a lot happier.

And guess what? I hardly disappointed anyone.

The Importance of Saying No

When you learn the art of saying no, you begin to look at the world differently. Rather than seeing all of the things you could or should be doing (and aren’t doing), you start to look at how to say yes to what’s important.

In other words, you aren’t just reacting to what life throws at you. You seek the opportunities that move you to where you want to be.

Successful people aren’t afraid to say no. Oprah Winfrey, considered one of the most successful women in the world, confessed that it was much later in life when she learned how to say no. Even after she had become internationally famous, she felt she had to say yes to virtually everything.

Being able to say no also helps you manage your time better.

Warren Buffett views “no” as essential to his success. He said:

“The difference between successful people and really successful people is that really successful people say no to almost everything.”

When I made “no” a part of my toolbox, I drove more of my own success, focusing on fewer things and doing them well.

How We Are Pressured to Say Yes

It’s no wonder a lot of us find it hard to say no.

From an early age, we are conditioned to say yes. We said yes probably hundreds of times in order to graduate from high school and then get into college. We said yes to find work, to get a promotion, to find love and then yes again to stay in a relationship. We said yes to find and keep friends.

We say yes because we feel good when we help someone, because it can seem like the right thing to do, because we think that is key to success, and because the request might come from someone who is hard to resist.

And that’s not all. The pressure to say yes doesn’t just come from others. We put a lot of pressure on ourselves.

Advertising

At work, we say yes because we compare ourselves to others who seem to be doing more than we are. Outside of work, we say yes because we are feeling bad that we aren’t doing enough to spend time with family or friends.

The message, no matter where we turn, is nearly always, “You really could be doing more.” The result? When people ask us for our time, we are heavily conditioned to say yes.

How Do You Say No Without Feeling Guilty?

Deciding to add the word “no” to your toolbox is no small thing. Perhaps you already say no, but not as much as you would like. Maybe you have an instinct that if you were to learn the art of no that you could finally create more time for things you care about.

But let’s be honest, using the word “no” doesn’t come easily for many people.

3 Rules of Thumbs for Saying No

1. You Need to Get Out of Your Comfort Zone

Let’s face it. It is hard to say no. Setting boundaries around your time, especially you haven’t done it much in the past, will feel awkward. Your comfort zone is “yes,” so it’s time to challenge that and step outside that.

If you need help getting out of your comfort zone, check out this article.

2. You Are the Air Traffic Controller of Your Time

When you want to learn how to say no, remember that you are the only one who understands the demands for your time. Think about it: who else knows about all of the demands in your life? No one.

Only you are at the center of all of these requests. You are the only one that understands what time you really have.

3. Saying No Means Saying Yes to Something That Matters

When we decide not to do something, it means we can say yes to something else that we may care more about. You have a unique opportunity to decide how you spend your precious time.

6 Ways to Start Saying No

Incorporating that little word “no” into your life can be transformational. Turning some things down will mean you can open doors to what really matters. Here are some essential tips to learn the art of no:

Advertising

1. Check in With Your Obligation Meter

One of the biggest challenges to saying no is a feeling of obligation. Do you feel you have a responsibility to say yes and worry that saying no will reflect poorly on you?

Ask yourself whether you truly have the duty to say yes. Check your assumptions or beliefs about whether you carry the responsibility to say yes. Turn it around and instead ask what duty you owe to yourself.

2. Resist the Fear of Missing out (FOMO)

Do you have a fear of missing out (FOMO)? FOMO can follow us around in so many ways. At work, we volunteer our time because we fear we won’t move ahead. In our personal lives, we agree to join the crowd because of FOMO, even while we ourselves aren’t enjoying the fun.

Check in with yourself. Are you saying yes because of FOMO or because you really want to say yes? More often than not, running after fear doesn’t make us feel better[2].

3. Check Your Assumptions About What It Means to Say No

Do you dread the reaction you will get if you say no? Often, we say yes because we worry about how others will respond or because of the consequences. We may be afraid to disappoint others or think we will lose their respect. We often forget how much we are disappointing ourselves along the way.

Keep in mind that saying no can be exactly what is needed to send the right message that you have limited time. In the tips below, you will see how to communicate your no in a gentle and loving way.

You might disappoint someone initially, but drawing a boundary can bring you the freedom you need so that you can give freely of yourself when you truly want to. And it will often help others have more respect for you and your boundaries, not less.

4. When the Request Comes in, Sit on It

Sometimes, when we are in the moment, we instinctively agree. The request might make sense at first. Or we typically have said yes to this request in the past.

Give yourself a little time to reflect on whether you really have the time or can do the task properly. You may decide the best option is to say no. There is no harm in giving yourself the time to decide.

5. Communicate Your “No” with Transparency and Kindness

When you are ready to tell someone no, communicate your decision clearly. The message can be open and honest[3] to ensure the recipient that your reasons have to do with your limited time.

Advertising

How do you say no? 9 Healthy Ways to Say “No”

    Resist the temptation not to respond or communicate all. But do not feel obligated to provide a lengthy account about why you are saying no.

    Clear communication with a short explanation is all that is needed. I have found it useful to tell people that I have many demands and need to be careful with how I allocate my time. I will sometimes say I really appreciate that they came to me and for them to check in again if the opportunity arises another time.

    6. Consider How to Use a Modified No

    If you are under pressure to say yes but want to say no, you may want to consider downgrading a “yes” to a “yes but…” as this will give you an opportunity to condition your agreement to what works best for you.

    Sometimes, the condition can be to do the task, but not in the time frame that was originally requested. Or perhaps you can do part of what has been asked.

    Final Thoughts

    Beginning right now, you can change how you respond to requests for your time. When the request comes in, take yourself off autopilot where you might normally say yes.

    Use the request as a way to draw a healthy boundary around your time. Pay particular attention to when you place certain demands on yourself.

    Try it now. Say no to a friend who continues to take advantage of your goodwill. Or, draw the line with a workaholic colleague and tell them you will complete the project, but not by working all weekend. You’ll find yourself much happier.

    More Tips on How to Say No

    Featured photo credit: Chris Ainsworth via unsplash.com

    Reference

    [1] Science of People: 11 Expert Tips to Stop Being a People Pleaser and Start Doing You
    [2] Anxiety and Depression Association of America: Tips to Get Over Your FOMO, or Fear of Missing Out
    [3] Cooks Hill Counseling: 9 Healthy Ways to Say “No”

    Read Next