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10 Best Ways To Support A Loved One With Alzheimer’s Disease

10 Best Ways To Support A Loved One With Alzheimer’s Disease

Last year, we met a man wandering our street who asked us how to get home but could not remember where he lived. He said he had come to see his brother who lived on our street but could not remember the address. Fortunately, he had a sheet of paper with a contact number and we were able to put him in the car and return him safely to his home. This was a classic case of a person suffering from mild to moderate Alzheimer’s disease.

The first things an Alzheimer’s patient has to deal with are the problems with memory and making decisions. The patient will start feeling despondent. One of the first things to reassure them about is that you will always be there and that they are going to have bad days and good days. The patient and you will probably notice some or all of the following problems:

  • Repeating questions
  • Problems with paying bills and handling money
  • Delay in completing normal routine tasks
  • Personality changes where the patient may be withdrawn or extremely irritable
  • Difficulty in expressing thoughts
  • Misplacing items.

When moderate Alzheimer’s is present, the patient becomes even more confused and memory loss begins to interfere with daily functioning. Getting dressed becomes difficult and they may suffer from delusions and hallucinations. When severe Alzheimer’s sets in, the patient will be unable to communicate, will not be able to function at all and will spend most of the time in bed. They will need constant care and attention.

If you really want to understand what an Alzheimer’s patient is going through, an excellent book is The Best Friends Approach to Alzheimer’s Care by Virginia Bell and David Troxel. This book makes us aware of the patient’s feelings of being embarrassed, frightened and lonely as they experience a loss of memory and self-care skills. One of the most important pieces of advice in this book is that we should never correct a patient who tells us that a certain relative, who is long deceased, has been around recently. They also recommend imagining what it must be like not to be able to do any of our favorite activities anymore.

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Here are 10 things to keep in mind if you have a loved one with Alzheimer’s or if you are a caregiver.

1. Medication can help to maintain mental health

There are several drugs now approved by the FDA which can help a patient by delaying the disease’s progress. They will not work for everybody and they may only work for a time. The important thing is to help your loved one get an early diagnosis and treatment which may include these drugs.

As a supportive caregiver you can help in the following ways in managing the medication process:

  • Keep a list of the meds and dosages in a safe place at the patient’s home and also a copy for your own purse or wallet
  • Learn the times they should be given. You may have to call the patient to remind them if they are inclined to forget
  • Note any side effects and what progress has been made and report them to the doctor
  • Buy a pillbox with different compartments and a built-in alarm reminder.
  • Shared calendars can be a great help

As the disease progresses, you may have to make sure that someone is present when the meds are taken.

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2. Helping a patient to deal with memory loss

The patient will be upset at having to repeat questions and not take in the answers. While they can remember the long distant past perfectly, their memory of recent faces and events is at best patchy, at worst a complete blank. Their main worry at this stage is probably one of abandonment. You, as a caregiver and/or family member have to balance their desire to be independent with living safely. Here are some practical, easy ways you can help them cope:

  • Use post its at strategic points in the house to remind them to do certain things, taking keys, turning off the gas and so on. You can also get a personal voice prompt recording which kicks in as they approach the door.
  • Calendar clocks which show the month, date and time clearly are useful.
  • Color coded devices can help the patient find misplaced items.
  • Sensors built in to set off alarms in case of flooding or gas leaks.

3. Get help and support

Reach out to the many associations which will help you to support and assist a loved one. Find your local chapter of the Alzheimer’s Association if you live in the USA. They have a wealth of information and will help you with workshops and other resources. They also have a 24 hour helpline. You are not alone. They will also help you to look after yourself so that you do not suffer from burnout. In the USA, there are 15 million caregivers looking after people with this disease. If you live in another country, there may be similar organizations. It is well worthwhile reaching out.

4. Help them feel valued

The Alzheimer’s patient usually feels that their self worth is at risk and they want to retain their sense of identity and above all they want to be respected. Here are some of the ways you can help to prevent these feelings from being eroded:

  • Do not be too fussy about household routines and faulty memory when there are no safety issues
  • Dedicate time to chatting and avoid memory problems- let them go
  • Spend time with them doing things they still enjoy
  • Always include them in conversations
  • Always be affectionate and reassuring – avoid criticism at all costs.

 5. Coming to terms with skills erosion

These issues will inevitably come up as decreased cognitive abilities may mean that a patient will no longer be able to drive. Watch the video below on how a supportive conversation will help this man to come to terms with not being able to drive anymore. In the moving video, his wife hits the nail on the head when she states: “A real man tries to understand change tries to act in a responsible way.” Acknowledging the difficulties that giving up driving can involve demands empathy. Also, talking about possible solutions and reinforcing your affection are other ways to approach what can be a very thorny subject.

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6. How to help a patient to dress

Dealing with this can be easier if you try to encourage the patient to make choices. You can also help by making the most frequently worn clothes easily accessible. Make sure that buttons are undone and that zips are open. If they have problems in remembering how to dress, encourage them by giving them step by step instructions, one at a time. You can get the full dressing cheat sheet here.

7. Help with vision/spatial problems

One of the consequences of this disease is that the patient may have difficulty with vision and also interpreting colors and distance. Once the regular eye check ups have been dome and you are helping the patient wear the right glasses, it is important to look at the home environment so that they can negotiate it safely, without fear of falling. An occupational therapist is the best person to do this. The following changes may be recommended:

  • Suitable handrails at critical points in the house
  • Try using contrasting colors when setting the table. A white plate on a red tablecloth is much more easily recognizable than plates and cloths of the same color.
  • Use similar color contrasts for toilet seats so they are more noticeable
  • Improve lighting all over the house to reduce the risk of falls
  • Keep wall and floor designs plain. If they contain any geometrical patterns, these may be seen as obstacles by the patient.

8. Adjust to dramatic changes

As the disease goes through its various stages, there may be challenges which will seem overwhelming at first. But the rewards are also considerable as you will be able to strengthen the bonds through compassion and caring. In addition, there will be new relationships as you avail of support groups. Accept all the help you can get whether it is cleaning, shopping or transporting. You are going to need a network of people to help, so rally round friends and family.

9. Plan ahead

Further down the road, you have to make plans for 24/7 care. That may mean making decisions fairly early on. Most patients know that this is a distinct possibility and they want to be able to decide with their loved ones, sooner rather than later. Being involved in such a decision is important for them.

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You will have to assess whether your finances can permit extra care and help. Look at all the options. There is a series of videos here which will help you to deal with various issues.

10. Learn how to reflect

Learning acceptance of each new loss of memory or erosion of skills is very hard to bear for both caregivers and patients. Caregivers need to reflect on what the new reality means and make the necessary adjustments. There are still many positive things that can come out of this experience:

  • Be grateful for what your loved one can still achieve
  • Organize activities in which you can both still participate and enjoy
  • Keep a diary and write down your sad thoughts, your successes and your unfailing love
  • Make mindfulness and relaxation an integral part of your daily routine

I once watched a YouTube video of a man talking about his wife and her steady loss of cognitive function and abilities as she went through the various stages of Alzheimer’s. One phrase has stuck in my mind. He said: ‘Today is going to be her best ever.’ Living one day at a time and savoring any joyful moments is probably one of the best things a caregiver and a patient can do.

“Dementia is often regarded as an embarrassing condition that should be hushed up and not spoken about. But I feel passionately that more needs to be done to raise awareness, which is why I became an ambassador for the Alzheimer’s Society.” – Kevin Whately

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Robert Locke

Author of Ziger the Tiger Stories, a health enthusiast specializing in relationships, life improvement and mental health.

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Last Updated on August 19, 2019

How to Be True to Yourself and Live the Life You Want

How to Be True to Yourself and Live the Life You Want

We live in a world that constantly tells us what to do, how to act, what to be. Knowing how to be true to yourself and live the life you want can be a challenge.

When someone asks how we are, we assume that the person does not mean the question sincerely, for it would lead to an in depth conversation. So telling them that you are good or fine, even if you’re not, is the usual answer.

In an ideal world, we would stop and truly listen. We wouldn’t be afraid to be ourselves. Instead, when we answer about how we are doing, our mask, the persona we show the world, tightens. Sometimes even more so than it might have been before. Eventually, it becomes hard to take off, even when you’re alone.

Imagine a world where we asked how someone was doing and they really told us. Imagine a world where there were no masks, only transparency when we talked to one another.

If you want to live in a world that celebrates who you are, mistakes and all, take off the mask. It doesn’t mean you have to be positive or fine all the time.

According to a Danish psychologist, Svend Brinkman, we expect each other to be happy and fine every second, and we expect it of ourselves. And that “has a dark side.”[1] Positive psychology can have its perks but not at the expense at hiding how you truly feel in order to remain seemingly positive to others.

No one can feel positive all the time and yet, that is what our culture teaches us to embrace. We have to unlearn this. That said, telling others you are ‘“fine”’ all the time is actually detrimental to your wellbeing, because it stops you from being assertive, from being authentic or your truest self.

When you acknowledge a feeling, it leads you to the problem that’s causing that feeling; and once you identify the problem, you can find a solution to it. When you hide that feeling, you stuff it way down so no one can help you.You can’t even help yourself.

Feelings are there for one reason: to be felt. That doesn’t mean you have to act on that feeling. It just means that you start the process of problem solving so you can live the life you want.

1. Embrace Your Vulnerability

When you are your true self, you can better self-advocate or stand up for what you need. Your self-expression matters, and you should value your voice. It’s okay to need things, it’s okay to speak up, and it’s okay not to be okay.

Telling someone you are simply “fine” when you are not, does your story and your journey a great disservice. Being true to yourself entails embracing all aspects of your existence.

When you bring your whole self to the table, there is nothing that you can’t beat. Here’re 7 benefits of being vulnerable you should learn.

Can you take off the mask? This is the toughest thing anyone can do. We have learned to wait until we are safe before we start to be authentic.

In relationships especially, this can be hard. Some people avoid vulnerability at any cost. And in our relationship with ourselves, we can look in the mirror and immediately put on the mask.

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It all starts with your story. You have been on your own unique journey. That journey has led you here, to the person you are today. You have to be unafraid, and embrace all aspects of that journey.

You should seek to thrive, not just survive. That means you do not have to compete or compare yourself with anyone.

Authenticity means you are enough. It’s enough to be who you are to get what you want.

What if for the first time ever, you were real? What if you said what you wanted to say, did what you wanted to do, and didn’t apologize for it?

You were assertive, forthcoming in your opinions or actions to stand for what is right for you, (rather than being passive or aggressive) in doing so. You didn’t let things get to you. You knew you had something special to offer.

That’s where we all should be.

So, answer me this:

How are you, really?

And know that no matter the answer, you should still be accepted.

Bravery is in the understanding that you still may not be accepted for your truth.

Bravery is knowing you matter even when others say that you do not.

Bravery is believing in yourself when all evidence counters doing so (i.e. past failures or losses)

Bravery is in being vulnerable while knowing vulnerability is a sign of strength.

It’s taking control.

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2. Choose Your Attitude in Adversity

You can take control of your destiny and live the life you want by being true to yourself. You can start anytime. You can start today.

You can start with one day at a time, just facing what happens that day. Most of us get overwhelmed when faced with the prospect of a big change. Even if the only thing we change is our attitude.

In one instant, you can become a different person with a change of attitude. When you take control of your attitude, you become able to better understand what is around you. This allows you to move forward.

Originally, you may have had a life plan. It could have started when you were little; you were hoping to become a mermaid, doctor, astronaut or all three when you grew up. You were hoping to be someone. You were hoping to be remembered.

You can still dream those dreams, but eventually reality sets in. Obstacles and struggles arise. You set on a different path when the last one didn’t work out. You think of all the “shoulds” in your life in living the life you want. You should be doing this…should be doing that…

Clayton Barbeau, psychologist, coined the term “shoulding yourself.’[2] When we are set on one path and find ourselves doing something different. It becomes all the things you should be doing rather than seeing the opportunities right in front of you.

But in all this disarray, did you lose sight of the real you?

It may be in our perceived failures and blunders that we lose sight of who we are, because we try to maintain position and status.

In being who we really are and achieving what we really want, we need to be resilient: How to Build Resilience to Face What Life Throws at You

It means that we do not see all possibilities of what might happen, but must trust ourselves to begin again, and continue to build the life we want. In the face of adversity, you must choose your attitude.

Can attitude overcome adversity? It certainly helps. While seeking to be true to yourself and live the life you want, you will have to face a fact:

Change will happen.

Whether that change is good or bad is unique to each person and their perspective.

You might have to start over, once, twice, a few times. It doesn’t mean that everything will be okay, but that you will be okay. What remains or should remain is the true you. When you’ve lost sight of that, you’ve lost sight of everything.

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And then, you rebuild. Moment after moment, day after day. We all have a choice, and in this moment, that matters.

You can choose to have a positive attitude, seeing the silver lining in each situation and, where there is none, the potential for one. Maybe that silver lining is you and what you will do with the situation. How will you use it for something good?

That’s how you can tap into yourself and your power. Sometimes it happens by accident, sometimes on purpose. It can happen when we aren’t even looking for it, or it can be your only focus. Everyone gets there differently.

You can rise, or you can remain. Your choice.

When the worst happens, you can rely on your authenticity to pull you through. That’s because Self Advocacy, speaking up to let others know what you need, is part of finding the real you.

There is nothing wrong with asking for help. Or sometimes, helping others can help us deal with the pain of a hurtful situation. You decide how you’re going to help others, and suddenly, you become your best self.

3. Do What Makes You Happy When No One’s Looking

Being the best version of you has nothing to do with your success or your status. It has everything to do with your Character, what you do when no one’s looking.

In order to create the life you want, you have to be the person you want to be. Faking it till you make it is just a way to white knuckle it through your journey. You have the fire inside of you to make things right, to put the pieces together, to live authentically. And Character is how you get there.

If you fall down and you help another up while you’re down there, it’s like you rise twice.

Along with attitude, your character is about the choices you make rather than what happens to you.

Yes, it’s about doing the right thing even when obstacles seem insurmountable.  It’s about using that mountain you’ve been given to show others it can be moved.  It’s about being unapologetically you, taking control, choosing your attitude in adversity and being the best version of you to create the life you want.

How do you know what you really want? Is it truly status or success?

Unfortunately, these things do not always bring happiness. And aspects of our image or “performance driven existence” may not achieve satisfaction. Materialism is part of our refusal to accept ourselves as enough. All the things we use to repress our true selves are about being enough.

“Enoughness” is what we truly seek, but ego gets in the way.

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Ego is the perception of self as outer worth. It’s not REAL self worth.

Ego represses our true self with a new self— the self of chasing ‘“Am I ever enough?”’ questions. And instead of filling our true selves with self-love and acceptance, when we “should ourselves” and chase “enoughness,” we feed the ego or our image.

It’s important to realize YOU ARE ENOUGH, without all the material trappings.

Stanford psychologist Meagan O’Reilly describes the damage of not thinking we are enough. One of her tactics for combating this is to complete the sentence,[3]

“If I believed I were already enough, I’d ____”

What would you do if you felt you were enough?

By believing you are enough, you can live the life you want.

So many fake it to try to get there, and they end up losing themselves when they lose more and more touch with their Authenticity.

Final Thoughts

By being yourself, you are being brave. By acknowledging all you can be, you tell the universe that you can until you believe it too. The steps are easy, and you are worth it. All of it is about the purpose you are leading and the passion that is your fuel.

Being true to yourself is all about mastering how to live life authentically rather than faking or forcing it. Having the life you want (and deserve) is about being trusting in yourself and the purpose you are living for. Both need passion behind it, fueling it each second, or you will experience burn out.

When you are authentic, you can call the road you walk your own. When you live your life for you and not just the results of all your actions (faking it till you make it), you can let go of what you don’t need. This clarifies and pushes purpose to you, living for something that is greater than you.

You will find that making decisions based on what will actually achieve your goals, will help you attain the life you want, and your success with each step, will allow you to enjoy the process. Good luck!

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Featured photo credit: Ariana Prestes via unsplash.com

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