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10 Things You May Not Know About MS (Multiple Sclerosis)

10 Things You May Not Know About MS (Multiple Sclerosis)

Do you know much about multiple sclerosis? If you do, it may be because you know someone who has it. I have a family member I’m fairly close with who has it and have heard from her about her condition for over ten years as it took control of her life. I’ve watched videos, read articles about promising treatments, and did some research. Sometimes what doctors and scientists don’t know is more alarming than what they do know. Right now, there are only treatments, no cures, and over 2.3 million people diagnosed to have multiple sclerosis.

But even if you are familiar with MS, here are 10 things you likely do not know. Share the knowledge. Awareness is a step toward a cure.

1.  There are 4 types of MS, but people will exhibit symptoms that are individual to them.

There are 4 types of disease courses identified in multiple sclerosis: relapsing-remitting MS (RRMS), primary-progressive MS (PPMS), secondary-progressive MS (SPMS), and progressive-relapsing MS. Within each “course,” there are varying degrees of severity. One person may be high functioning while another person with the same course could be considered disabled. Some people with the most severe symptoms in a course might need a caretaker. Regardless of being diagnosed with the same course of MS, the symptoms will be individual to each person. One person may experience severe memory loss while another person can lose control of their bladder intermittently while having some memory loss. Some people experience tremors. Others may experience blindness.

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2.  MS symptoms can be exacerbated.

Have you ever got a headache that worsened with noise? Or do you seem to get neck pain only when you have to take a test? Some stress has exacerbated your pain. MS symptoms can be manageable, like a light headache, but then they can be worsened when the sufferer experiences warmer than comfortable temperatures or when confronted by people that emotionally threaten them in some way. They experience stress acutely. A once sociable person may not be able to suffer the company of more than one person at a time or only can stand the company of people who are considerate about their condition. Stressful events, like an unpleasant medical procedure, can worsen symptoms. This is called exacerbation. It is life altering.

3.  MS is difficult to diagnose and can take YEARS to rule in while ruling out other possibilities.

Yes, I thought a doctor could just look at some blood samples and ask some questions and make some observations and then POOF! you’d have your diagnosis. No. It actually can be a long process. Doctors unfamiliar with MS as well as doctors who are familiar with it can take a long time making a proper diagnosis. And remember, there are varying types of MS called “courses” and each has varying degrees of severity. Then you have each person with their individual symptoms. So while people may guess a person has MS, there are blood tests and biopsies that have to be done by specialists who know what they are supposed to be ruling out before they can rule in MS. It can, and often does, take years to diagnose. MRI (a brain scan) is used to diagnose 90% of all cases at this point in time, but it is still just one of many tests that have to be completed. The MRI only shows swelling.

4.  MS can’t be cured; symptoms can only be lessened and treatments can be extreme.

Although experimental treatments and hopeful research for a cure make headlines, there are no headlines for the fact that people get the disease and then can only hope to manage symptoms and hope to lessen them. If a person with MS is lucky, their MS will lighten up for long periods of time or seem to disappear. It never goes away, but it does not get worse. If the person is unlucky, they get hit hard, don’t get any periods of relief, and continue to worsen even with medication and chemo treatments. The person I have in my life went as far as to have her eye muscles cut so her eyes would stop shaking. The shaking, after doing other treatments, including chemo, had not subsided and she was sick to her stomach from the constant eye movement. Other treatments to stop tremors have included the injection of a neurotoxin to cause partial or complete paralysis of specific muscles; this was done in an effort to regain control so she could walk more confidently and not suffer dizziness and nausea. She was able to gain some quality of life back, however, she never regained full function of anything affected by the MS.

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5.  MS symptoms can come and go over a lifetime.

You may think you know your own MS, but then it can suddenly change. You may regain bladder control, but then your short term memory really starts to fail you so you can’t remember who you just talked to on the phone. Then, just as suddenly, it can switch back. You may even feel you can walk without the assistance of a walker for days, then suddenly, wham! you fall just walking down the hall. You just don’t know how things are going to change. The unpredictability and loss of control are emotionally hard on even the most even-tempered of people. One day you can see or write your name, then suddenly you can’t do either, and you don’t know why. It just happens. Not only do the changing symptoms and severity make it hard to diagnose, but it makes it hard to predict the future. How much help could a person need? How independent can they live?

6.  Pain and sleeplessness are common symptoms of MS.

Over 50% of MS sufferers have pain and sleeplessness which exacerbate symptoms. They increase MS’s symptoms’ severity, then in turn, the pains, including headaches like migraines, and sleeplessness, get worse. Keeping cool and taking naps, avoiding stimulation and exertion, become critical. What is also critical is taking things to help the person sleep and be in less pain. The management of MS is ceaseless.

7.  MS is expensive.

I think the thing many people don’t ingest about chronic illnesses is the expense. To make it real, you need to understand that it costs $20,000 to $30,000 a year. That is more money a year than many earn as a salary. A full-time school teacher can start at $35,000. Thirty-thousand is the cost of a nice, new car. It is a down payment on a house. And that only covers the medications. People try to qualify for assistance any way they can, and some volunteer to be test subjects of new, experimental treatments. Their bodies and their income are ruled by MS once it takes over. Some continue to work; others will not be able to work. Those suffering the severe courses of MS will no longer have money for the luxuries others take for granted like specialty coffees, cell phones, and television. But then again, they may have had to stop drinking coffee because of caffeine. They may not be able to see the cell phone to dial a number. They may not be able to see the tv to turn it on.

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8.  MS changes what you can and should eat.

A healthy diet can help everyone, maybe especially those with MS, however, it becomes extreme for MS sufferers. because they become super-sensitive to caffeine, preservatives, fats, sodium, and other not-so-good things. It also gets theoretical, with fad or faux recommendations that hype super foods for curing or cursing a person’s internal systems making it harder for people to make sound decisions by confusing them. But the truth is, foods affect each person on an individual basis and there is no study that can say this diet is going to help or hurt. Just eat healthy is what all articles of substance say, and know that the person with MS ultimately will have to be the best judge of how processed food, sweets, and caffeine are effecting them. Here is a thread on the web that demonstrates how varied MS sufferers’ reactions to caffeine can be;  some people were even helped by coffee consumption while others were hurt by it.

9.  Exercise is critical for people with MS.

It is good for everyone to get regular exercise, point blank, but people with MS have got to exercise like their lives depend on it because it does. To retain a quality of life with less pain, more sleep, and more mobility without assistance, people with MS have to exercise regularly. It isn’t comfortable or easy. It is far from it. But the cost of not exercising is too steep because it is like opening the gate wide to MS and allowing it to walk all over you. And that brings me to number 10, people with MS have to become fighters.

10.  People with MS have to be fighters or become fighters.

The reality is that MS will make its presence known and its power felt at every opportunity. MS is a ravenous enemy. It wants total control of the body and doesn’t care how miserable the person becomes. It even thrives on the person’s frustration, anger, and depression. It blooms. It consumes strength faster as the muscles atrophy. It disrupts sleep so the person’s thinking becomes more confused, repetitive, and incomplete. It unhinges emotions so that tears and laughter erupt with less control. People with MS have to get up every day resolved to eat well, exercise regularly, rest often, and keep a regular schedule that can include weekly doctor appointments. They become dependent on a healthy routine to keep them safe from the enemy. They need friends, family, and medical professionals to support them in their daily battles.

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When it comes to chronic illnesses like MS, I would be surprised if someone could deal with it alone. MS steals away independence and self-control. But people are raising awareness, raising money, and working to find a cure. To learn more about how you can help, visit the Get Involved page of the National Multiple Sclerosis Society website.

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Last Updated on July 3, 2020

How to Control Your Thoughts and Be the Master of Your Mind

How to Control Your Thoughts and Be the Master of Your Mind

Your mind is the most powerful tool you have for the creation of good in your life, but if not used correctly, can also be the most destructive force in your life. To control your thoughts means to influence the way you live your life.

Your mind, more specifically, your thoughts, affects your perception and therefore, your interpretation of reality. (And here’s Why Your Perception Is Your Reality)

I have heard that the average person thinks around 70,000 thoughts a day. That’s a lot, especially if they are unproductive, self-abusive, and just a general waste of energy.

You can let your thoughts run amok, but why would you? It is your mind, your thoughts; isn’t it time to take your power back? Isn’t it time to take control?

Choose to be the person who is actively, consciously thinking your thoughts. Be someone who can control your thoughts—become the master of your mind.

When you change your thoughts, you will change your feelings as well, and you will also eliminate the triggers that set off those feelings. Both of these outcomes provide you with a greater level of peace in your mind.

I currently have a few thoughts that are not of my choosing or a response from my reprogramming. I am the master of my mind, so now my mind is quite peaceful. Yours can be too!

Who Is Thinking My Thoughts?

Before you can become the master of your mind, you must recognize that you are currently at the mercy of several unwanted “squatters” living in your mind, and they are in control of your thoughts.

If you want to be the boss of them, you must know who they are and what their motivation is, and then you can take charge and evict them.

Here are four of the “squatters” in your head that create unhealthy and unproductive thoughts.

1. The Inner Critic

This is your constant abuser who is often a conglomeration of:

  • Other people’s words—many times your parents
  • Thoughts you have created based on your own or other peoples’ expectations
  • Comparing yourself to other people, including those in the media
  • The things you told yourself as a result of painful experiences such as betrayal and rejection. Your interpretation creates your self-doubt and self-blame, which are most likely undeserved in cases of rejection and betrayal.

The Inner Critic is motivated by pain, low self-esteem, lack of self-acceptance, and lack of self-love.

Why else would this person abuse you? And since this person is youwhy else would you abuse yourself? Why would you let anyone treat you this badly?

2. The Worrier

This person lives in the future—in the world of “what ifs.”

The Worrier is motivated by fear, which is often irrational and has no basis. Occasionally, this person is motivated by fear that what happened in the past will happen again.

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3. The Reactor or Troublemaker

This is the one that triggers anger, frustration, and pain. These triggers stem from unhealed wounds of the past. Any experience that is even closely related to a past wound will set him off.

This person can be set off by words or feelings and can even be set off by sounds and smells.

The Reactor has no real motivation and has poor impulse control. He is run by past programming that no longer serves you—if it ever did.

4. The Sleep Depriver

This can be a combination of any number of different squatters including the inner planner, the rehasher, and the ruminator, along with the inner critic and the worrier.

The Sleep Depriver’s motivation can be:

  • As a reaction to silence, which he fights against
  • Taking care of the business you neglected during the day
  • Self-doubt, low self-esteem, insecurity, and generalized anxiety
  • As listed above for the inner critic and worrier

How can you control these squatters?

How to Master Your Mind

You are the thinker and the observer of your thoughts. You can control your thoughts, but you must pay attention to them so you can identify “who” is running the show—this will determine which technique you will want to use.

Begin each day with the intention of paying attention to your thoughts and catching yourself when you are thinking undesirable thoughts.

There are two ways to control your thoughts:

  • Technique A – Interrupt and replace them
  • Technique B – Eliminate them altogether

This second option is what is known as peace of mind.

The technique of interrupting and replacing is a means of reprogramming your subconscious mind. Eventually, the replacement thoughts will become the “go-to” thoughts in applicable situations.

Use Technique A with the Inner Critic and Worrier and Technique B with the Reactor and Sleep Depriver.

1. For the Inner Critic

When you catch yourself thinking something negative about yourself (calling yourself names, disrespecting yourself, or berating yourself), interrupt it.

You can yell (in your mind), “Stop! No!” or, “Enough! I’m in control now.” Then, whatever your negative thought was about yourself, replace it with an opposite or counter thought or an affirmation that begins with “I am.”

For example, if your thought is, “I’m such a loser,” you can replace it with, “I am a Divine Creation of the Universal Spirit. I am a perfect spiritual being learning to master the human experience. I am a being of energy, light, and matter. I am magnificent, brilliant, and beautiful. I love and approve of myself just as I am.”

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You can also have a dialogue with yourself to discredit the ‘voice’ that created the thought—if you know whose voice it is:

“Just because so-and-so said I was a loser doesn’t make it true. It was his or her opinion, not a statement of fact. Or maybe they were joking and I took it seriously because I’m insecure.”

If you recognize that you have recurring self-critical thoughts, you can write out or pre-plan your counter thoughts or affirmation so you can be ready.

This is the first squatter you should evict, forcefully, if necessary:

  • They rile up the Worrier.
  • The names you call yourself become triggers when called those names by others, so he also maintains the presence of the Reactor.
  • They are often present when you try to fall asleep so he perpetuates the Sleep Depriver.
  • They are a bully and is verbally and emotionally abusive.
  • They are the destroyer of self-esteem. They convince you that you’re not worthy. They’re a liar! In the interest of your self-worth, get them out!

Eliminate your worst critic and you will also diminish the presence of the other three squatters.

Replace them with your new best friends who support, encourage, and enhance your life. This is a presence you want in your mind.

2. For the Worrier

Prolonged anxiety is mentally, emotionally, and physically unhealthy. It can have long-term health implications.

Fear initiates the fight or flight response, creates worry in the mind, and creates anxiety in the body. This may make it more difficult for you to control your thoughts effectively.

You should be able to recognize a “worry thought” immediately by how you feel. The physiological signs that the fight or flight response of fear has kicked in are:

  • Increased heart rate, blood pressure, or surge of adrenaline
  • Shallow breathing or breathlessness
  • Muscles tense

Use the above-stated method to interrupt any thought of worry and then replace it. But this time, you will replace your thoughts of worry with thoughts of gratitude for the outcome you wish for.

If you believe in a higher power, this is the time to engage with it. Here is an example:

Instead of worrying about my loved ones traveling in bad weather, I say the following (I call it a prayer):

“Thank you great spirit for watching over _______. Thank you for watching over his/her car and keeping it safe, road-worthy, and free of maintenance issues without warning. Thank you for surrounding him/her with only safe, conscientious, and alert drivers. And thank you for keeping him/her safe, conscientious, and alert.”

Smile when you think about it or say it aloud, and phrase it in the present tense. Both of these will help you feel it and possibly even start to believe it.

If you can visualize what you are praying for, the visualization will enhance the feeling so you will increase the impact in your vibrational field.

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Now, take a calming breath, slowly in through your nose, and slowly out through the mouth. Take as many as you like! Do it until you feel that you’re close to being in control of your thoughts.

Replacing fearful thoughts with gratitude will decrease reactionary behavior, taking the steam out of the Reactor.

For example: If your child gets lost in the mall, the typical parental reaction that follows the fearful thoughts when finding them is to yell at them.

“I told you never to leave my sight.” This reaction just adds to the child’s fear level from being lost in the first place.

Plus, it also teaches them that mom and/or dad will get mad when he or she makes a mistake, which may make them lie to you or not tell you things in the future.

Change those fearful thoughts when they happen:

“Thank You (your choice of Higher Power) for watching over my child and keeping him safe. Thank you for helping me find him soon.”

Then, when you see your child after this thought process, your only reaction will be gratitude, and that seems like a better alternative for all people involved.

3. For the Troublemaker, Reactor or Over-Reactor

Permanently eliminating this squatter will take a bit more attention and reflection after the fact to identify and heal the causes of the triggers. But until then, you can prevent the Reactor from getting out of control by initiating conscious breathing as soon as you recognize his presence.

The Reactor’s thoughts or feelings activate the fight or flight response just like with the Worrier. The physiological signs of his presence will be the same. With a little attention, you should be able to tell the difference between anxiety, anger, frustration, or pain.

I’m sure you’ve heard the suggestion to count to ten when you get angry—well, you can make those ten seconds much more productive if you are breathing consciously during that time.

Conscious breathing is as simple as it sounds—just be conscious of your breathing. Pay attention to the air going in and coming out.

Breathe in through your nose:

  • Feel the air entering your nostrils.
  • Feel your lungs filling and expanding.
  • Focus on your belly rising.

Breathe out through your nose:

  • Feel your lungs emptying.
  • Focus on your belly falling.
  • Feel the air exiting your nostrils.

Do this for as long as you like. Leave the situation if you want. This gives the adrenaline time to normalize. Now, you can address the situation with a calmer, more rational perspective and avoid damaging behavior, and you’ll be more in control of your thoughts.

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One of the troubles this squatter causes is that it adds to the sleep depriver’s issues. By evicting or at least controlling the Reactor, you will decrease reactionary behavior, which will decrease the need for the rehashing and ruminating that may keep you from falling asleep.

Master your mind and stop the Reactor from bringing stress to you and your relationships!

4. For the Sleep Depriver

(They’re made up of the Inner Planner, the Rehasher, and the Ruminator, along with the Inner Critic and the Worrier.)

I was plagued with a very common problem: not being able to turn off my mind at bedtime. This inability prevented me from falling asleep and thus, getting a restful and restorative night’s sleep.

Here’s how I mastered my mind and evicted the Sleep Depriver and all his cronies.

  1. I started by focusing on my breathing—paying attention to the rise and fall of my belly—but that didn’t keep the thoughts out for long. (Actually, I now start with checking my at-rest mouth position to keep me from clenching.)
  2. Then I came up with a replacement strategy that eliminated uncontrolled thinking—imagining the word in while breathing in and thinking the word out when breathing out. I would (and do) elongate the word to match the length of my breath.

When I catch myself thinking, I shift back to in, out. With this technique, I am still thinking, sort of, but the wheels are no longer spinning out of control. I am in control of my mind and thoughts, and I choose quiet.

From the first time I tried this method, I started to yawn after only a few cycles and am usually asleep within ten minutes.

For really difficult nights, I add an increase of attention by holding my eyes in a looking-up position (closed, of course). Sometimes I try to look toward my third eye but that really hurts my eyes.

If you have trouble falling asleep because you can’t shut off your mind, I strongly recommend you try this technique. I still use it every night. You can start sleeping better tonight!

You can also use this technique any time you want to:

  • Fall back to sleep if you wake up too soon
  • Shut down your thinking
  • Calm your feelings
  • Simply focus on the present moment

The Bottom Line

Your mind is a tool, and like any other tool, it can be used for constructive purposes or destructive purposes.

You can allow your mind to be occupied by unwanted, undesirable, and destructive tenants, or you can choose desirable tenants like peace, gratitude, compassion, love, and joy.

Your mind can become your best friend, your biggest supporter, and someone you can count on to be there and encourage you. You can be in control of your thoughts. The choice is yours!

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Featured photo credit: Priscilla Du Preez via unsplash.com

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