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16 Things People With Chronic Pain Wanna Tell You

16 Things People With Chronic Pain Wanna Tell You

It’s not just in our head. The pain is there and always would be even if there is no apparent reason for it. Our pain is real and will not just go away after we take some pills for a week or two. It would always be there and we have learned to live with it. Here are 16 more things we wish you knew about us!

1. We Don’t Make a Mountain out a of Molehill

You think you can imagine our pain? Now multiply that amount by 10. No matter how sympathetic you are, studies have proved that people tend to underestimate other people’s pain. Chronic pain by default is hard to imagine unless you have experienced it in your life. It’s invisible, but it is always there. We urge health care not out of hypochondria or the need for attention, but because of our severe physical state.

2. We Need to Balance Actions Carefully

We use the Spoon Theory: We have a limited amount of spoons each day we could use for different actions. Getting up, getting dressed, taking a shower, driving, walking, picking up the phone — each action requires us to use one of our precious spoons. On good days, we finish with a few spoons left, so we can do something fun. On bad days, we borrow spoons from the next day and need extra recovery afterwards. So if we suddenly cancel our plans with you or tell we can’t do it now — it’s just because we ran out of spoons today. Try to understand this.

3. We Struggle to Find a Good Doctor

Sadly, a lot of health care pros lack knowledge in pain management because it is rarely part of their training. We often visit numerous specialists before receiving a proper diagnosis and wait months to years to see a real pain specialist for treatment. Doctors often fall victim to the cognitive error of underestimating another’s pain and a small number of doctors are willing to take the legal risks involved in prescribing powerful pain pills.

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Same goes with the nurses. Finding a good one who can really understand and help us relieve the pain is hard! Luckily, there are some online schools like Sacred Heart University that are training future nurse leaders to overcome these issues in the future and provide better care for patients.

While you may think it’s crazy, we’re willing to travel further to find a good nurse with this kind of training and rave about it when we find one.

4. We Are Not Lazy

Remember the limited amount of spoons we have? Now add the fact that it takes twice as much effort for us to complete even simple things. We try harder than other folks, yet we still manage to accomplish less.

5. We Try to Look Our Best

“But you don’t look sick” is one of the most common phrases you hear if you have invisible disease. Well yes, we try to look our best even on bad days when our body explodes from pain. We dress up carefully to cover up our bruises or swelling, take painkillers at the optimal time, and rest before going out. We would love to pass as normal as much as possible! Even if we feel pain, we would keep it to ourselves until the moment we step into our apartment and just collapse.

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6. We Don’t Ignore You

Sometimes our pain occupies too much space in our brains and we simply cannot focus on anything else. Pain can be very distracting and mentally draining, so please forgive us when we can’t give all the attention to you.

7. We Know Our Illness Won’t Go Away

It’s always there. We can’t escape. And yes, we have researched all the possible options. If there was a cure, we would know about it!

8. We Are Not Drug Seekers

Sadly, we need to explain that both to the doctors and folks around. We don’t want drugs. We want anything to make the pain go away even for a little while. So yes, sometimes our treatment requires taking opioids or medical marijuana. We treat those just like any other remedy. And no, we are not particularly fond of the side effects either.

In fact, as the Cleveland Clinic explains: Addiction appears to be distinctly uncommon in patients without a prior history of addiction. Addiction is a psychological phenomenon that isn’t caused by chemical components of the drugs and typically requires a setting different from the one we have. We take our drugs under supervision and come back home to the loving family unlike the street-users.

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9. We Don’t Always Know How to Manage Our Pain

Just because we have been dealing with it for ages doesn’t mean we always know how to tame it. Sometimes, we have very bad days when no previous routines help. We just close our eyes and wish those would pass faster.

10. We Get Super Active on Good Days

Physically feeling good is just about the most exciting feeling we can have! We can do our chores normally, go on a day trip, meet with a bunch of people at a time, and even think of running a marathon. On a good day we are super active and excited with everything, trying to get as much done as possible!

11. We Don’t Want You to Stop Inviting Us Out

No matter how many times we have said “no” we still want to be part of the gang and go out when we really can do it.

12. We Don’t Have a Job for a Reason

Again, we are not lazy. It’s just that we often lack spoons to work on the top of our other activities and daily chores. Besides, most employees refuse to take staff for a few hours per week and tolerate the fact that we can leave at the middle of the day if our pain gets unbearable.

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On the bright side though, thanks to technology we can work from home in our own pace, doing various jobs online, selling stuff on eBay or Etsy, learn everything we need from self-help and nursing to design or coding online. If we don’t have a regular job, it doesn’t mean we can accomplish nothing in life. Multiple sclerosis did not stop Vanessa Heywood from creating an award-winning music company!

13. We Don’t Want Sympathy, We Want Acceptance

Instead of making that “I’m so sorry for you” sad face, treat us like equals. It’s not that you should completely ignore our condition, but show us you are ok with it and ready to make small adjustments for us.

14. We Don’t Want Your Medical Advice

Believe me, we have heard enough already and feel frustrated, as they don’t work. Thanks for the thought, but let’s just talk of something else. My disease does not define me. I know a lot of other interesting things, I would love to discuss with you instead.

15. We Need to Know You Are Here for Us

No matter how self-sufficient and independent we try to appear, sometimes we just need you to be here with us and hold our hand on a bad day.

16. We Appreciate You and Everything You Do for Us

You should never forget that. We are eternally grateful for supporting us and making us feel loved!

Featured photo credit: carianoff via flickr.com

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Last Updated on October 17, 2019

How to Spend More Quality Time with Your Partner

How to Spend More Quality Time with Your Partner

You see your partner every single day. They are the first person you talk to in the morning and the last person you kiss goodnight.

But does seeing each other day in and day out equal a healthy relationship? Not necessarily.

Spending quality time with your partner is the best way to ensure your relationship stays healthy and strong. This means going above and beyond sitting together while you watch Netflix or going out for the occasional dinner. You deserve more from your relationship – and so does your spouse!

What does quality time mean? It means spending time with your spouse without interruption. It’s a chance for you to come together and talk. Communication will build emotional intimacy and trust.

Quality time is also about expressing love in a physical way. Not sex, necessarily (but that’s great, too!) but through hand-holding, cuddling, caressing, and tickling. Studies show that these displays of affection will boost partner satisfaction.[1]

So how do you spend quality time with your partner? Here are 13 relationship tips on making the most out of your time with your partner.

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1. Recognize the Signs

If you want a healthy relationship, you have to learn how to recognize the signs that you need to spend more quality time together.

Some telltale signs include:

  • You’re always on your phones.
  • You value friendships or hobbies over quality time with your spouse.
  • You aren’t together during important events.
  • You are arguing more often or lack connection.
  • You don’t make plans or date nights.
  • You’re not happy.

If you are experiencing any of these relationship symptoms, know that quality time together can reverse the negative effects of the signs above.

2. Try New Things Together

Have you ever wanted to learn how to play an instrument or speak another language? How about skydive or ballroom dance?

Instead of viewing these as solo hobbies and interests, why not involve your partner?

Trying new activities together builds healthy relationships because it encourages spouses to rely on one another for emotional and physical support.

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Shared hobbies also promote marital friendship, and the Journal of Happiness Studies found that marital satisfaction was twice as high for couples who viewed each other as best friends.[2]

3. Schedule in Tech-Free Time

Your phone is a great way to listen to music, watch videos, and keep up-to-date with friends and family. But is your phone good for your relationship?

Many couples phone snub, or ‘phub’, one another. Studies show that phubbing can lower relationship satisfaction and increase one’s chances of depression.[3]

Reduce those chances by removing distractions when spending quality time together and showing your partner they have your full attention.

4. Hit the Gym as a Couple

One way you can spend more time together as a couple is by becoming workout partners. Studies show that couples are more likely to stay with their exercise routine if they work out together.[4] Couples also work out harder than they would solo. One study found that 95 percent of couples who work out together maintained weight loss compares to the 66 percent of singles who did.[5]

Join a gym, do at-home couples’ workouts, try couples yoga, hit the hiking trails, or get your bikes out. No matter which way you choose to exercise, these healthy activities can promote a healthy relationship.

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5. Cook Meals Together

Pop open a bottle of wine or put some romantic music on while you get busy – in the kitchen, of course!

One of the best relationship tips for spending quality time together when you both have busy schedules is to cook meals together.[6]

Spice things up and try and prepare a four-course meal or a fancy French dish together. Not only is this a fun way to spend your time together, but it also promotes teamwork.

If all goes well, you’ll have a romantic date night meal at home that you prepared with your four hands. And if the food didn’t turn out the way you’d hoped, you are guaranteed to have a laugh and create new memories together.

6. Have a Regular Date Night

Couples experience a greater sense of happiness and less stress when they are spending quality time together.[7] One of the biggest relationship tips for a healthy partnership is to include a date night in your weekly routine.

The National Marriage Project found that having a weekly date night can make your relationship seem more exciting and helps prevent relationship boredom.[8] It also lowers the probability of divorce, improves your sex life, and increases healthy communication.

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Some great ideas for what to do on your date night include:

  • Have a movie marathon – Gather up your favorite flicks and cuddle up on the couch.
  • Play games together – Cards, board games, video games, and other creative outlets are a fun way to spend quality time together.
  • Recreate your first date – Go back to that restaurant and order the same meal you did when you first got together. You can spice up your evening by pretending you’re strangers meeting for the first time and see how sexy the night gets.
  • Plan a weekend getaway – There’s nothing better than traveling with the one you love.
  • Dinner and a movie – A classic!
  • Try a new restaurant – Make it your mission to rate and try all of the Mexican restaurants/Irish pubs/Italian trattorias in your area.
  • Have a long sex session – Intimacy promotes the release of the oxytocin hormone which is responsible for a myriad of great feelings.[9]

Here’re even more date night ideas for your reference: 50 Unique and Really Fun Date Ideas for Couples

Final Thoughts

The benefits of spending quality time together are endless. Here are just some of the ways it can contribute to a healthy relationship:

  • Improves emotional and physical intimacy
  • Lowers divorce rates
  • Improves communication
  • Reduces marital boredom
  • Bonds couples closer
  • Improves friendship
  • Boosts health
  • Reduces stress

These are all excellent reasons to start making date night a regular part of your week.

It’s easy to have a healthy relationship when you set aside dedicated time to share with your spouse. Try new things together, make your spouse your workout buddy, and look for innovative ways to be close and connected.

These relationship tips will bring great benefits to your marriage.

Featured photo credit: Allen Taylor via unsplash.com

Reference

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