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16 Things People With Chronic Pain Wanna Tell You

16 Things People With Chronic Pain Wanna Tell You

It’s not just in our head. The pain is there and always would be even if there is no apparent reason for it. Our pain is real and will not just go away after we take some pills for a week or two. It would always be there and we have learned to live with it. Here are 16 more things we wish you knew about us!

1. We Don’t Make a Mountain out a of Molehill

You think you can imagine our pain? Now multiply that amount by 10. No matter how sympathetic you are, studies have proved that people tend to underestimate other people’s pain. Chronic pain by default is hard to imagine unless you have experienced it in your life. It’s invisible, but it is always there. We urge health care not out of hypochondria or the need for attention, but because of our severe physical state.

2. We Need to Balance Actions Carefully

We use the Spoon Theory: We have a limited amount of spoons each day we could use for different actions. Getting up, getting dressed, taking a shower, driving, walking, picking up the phone — each action requires us to use one of our precious spoons. On good days, we finish with a few spoons left, so we can do something fun. On bad days, we borrow spoons from the next day and need extra recovery afterwards. So if we suddenly cancel our plans with you or tell we can’t do it now — it’s just because we ran out of spoons today. Try to understand this.

3. We Struggle to Find a Good Doctor

Sadly, a lot of health care pros lack knowledge in pain management because it is rarely part of their training. We often visit numerous specialists before receiving a proper diagnosis and wait months to years to see a real pain specialist for treatment. Doctors often fall victim to the cognitive error of underestimating another’s pain and a small number of doctors are willing to take the legal risks involved in prescribing powerful pain pills.

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Same goes with the nurses. Finding a good one who can really understand and help us relieve the pain is hard! Luckily, there are some online schools like Sacred Heart University that are training future nurse leaders to overcome these issues in the future and provide better care for patients.

While you may think it’s crazy, we’re willing to travel further to find a good nurse with this kind of training and rave about it when we find one.

4. We Are Not Lazy

Remember the limited amount of spoons we have? Now add the fact that it takes twice as much effort for us to complete even simple things. We try harder than other folks, yet we still manage to accomplish less.

5. We Try to Look Our Best

“But you don’t look sick” is one of the most common phrases you hear if you have invisible disease. Well yes, we try to look our best even on bad days when our body explodes from pain. We dress up carefully to cover up our bruises or swelling, take painkillers at the optimal time, and rest before going out. We would love to pass as normal as much as possible! Even if we feel pain, we would keep it to ourselves until the moment we step into our apartment and just collapse.

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6. We Don’t Ignore You

Sometimes our pain occupies too much space in our brains and we simply cannot focus on anything else. Pain can be very distracting and mentally draining, so please forgive us when we can’t give all the attention to you.

7. We Know Our Illness Won’t Go Away

It’s always there. We can’t escape. And yes, we have researched all the possible options. If there was a cure, we would know about it!

8. We Are Not Drug Seekers

Sadly, we need to explain that both to the doctors and folks around. We don’t want drugs. We want anything to make the pain go away even for a little while. So yes, sometimes our treatment requires taking opioids or medical marijuana. We treat those just like any other remedy. And no, we are not particularly fond of the side effects either.

In fact, as the Cleveland Clinic explains: Addiction appears to be distinctly uncommon in patients without a prior history of addiction. Addiction is a psychological phenomenon that isn’t caused by chemical components of the drugs and typically requires a setting different from the one we have. We take our drugs under supervision and come back home to the loving family unlike the street-users.

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9. We Don’t Always Know How to Manage Our Pain

Just because we have been dealing with it for ages doesn’t mean we always know how to tame it. Sometimes, we have very bad days when no previous routines help. We just close our eyes and wish those would pass faster.

10. We Get Super Active on Good Days

Physically feeling good is just about the most exciting feeling we can have! We can do our chores normally, go on a day trip, meet with a bunch of people at a time, and even think of running a marathon. On a good day we are super active and excited with everything, trying to get as much done as possible!

11. We Don’t Want You to Stop Inviting Us Out

No matter how many times we have said “no” we still want to be part of the gang and go out when we really can do it.

12. We Don’t Have a Job for a Reason

Again, we are not lazy. It’s just that we often lack spoons to work on the top of our other activities and daily chores. Besides, most employees refuse to take staff for a few hours per week and tolerate the fact that we can leave at the middle of the day if our pain gets unbearable.

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On the bright side though, thanks to technology we can work from home in our own pace, doing various jobs online, selling stuff on eBay or Etsy, learn everything we need from self-help and nursing to design or coding online. If we don’t have a regular job, it doesn’t mean we can accomplish nothing in life. Multiple sclerosis did not stop Vanessa Heywood from creating an award-winning music company!

13. We Don’t Want Sympathy, We Want Acceptance

Instead of making that “I’m so sorry for you” sad face, treat us like equals. It’s not that you should completely ignore our condition, but show us you are ok with it and ready to make small adjustments for us.

14. We Don’t Want Your Medical Advice

Believe me, we have heard enough already and feel frustrated, as they don’t work. Thanks for the thought, but let’s just talk of something else. My disease does not define me. I know a lot of other interesting things, I would love to discuss with you instead.

15. We Need to Know You Are Here for Us

No matter how self-sufficient and independent we try to appear, sometimes we just need you to be here with us and hold our hand on a bad day.

16. We Appreciate You and Everything You Do for Us

You should never forget that. We are eternally grateful for supporting us and making us feel loved!

Featured photo credit: carianoff via flickr.com

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Last Updated on August 15, 2018

When You Start to Enjoy Being Single, These 12 Things Will Happen

When You Start to Enjoy Being Single, These 12 Things Will Happen

Being single can make you weary, especially if you didn't initiate a breakup, it could be easy to get carried away with reminiscing and what-if scenarios. Staying caught up in the past is toxic to your growth, however, and interferes with your ability to move forward. Single life can be self-actualizing and enjoyable, but you need to embrace it first. No matter where you are on your journey in coming to terms with being single, the following 12 fantastic things will happen when you accept it.

Video Summary

1. You will be more focused.

    Once you start to treasure your new-found freedom, you will realize that taking time for yourself will show you what is most important in your life. Enjoying your single time will make what you want clearer and reveal which areas of your life you should build upon. Additionally, studies show that experiencing something alone results in our brain forming a more clear and longer lasting memory.

    2. You will be more active.

      Studies show that unmarried people are also more fit than their hitched counterparts. Let yourself welcome being single, and use this time to your benefit. You'll be more confident and in control when you do meet someone special.

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      3. You will be more likely to have high goals.

        Being single means you can't settle. In case someone who captures your heart comes along, you need to be at the top of your game. By embracing your time being single, you will be more able to pursue your goals and work towards a more complete, fulfilling future.

        4. You will be more creative.

          Spending time alone is also linked to an increase in creative thinking. Spending more time alone will force you to be a deeper thinker, and could lead you to solutions and projects you wouldn't have thought of otherwise.

          5. Your schedule will be your own.

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            Once you get past feeling lonely and realize how wonderful being single is, you will become aware of one of the best perks – your schedule is now completely your own. No longer do you need to have nights out approved, nor will long days at work get interrupted. Relax into loving your single life because nothing is quite as liberating as deciding every moment of your weekly schedule.

            6. You will likely save money.

              Dating is a great way to wave goodbye to all your hard earned cash. When you're with someone, there's nothing more important than impressing them, including your income. However, when the relationship fizzles, you realize how this tactic doesn't pay off. Not only are we more prone to spending when dating, married couples are more likely to have credit card debt than unmarried singles. So don't get depressed when you're eating cheap meals alone – it's really a form of investing in your future!

              7. You won't need to compromise on entertainment.

                Particularly if your significant other tends to have different tastes than you, being single can be a blessing. As soon as you can appreciate being single, you will realize how freeing it is to always watch exactly what you want. There is no longer any need to skimp on your favorite movies, plays, or TV shows that others don't appreciate.

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                8. You will have more time for your family.

                  Another thing you will realize once you learn to relish being single is you now have much more time for family. Especially when it comes to older relatives, time spent with them truly is precious. Make the most of your single time by reconnecting with family members in your life you may have been neglecting.

                  9. You have more time for your friends.

                    Once you start basking in your single glory, you will also find that you have more time for your friends. Not only will increased free time let you reconnect with friends you may have neglected while being half of a couple, studies also show that married people have much weaker social lives than those who are unmarried.

                    10. You will find new haunts in your city.

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                      Once you start to enjoy your single life again you will also find that you have plenty of time to rediscover your city. Where relationships see us fall into the same habit of favorite spots to drink, eat, or dance, when you're on your own you will naturally start to explore fresh venues again.

                      11. You'll find more interests.

                        Similarly, enjoying your time being single will give you more time to consider new hobbies and interests. Instead of repeating the same go-to dates, you can now freely explore activities that really make you passionate.

                        12. You will be more aware of what you want.

                          Ultimately, taking time to ourselves is an important ingredient in discovering what type of person is our ideal match, or what career we can happily commit to. By delighting in your uninhibited life, you are more able to experiment and thereby find out what works for you and what doesn't. Don't look at being single as a drawback, since learning more about yourself and finding out what makes you tick are crucial in forming balanced, healthy relationships in the future.

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