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10 Best Ways To Support A Loved One With Alzheimer’s Disease

10 Best Ways To Support A Loved One With Alzheimer’s Disease

Last year, we met a man wandering our street who asked us how to get home but could not remember where he lived. He said he had come to see his brother who lived on our street but could not remember the address. Fortunately, he had a sheet of paper with a contact number and we were able to put him in the car and return him safely to his home. This was a classic case of a person suffering from mild to moderate Alzheimer’s disease.

The first things an Alzheimer’s patient has to deal with are the problems with memory and making decisions. The patient will start feeling despondent. One of the first things to reassure them about is that you will always be there and that they are going to have bad days and good days. The patient and you will probably notice some or all of the following problems:

  • Repeating questions
  • Problems with paying bills and handling money
  • Delay in completing normal routine tasks
  • Personality changes where the patient may be withdrawn or extremely irritable
  • Difficulty in expressing thoughts
  • Misplacing items.

When moderate Alzheimer’s is present, the patient becomes even more confused and memory loss begins to interfere with daily functioning. Getting dressed becomes difficult and they may suffer from delusions and hallucinations. When severe Alzheimer’s sets in, the patient will be unable to communicate, will not be able to function at all and will spend most of the time in bed. They will need constant care and attention.

If you really want to understand what an Alzheimer’s patient is going through, an excellent book is The Best Friends Approach to Alzheimer’s Care by Virginia Bell and David Troxel. This book makes us aware of the patient’s feelings of being embarrassed, frightened and lonely as they experience a loss of memory and self-care skills. One of the most important pieces of advice in this book is that we should never correct a patient who tells us that a certain relative, who is long deceased, has been around recently. They also recommend imagining what it must be like not to be able to do any of our favorite activities anymore.

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Here are 10 things to keep in mind if you have a loved one with Alzheimer’s or if you are a caregiver.

1. Medication can help to maintain mental health

There are several drugs now approved by the FDA which can help a patient by delaying the disease’s progress. They will not work for everybody and they may only work for a time. The important thing is to help your loved one get an early diagnosis and treatment which may include these drugs.

As a supportive caregiver you can help in the following ways in managing the medication process:

  • Keep a list of the meds and dosages in a safe place at the patient’s home and also a copy for your own purse or wallet
  • Learn the times they should be given. You may have to call the patient to remind them if they are inclined to forget
  • Note any side effects and what progress has been made and report them to the doctor
  • Buy a pillbox with different compartments and a built-in alarm reminder.
  • Shared calendars can be a great help

As the disease progresses, you may have to make sure that someone is present when the meds are taken.

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2. Helping a patient to deal with memory loss

The patient will be upset at having to repeat questions and not take in the answers. While they can remember the long distant past perfectly, their memory of recent faces and events is at best patchy, at worst a complete blank. Their main worry at this stage is probably one of abandonment. You, as a caregiver and/or family member have to balance their desire to be independent with living safely. Here are some practical, easy ways you can help them cope:

  • Use post its at strategic points in the house to remind them to do certain things, taking keys, turning off the gas and so on. You can also get a personal voice prompt recording which kicks in as they approach the door.
  • Calendar clocks which show the month, date and time clearly are useful.
  • Color coded devices can help the patient find misplaced items.
  • Sensors built in to set off alarms in case of flooding or gas leaks.

3. Get help and support

Reach out to the many associations which will help you to support and assist a loved one. Find your local chapter of the Alzheimer’s Association if you live in the USA. They have a wealth of information and will help you with workshops and other resources. They also have a 24 hour helpline. You are not alone. They will also help you to look after yourself so that you do not suffer from burnout. In the USA, there are 15 million caregivers looking after people with this disease. If you live in another country, there may be similar organizations. It is well worthwhile reaching out.

4. Help them feel valued

The Alzheimer’s patient usually feels that their self worth is at risk and they want to retain their sense of identity and above all they want to be respected. Here are some of the ways you can help to prevent these feelings from being eroded:

  • Do not be too fussy about household routines and faulty memory when there are no safety issues
  • Dedicate time to chatting and avoid memory problems- let them go
  • Spend time with them doing things they still enjoy
  • Always include them in conversations
  • Always be affectionate and reassuring – avoid criticism at all costs.

 5. Coming to terms with skills erosion

These issues will inevitably come up as decreased cognitive abilities may mean that a patient will no longer be able to drive. Watch the video below on how a supportive conversation will help this man to come to terms with not being able to drive anymore. In the moving video, his wife hits the nail on the head when she states: “A real man tries to understand change tries to act in a responsible way.” Acknowledging the difficulties that giving up driving can involve demands empathy. Also, talking about possible solutions and reinforcing your affection are other ways to approach what can be a very thorny subject.

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6. How to help a patient to dress

Dealing with this can be easier if you try to encourage the patient to make choices. You can also help by making the most frequently worn clothes easily accessible. Make sure that buttons are undone and that zips are open. If they have problems in remembering how to dress, encourage them by giving them step by step instructions, one at a time. You can get the full dressing cheat sheet here.

7. Help with vision/spatial problems

One of the consequences of this disease is that the patient may have difficulty with vision and also interpreting colors and distance. Once the regular eye check ups have been dome and you are helping the patient wear the right glasses, it is important to look at the home environment so that they can negotiate it safely, without fear of falling. An occupational therapist is the best person to do this. The following changes may be recommended:

  • Suitable handrails at critical points in the house
  • Try using contrasting colors when setting the table. A white plate on a red tablecloth is much more easily recognizable than plates and cloths of the same color.
  • Use similar color contrasts for toilet seats so they are more noticeable
  • Improve lighting all over the house to reduce the risk of falls
  • Keep wall and floor designs plain. If they contain any geometrical patterns, these may be seen as obstacles by the patient.

8. Adjust to dramatic changes

As the disease goes through its various stages, there may be challenges which will seem overwhelming at first. But the rewards are also considerable as you will be able to strengthen the bonds through compassion and caring. In addition, there will be new relationships as you avail of support groups. Accept all the help you can get whether it is cleaning, shopping or transporting. You are going to need a network of people to help, so rally round friends and family.

9. Plan ahead

Further down the road, you have to make plans for 24/7 care. That may mean making decisions fairly early on. Most patients know that this is a distinct possibility and they want to be able to decide with their loved ones, sooner rather than later. Being involved in such a decision is important for them.

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You will have to assess whether your finances can permit extra care and help. Look at all the options. There is a series of videos here which will help you to deal with various issues.

10. Learn how to reflect

Learning acceptance of each new loss of memory or erosion of skills is very hard to bear for both caregivers and patients. Caregivers need to reflect on what the new reality means and make the necessary adjustments. There are still many positive things that can come out of this experience:

  • Be grateful for what your loved one can still achieve
  • Organize activities in which you can both still participate and enjoy
  • Keep a diary and write down your sad thoughts, your successes and your unfailing love
  • Make mindfulness and relaxation an integral part of your daily routine

I once watched a YouTube video of a man talking about his wife and her steady loss of cognitive function and abilities as she went through the various stages of Alzheimer’s. One phrase has stuck in my mind. He said: ‘Today is going to be her best ever.’ Living one day at a time and savoring any joyful moments is probably one of the best things a caregiver and a patient can do.

“Dementia is often regarded as an embarrassing condition that should be hushed up and not spoken about. But I feel passionately that more needs to be done to raise awareness, which is why I became an ambassador for the Alzheimer’s Society.” – Kevin Whately

More by this author

Robert Locke

Author of Ziger the Tiger Stories, a health enthusiast specializing in relationships, life improvement and mental health.

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Last Updated on October 14, 2019

12 Inspirational Speeches That Teach You the Most Valuable Life Lessons

12 Inspirational Speeches That Teach You the Most Valuable Life Lessons

The most valuable thing an experienced person has is their experience. People make mistakes, learn from them, and adapt their life around them to become better people. Those people would then tell tales to others to help teach those lessons so that others would not have to make the same mistakes.

People still tell these stories today but in a slightly different format — they use speeches to express their experiences. Here are some valuable life lessons you can learn from some of the greatest inspirational speeches:

1. JK Rowling teaches us to not fear failure no matter how bad things become

It is a well-known fact that JK Rowling’s now-famous Harry Potter series was turned down by several publishers before it was finally picked up. Those publishers are likely kicking themselves in the pants right now. However, before that, JK Rowling was in a fairly dire situation and was on the brink of failure. Despite being turned down time and time again, she kept trying. Her efforts paid off. Harry Potter is now a ubiquitous character in today’s world culture. Despite failing over and over again, Rowling kept trying and fulfilled her dreams. You can watch her deliver some valuable life lessons in her Harvard commencement speech video above.

2. Steve Jobs teaches us to never settle

Steve Jobs had a fairly tumultuous life. He co-founded Apple, was kicked out of the company, came back, and then re-defined the mobile phone space with the iPhone. Even if iPhones aren’t the rage they once were, its iconic value is forever written in stone. One thing Jobs never did was settle. He lived life on his own terms and was rewarded for it by being dubbed one of the most revolutionary voices in technology of our time. In the Stanford commencement speech above, Jobs explains how you should never settle for what someone else wants out of your life. It’s your life and you should do what you want with it.

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3. Admiral William H McRaven teaches us to make our beds every day

Anyone who has gone through the basic training of a military service will tell you it’s pretty difficult. However, every seemingly obnoxious step is actually a life lesson in disguise. This even applies to flawlessly making one’s bed every single morning. As Admiral William H McRaven teaches us, recruits are taught to make their beds every morning to remind them that even the little things in life matter. After all, how can you be expected to handle the biggest obstacles in your life if you can’t even handle the small and the mundane like making your bed every day? You can watch the entire speech in the video above.

4. Author David Foster Wallace teaches us that we’re a part of a greater existence

David Foster Wallace found fame in 1987 with his book The Broom of the System. Nearly 20 years later in 2005 he game a commencement speech at Kenyon College that is worth listening to at least once. In his speech, he reminds us that was are but a part of a huge, dynamic, ever changing interaction of life forms. In order to truly experience life, we need to leave our personal bubbles and interact with others even if it’s in an unpleasant way. Wallace states, “It will actually be within your power to experience a crowded, hot, slow, consumer-hell type situation as not only meaningful, but sacred, on fire with the same force that made the stars: love, fellowship, the mystical oneness of all things deep down.” You can watch the whole speech above.

5. Stephen Colbert teaches us that life isn’t something you can plan

If there is anyone who knows about improvisation, it’s comedian Stephen Colbert. In his commencement speech at Northwestern University in 2011, Colbert reminded students that you cannot plan life. Life throws too many curve balls. There are too many unpredictable things that can happen. The most successful and happy people are not those who have a plan, but those who can roll with the punches and overcome the obstacles. He goes on to site his time as an improv comic and how all of the actors working together to create a scene out of literally nothing are all working for one another. He states that like improv comedy, you don’t know what happens next in life. You just make it up as you go along. You can watch the whole speech above.

6. Kurt Vonnegut teaches us to not sweat the small stuff

Some of our younger readers may not know Kurt Vonnegut. He is a famous author that found of of his success during the middle of last century. In 1999, Kurt Vonnegut was at Agnes Scott College giving a commencement speech. During the speech, he mentioned that in order to live a more complete life, people needed to let stuff go. He argued that you cannot reasonably expect others to forgive you for your mistakes if you cannot forgive others and that you cannot live life fostering a personal vendetta against others.

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7. Neil Gaiman teaches us that success can be distracting.

Neil Gaiman is most known for his work in a number of literary mediums including journalism, comic books, and novels. In 2012, Gaiman gave a speech at the University of the Arts where he talked about success. He stated that when you become successful, you may be unintentionally swayed from performing the actions that made you successful. Gaiman recalled his early success and how he felt pressured to answer emails all day long and it actually prevented him from writing as much as he wanted. So he reminds us to keep doing what makes us successful and to not let others get in the way.

8. Barack Obama’s life lessons teaches us that you really can beat the odds

We know that not everyone likes Barack Obama but that doesn’t mean the man can’t deliver an amazing speech. In this 2004 keynote speech at the Democratic National Convenction, Obama reminds that it is possible to beat the odds and become something great. He cites his own upbringing as an example and how he was never expected to make it as far as he did. It shows that when you’re passionate about something and when you try hard enough, you can accomplish almost anything. It’s important to note that Obama talks about this in 2004 and would become the President of the United States just four years later.

9. Robin Roberts reminds us that we each have the courage to overcome challenges

Robin Roberts knows a thing or two about courage. She is a breast cancer survivor and has done battle with a rare blood disease called myelodysplastic syndrome. Her sister once had to donate bone marrow just so Robin could remain alive. She was also ESPN’s first African American broadcaster in the early 1990’s. She’s a woman who works in an industry predominately populated by men. So when Robin Roberts takes the stage at the ESPYs and delivers a short lecture on having courage, we would do well to listen!

10. Martin Luther King Jr. reminds us that some things are more important than success

We all know the story of Martin Luther King Jr. So much so that we have a day of the year to celebrate him as a national holiday here in the United States. Most of us have listening to segments of his famous speech where he told the world about a dream he had. The main message of his famous speech is that racial inequalities needed to end and he was absolutely right. However, he also reminds us that there are things that are more important than success such as equal rights and treating each other with respect and kindness. If you somehow made it through school without watching the famous speech, we’ve got it linked above.

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11. Jim Carrey reminds us that even if you keep it safe, you can still fail so you might as well go big

Jim Carrey delivered a commencement speech at Maharishi University recently that went absolutely viral. You may know it as the one minute video that will change your life. They weren’t lying but they weren’t telling the whole truth because the speech was actually 28 minutes long. During the speech, Carrey talks about his father who wanted to be a comedian but decided to take the safe route and become an accountant. As it turns out, his father was laid off and his family ended up poor anyway. With that, Carrey tells us that you can still end up failing even if you play it safe so you might as well swing for the fences and do what you want to do.

12. Bill Murray teaches us that it’s the hard times that determine if someone really loves you

You may have heard the story about Bill Murray crashing someone’s bachelor party and delivering a speech. It turns out the speech was both short and fairly epic. During the speech, Bill Murray challenged the bachelors to travel around the world with the women they love and go to places that are difficult to go to and deal with. He says if you can get back to the United States and you still love each other, then you should get married right then and there. It’s a great message. It’s easy to love one another when times are good but do you still love each other when the times are bad? If so, that’s true love according to Bill Murray.

Final thoughts

Inspiration comes from everywhere and from anyone. There are a countless number of speeches and stories that can teach us an incalculable number of life lessons.

All these speeches almost share the same message: Don’t be afraid to fail and keep trying.

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If you also want to live your best life like the above successful people, this is what you should start doing:

You’ll Only Live Your Best Life Once You Step Out

At the end of the day, everything is inspirational. It’s just a matter of finding the message that we need to hear to change our lives.

Featured photo credit: Miguel Henriques via unsplash.com

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