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10 Things You May Not Know About MS (Multiple Sclerosis)

10 Things You May Not Know About MS (Multiple Sclerosis)
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Do you know much about multiple sclerosis? If you do, it may be because you know someone who has it. I have a family member I’m fairly close with who has it and have heard from her about her condition for over ten years as it took control of her life. I’ve watched videos, read articles about promising treatments, and did some research. Sometimes what doctors and scientists don’t know is more alarming than what they do know. Right now, there are only treatments, no cures, and over 2.3 million people diagnosed to have multiple sclerosis.

But even if you are familiar with MS, here are 10 things you likely do not know. Share the knowledge. Awareness is a step toward a cure.

1.  There are 4 types of MS, but people will exhibit symptoms that are individual to them.

There are 4 types of disease courses identified in multiple sclerosis: relapsing-remitting MS (RRMS), primary-progressive MS (PPMS), secondary-progressive MS (SPMS), and progressive-relapsing MS. Within each “course,” there are varying degrees of severity. One person may be high functioning while another person with the same course could be considered disabled. Some people with the most severe symptoms in a course might need a caretaker. Regardless of being diagnosed with the same course of MS, the symptoms will be individual to each person. One person may experience severe memory loss while another person can lose control of their bladder intermittently while having some memory loss. Some people experience tremors. Others may experience blindness.

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2.  MS symptoms can be exacerbated.

Have you ever got a headache that worsened with noise? Or do you seem to get neck pain only when you have to take a test? Some stress has exacerbated your pain. MS symptoms can be manageable, like a light headache, but then they can be worsened when the sufferer experiences warmer than comfortable temperatures or when confronted by people that emotionally threaten them in some way. They experience stress acutely. A once sociable person may not be able to suffer the company of more than one person at a time or only can stand the company of people who are considerate about their condition. Stressful events, like an unpleasant medical procedure, can worsen symptoms. This is called exacerbation. It is life altering.

3.  MS is difficult to diagnose and can take YEARS to rule in while ruling out other possibilities.

Yes, I thought a doctor could just look at some blood samples and ask some questions and make some observations and then POOF! you’d have your diagnosis. No. It actually can be a long process. Doctors unfamiliar with MS as well as doctors who are familiar with it can take a long time making a proper diagnosis. And remember, there are varying types of MS called “courses” and each has varying degrees of severity. Then you have each person with their individual symptoms. So while people may guess a person has MS, there are blood tests and biopsies that have to be done by specialists who know what they are supposed to be ruling out before they can rule in MS. It can, and often does, take years to diagnose. MRI (a brain scan) is used to diagnose 90% of all cases at this point in time, but it is still just one of many tests that have to be completed. The MRI only shows swelling.

4.  MS can’t be cured; symptoms can only be lessened and treatments can be extreme.

Although experimental treatments and hopeful research for a cure make headlines, there are no headlines for the fact that people get the disease and then can only hope to manage symptoms and hope to lessen them. If a person with MS is lucky, their MS will lighten up for long periods of time or seem to disappear. It never goes away, but it does not get worse. If the person is unlucky, they get hit hard, don’t get any periods of relief, and continue to worsen even with medication and chemo treatments. The person I have in my life went as far as to have her eye muscles cut so her eyes would stop shaking. The shaking, after doing other treatments, including chemo, had not subsided and she was sick to her stomach from the constant eye movement. Other treatments to stop tremors have included the injection of a neurotoxin to cause partial or complete paralysis of specific muscles; this was done in an effort to regain control so she could walk more confidently and not suffer dizziness and nausea. She was able to gain some quality of life back, however, she never regained full function of anything affected by the MS.

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5.  MS symptoms can come and go over a lifetime.

You may think you know your own MS, but then it can suddenly change. You may regain bladder control, but then your short term memory really starts to fail you so you can’t remember who you just talked to on the phone. Then, just as suddenly, it can switch back. You may even feel you can walk without the assistance of a walker for days, then suddenly, wham! you fall just walking down the hall. You just don’t know how things are going to change. The unpredictability and loss of control are emotionally hard on even the most even-tempered of people. One day you can see or write your name, then suddenly you can’t do either, and you don’t know why. It just happens. Not only do the changing symptoms and severity make it hard to diagnose, but it makes it hard to predict the future. How much help could a person need? How independent can they live?

6.  Pain and sleeplessness are common symptoms of MS.

Over 50% of MS sufferers have pain and sleeplessness which exacerbate symptoms. They increase MS’s symptoms’ severity, then in turn, the pains, including headaches like migraines, and sleeplessness, get worse. Keeping cool and taking naps, avoiding stimulation and exertion, become critical. What is also critical is taking things to help the person sleep and be in less pain. The management of MS is ceaseless.

7.  MS is expensive.

I think the thing many people don’t ingest about chronic illnesses is the expense. To make it real, you need to understand that it costs $20,000 to $30,000 a year. That is more money a year than many earn as a salary. A full-time school teacher can start at $35,000. Thirty-thousand is the cost of a nice, new car. It is a down payment on a house. And that only covers the medications. People try to qualify for assistance any way they can, and some volunteer to be test subjects of new, experimental treatments. Their bodies and their income are ruled by MS once it takes over. Some continue to work; others will not be able to work. Those suffering the severe courses of MS will no longer have money for the luxuries others take for granted like specialty coffees, cell phones, and television. But then again, they may have had to stop drinking coffee because of caffeine. They may not be able to see the cell phone to dial a number. They may not be able to see the tv to turn it on.

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8.  MS changes what you can and should eat.

A healthy diet can help everyone, maybe especially those with MS, however, it becomes extreme for MS sufferers. because they become super-sensitive to caffeine, preservatives, fats, sodium, and other not-so-good things. It also gets theoretical, with fad or faux recommendations that hype super foods for curing or cursing a person’s internal systems making it harder for people to make sound decisions by confusing them. But the truth is, foods affect each person on an individual basis and there is no study that can say this diet is going to help or hurt. Just eat healthy is what all articles of substance say, and know that the person with MS ultimately will have to be the best judge of how processed food, sweets, and caffeine are effecting them. Here is a thread on the web that demonstrates how varied MS sufferers’ reactions to caffeine can be;  some people were even helped by coffee consumption while others were hurt by it.

9.  Exercise is critical for people with MS.

It is good for everyone to get regular exercise, point blank, but people with MS have got to exercise like their lives depend on it because it does. To retain a quality of life with less pain, more sleep, and more mobility without assistance, people with MS have to exercise regularly. It isn’t comfortable or easy. It is far from it. But the cost of not exercising is too steep because it is like opening the gate wide to MS and allowing it to walk all over you. And that brings me to number 10, people with MS have to become fighters.

10.  People with MS have to be fighters or become fighters.

The reality is that MS will make its presence known and its power felt at every opportunity. MS is a ravenous enemy. It wants total control of the body and doesn’t care how miserable the person becomes. It even thrives on the person’s frustration, anger, and depression. It blooms. It consumes strength faster as the muscles atrophy. It disrupts sleep so the person’s thinking becomes more confused, repetitive, and incomplete. It unhinges emotions so that tears and laughter erupt with less control. People with MS have to get up every day resolved to eat well, exercise regularly, rest often, and keep a regular schedule that can include weekly doctor appointments. They become dependent on a healthy routine to keep them safe from the enemy. They need friends, family, and medical professionals to support them in their daily battles.

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When it comes to chronic illnesses like MS, I would be surprised if someone could deal with it alone. MS steals away independence and self-control. But people are raising awareness, raising money, and working to find a cure. To learn more about how you can help, visit the Get Involved page of the National Multiple Sclerosis Society website.

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Last Updated on July 12, 2021

100 Incredible Life Hacks That Make Life So Much Easier

100 Incredible Life Hacks That Make Life So Much Easier
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Want to learn some quick and easy life hacks that are easy to do, low cost and saves you time?

By tweaking little things in your daily life, it can make your life much more convenient!

Here’re 100 of the most practical life hacks so you can just pick up any of them right away!

83 tie a small piece of bright colored fabric

    84 write random letter

      85 use a rubberband

        86 dorm smell bad

          87 lean your phone on your sunglassess

            89 how to waterproof your shoes

              90 take a picture of the name card

                91 iron inside out

                  92 old newspaper

                    93 tumble try shoes

                      keep a card like this

                        SONY DSC

                          94 soap bar

                            95 make a hole

                              96 drop the battery

                                97 use a coozie

                                  98 when taking a picture

                                    use a clean dust pan

                                      try a pants hanger

                                        use your cellphone light

                                          use a spring from an old pen

                                            quick and easy iphone speaker

                                              user binder clips

                                                wrap a wet paper towel around your beverage

                                                  put pancake mix in a ketchup bottle

                                                    clean out an old lotion bottle for your beach

                                                      use a muffin tin to serve condiments at a bbq

                                                        doritos are great for kindling

                                                          use nail polish to identify different keys

                                                            use a hanging shoe rack to store cleaning supplies

                                                              freeze grapes to chill white wine without

                                                                use paper clips to organize your cables

                                                                  almost finished your jar of nutella

                                                                    sick of having a box full of tangled

                                                                      unroll the rim to increase the capacity

                                                                        cut open toilet paper rolls and use as a cuff

                                                                          remove the stem from strawberries

                                                                            turn an old bottle into a simple little cord holder

                                                                              for iced coffee and iced cappuccino, use frozen coffee cubes

                                                                                how to fold a fitted bed sheet

                                                                                  tired of snoozing past your alarm

                                                                                    place a rubber band around an open paint can to wipe your brush on

                                                                                      ut a wooden spoon across a boiling pot

                                                                                        use bread clips to save flip-flops

                                                                                          take pictures of friends holding items

                                                                                            how i always know which headphone is the left one

                                                                                              put a stocking over the end of a vacuum

                                                                                                How to make sure you drink enough water

                                                                                                  user a can opener to open blister

                                                                                                    good sandwich guide

                                                                                                      turn your muffin pans upside down

                                                                                                        50 pounds of groceries and living on the 5th floor

                                                                                                          the right way to make a blt

                                                                                                            add one teaspoon of baking soda

                                                                                                              38

                                                                                                                hair straighteners equals to collar irons

                                                                                                                  stack your clothes vertically to see them all

                                                                                                                    the right way to make cookies in the summer

                                                                                                                      how to clean a blender

                                                                                                                        the right way to eat a popsicle

                                                                                                                          use bread clips to label and organize power cords

                                                                                                                            to get the built up residue off of your shower head

                                                                                                                              user a hair clip to orgainize long wires

                                                                                                                                a frozen saturated sponge in a bag

                                                                                                                                  rub stuck zipper teeth with a graphite pencil

                                                                                                                                    use a soda pop tab

                                                                                                                                      50

                                                                                                                                        51 How to multiply large numbers in your head.

                                                                                                                                          52 How to open a bottle if you dont have a corkscrew.

                                                                                                                                            rub a walnut on damaged wooden furniture

                                                                                                                                              kids fall out of bed

                                                                                                                                                use toothpaste to clear up hazy car

                                                                                                                                                  58

                                                                                                                                                    59 keep pizza out while driving home

                                                                                                                                                      60 put your straw through the tab to keep it from rising

                                                                                                                                                        hold oreos with a fork so your fingers

                                                                                                                                                          Never lose your remotes again

                                                                                                                                                            hiding your emergency money

                                                                                                                                                              use a bread tab to hold your spot on a roll

                                                                                                                                                                if you are at a hotel and run out of chargers

                                                                                                                                                                  keep a square of cardboard in a ziplock bag

                                                                                                                                                                    If you need to pee or smoke at a bar

                                                                                                                                                                      drill holes in the bottom of your garbage

                                                                                                                                                                        use an accented letter as your passcode

                                                                                                                                                                          use a squeeze ketchup bottle top with your shopvac

                                                                                                                                                                            do something unusual when locking the door

                                                                                                                                                                              when heating leftovers space out a circle in the middle

                                                                                                                                                                                dont burn yourself in those hard to reach candles

                                                                                                                                                                                  put a small amount of water in a glass when you microwave your pizza

                                                                                                                                                                                    75 use a piece of paper to organize

                                                                                                                                                                                      use half a pool noodle

                                                                                                                                                                                        pencil case to store cables

                                                                                                                                                                                          78 clothespin to hold nail

                                                                                                                                                                                            79 make blts

                                                                                                                                                                                              80 take a picture of your fridge

                                                                                                                                                                                                81 fill plastic water bottles

                                                                                                                                                                                                  82 right ways to eat chips

                                                                                                                                                                                                    99 if your plug keeps failing

                                                                                                                                                                                                      100 put the banana on the wire

                                                                                                                                                                                                        88 before you throw away a post it

                                                                                                                                                                                                          Source: Reddit LifeProTips

                                                                                                                                                                                                          There you go, 100 awesome life hacks that you can try right now to make your life a lot easier!

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