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16 Things People With Chronic Pain Wanna Tell You

16 Things People With Chronic Pain Wanna Tell You

It’s not just in our head. The pain is there and always would be even if there is no apparent reason for it. Our pain is real and will not just go away after we take some pills for a week or two. It would always be there and we have learned to live with it. Here are 16 more things we wish you knew about us!

1. We Don’t Make a Mountain out a of Molehill

You think you can imagine our pain? Now multiply that amount by 10. No matter how sympathetic you are, studies have proved that people tend to underestimate other people’s pain. Chronic pain by default is hard to imagine unless you have experienced it in your life. It’s invisible, but it is always there. We urge health care not out of hypochondria or the need for attention, but because of our severe physical state.

2. We Need to Balance Actions Carefully

We use the Spoon Theory: We have a limited amount of spoons each day we could use for different actions. Getting up, getting dressed, taking a shower, driving, walking, picking up the phone — each action requires us to use one of our precious spoons. On good days, we finish with a few spoons left, so we can do something fun. On bad days, we borrow spoons from the next day and need extra recovery afterwards. So if we suddenly cancel our plans with you or tell we can’t do it now — it’s just because we ran out of spoons today. Try to understand this.

3. We Struggle to Find a Good Doctor

Sadly, a lot of health care pros lack knowledge in pain management because it is rarely part of their training. We often visit numerous specialists before receiving a proper diagnosis and wait months to years to see a real pain specialist for treatment. Doctors often fall victim to the cognitive error of underestimating another’s pain and a small number of doctors are willing to take the legal risks involved in prescribing powerful pain pills.

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Same goes with the nurses. Finding a good one who can really understand and help us relieve the pain is hard! Luckily, there are some online schools like Sacred Heart University that are training future nurse leaders to overcome these issues in the future and provide better care for patients.

While you may think it’s crazy, we’re willing to travel further to find a good nurse with this kind of training and rave about it when we find one.

4. We Are Not Lazy

Remember the limited amount of spoons we have? Now add the fact that it takes twice as much effort for us to complete even simple things. We try harder than other folks, yet we still manage to accomplish less.

5. We Try to Look Our Best

“But you don’t look sick” is one of the most common phrases you hear if you have invisible disease. Well yes, we try to look our best even on bad days when our body explodes from pain. We dress up carefully to cover up our bruises or swelling, take painkillers at the optimal time, and rest before going out. We would love to pass as normal as much as possible! Even if we feel pain, we would keep it to ourselves until the moment we step into our apartment and just collapse.

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6. We Don’t Ignore You

Sometimes our pain occupies too much space in our brains and we simply cannot focus on anything else. Pain can be very distracting and mentally draining, so please forgive us when we can’t give all the attention to you.

7. We Know Our Illness Won’t Go Away

It’s always there. We can’t escape. And yes, we have researched all the possible options. If there was a cure, we would know about it!

8. We Are Not Drug Seekers

Sadly, we need to explain that both to the doctors and folks around. We don’t want drugs. We want anything to make the pain go away even for a little while. So yes, sometimes our treatment requires taking opioids or medical marijuana. We treat those just like any other remedy. And no, we are not particularly fond of the side effects either.

In fact, as the Cleveland Clinic explains: Addiction appears to be distinctly uncommon in patients without a prior history of addiction. Addiction is a psychological phenomenon that isn’t caused by chemical components of the drugs and typically requires a setting different from the one we have. We take our drugs under supervision and come back home to the loving family unlike the street-users.

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9. We Don’t Always Know How to Manage Our Pain

Just because we have been dealing with it for ages doesn’t mean we always know how to tame it. Sometimes, we have very bad days when no previous routines help. We just close our eyes and wish those would pass faster.

10. We Get Super Active on Good Days

Physically feeling good is just about the most exciting feeling we can have! We can do our chores normally, go on a day trip, meet with a bunch of people at a time, and even think of running a marathon. On a good day we are super active and excited with everything, trying to get as much done as possible!

11. We Don’t Want You to Stop Inviting Us Out

No matter how many times we have said “no” we still want to be part of the gang and go out when we really can do it.

12. We Don’t Have a Job for a Reason

Again, we are not lazy. It’s just that we often lack spoons to work on the top of our other activities and daily chores. Besides, most employees refuse to take staff for a few hours per week and tolerate the fact that we can leave at the middle of the day if our pain gets unbearable.

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On the bright side though, thanks to technology we can work from home in our own pace, doing various jobs online, selling stuff on eBay or Etsy, learn everything we need from self-help and nursing to design or coding online. If we don’t have a regular job, it doesn’t mean we can accomplish nothing in life. Multiple sclerosis did not stop Vanessa Heywood from creating an award-winning music company!

13. We Don’t Want Sympathy, We Want Acceptance

Instead of making that “I’m so sorry for you” sad face, treat us like equals. It’s not that you should completely ignore our condition, but show us you are ok with it and ready to make small adjustments for us.

14. We Don’t Want Your Medical Advice

Believe me, we have heard enough already and feel frustrated, as they don’t work. Thanks for the thought, but let’s just talk of something else. My disease does not define me. I know a lot of other interesting things, I would love to discuss with you instead.

15. We Need to Know You Are Here for Us

No matter how self-sufficient and independent we try to appear, sometimes we just need you to be here with us and hold our hand on a bad day.

16. We Appreciate You and Everything You Do for Us

You should never forget that. We are eternally grateful for supporting us and making us feel loved!

Featured photo credit: carianoff via flickr.com

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Last Updated on March 25, 2020

How to Crush Your Lack of Motivation and Always Stay Motivated

How to Crush Your Lack of Motivation and Always Stay Motivated

How many times have you not achieved your goals and let yourself down due to your lack of motivation? When you’re not wallowing in sadness and self-pity, you are too busy procrastinating till you can’t anymore and before you know it, you are part of vicious cycle of anxiety and stress.

Whether it’s losing weight or bringing your business to fruition – motivation is essential for growth and success in every sphere of our lives.

That said, it is not easy staying motivated. In order to constantly stay motivated, you need to take ownership of your life and consciously make efforts in that direction.

Well, it’s never too late to take matters in your hands and change the course of your life. Here are 11 effective ways to crush your lack of motivation and always stay motivated:

1. Write Your Goals

The power of writing goals down has always been underestimated. Why write when you can remember, right? Wrong.

Our thoughts are all over the place and the first step to achieve your goals is to organize your thoughts. So, write your goals down, however big or small they might be. Make them as specific as possible and assign deadlines to each of them.

As you write them down and revisit them regularly, they get further drilled in your head, taking you closer to your goals. Doing this small exercise helps you to remain focused, motivated and lets you track your progress with ease.

Start today – take to your laptop or a diary and get down to writing what you wish to achieve in life.

2. Beat Procrastination

Your lack of motivation and procrastination go hand in hand. Every time you procrastinate, your motivation levels take a greater hit. The only way to bring an end to this loop is to stop procrastinating.

Next time you find yourself putting off something for ‘later’, stop and assess the reasons behind it. Get to the root of the cause and eliminate it in order to overcome this poor habit of procrastinating which is sabotaging your life and mental health.

Take a look at this guide and learn how to beat procrastination:

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What Is Procrastination (And the Complete Guide to Stop Procrastinating)

When you finally overcome procrastination, you will realize the positive impact it has on your mood and motivation levels.

3. Celebrate Small Wins

In the quest to achieve the bigger goals in life, we often forget to celebrate the smaller wins along the way. An achievement is an achievement – be it big or small, it deserves to be acknowledged and celebrated.

Finished a project on time? Reward yourself. Managed to run on the treadmill for a good one hour? Pat yourself on the back. Found time to meditate? Celebrate it.

It is these small achievements that reinstate that we are on the right path and take us one step closer to the bigger goals.

So, get into the habit of recognizing and appreciating small wins. You will be surprised to see how this practice helps you stay motivated.

4. Practice Gratitude

It’s easier to whine about what we don’t have rather than counting our blessings. Isn’t it?

Making gratefulness a part of your life is a very important step to retain high motivational levels. It revitalizes our spirits and renews our enthusiasm for life.

So, how do you practice gratitude? For starters, keep a gratitude journal to jot down what you are grateful for, express your gratitude to people you love and spread positivity wherever you go. If you need some inspiration to be thankful for, here it is:

60 Things To Be Thankful For In Life

By doing so, you begin to focus more on what you have rather than what you don’t and that is a great start to stay motivated.

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5. Be Optimistic

Life is not always hunky dory. There will be bad days when things aren’t going in your favor, when you feel lost and all you want to do is give up.

At such times, instead of letting negativity take over your life, adopt an optimistic approach to life. Quit overthinking, ask the right questions and focus on finding solutions.

Yes, there will be hurdles along the way but if you hang on to positive affirmations and hopes, the journey will be a lot smoother. So, with every passing day, sow the seeds of positivity and you are sure to build a positive environment around you.

6. Don’t Dwell on the Past

A lot of times, our lack of motivation stems from the habit of dwelling on the past. This gives rise to fear and regrets, preventing us from making progress in the present day.

Dwelling on the past is nothing but a waste of time. Understand that the past is long gone, and you cannot do anything to change that.

What you can do is make your present day worthwhile. Instead of looking back and having regrets, learn from your mistakes, forgive yourself and move on.

So, the next time you find your mind wandering off to the past, be determined to change the way you think and consciously concentrate on living in the present. This guide can help you:

10 Simple Steps To Let Go Of The Past

7. Face your Fears

You can never find motivation where there is fear. Identify the fear that is pulling you back and tackle it.

If you don’t face your fear head on, you cannot expect to conquer it and renew your motivation.

Ask yourself: What is stopping you? What are you scared of?

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Once you accept your fear, you can work on an action plan and think of solutions to overcome it. This article will give you some effective tips on conquering your fears:

How to Overcome Your Irrational Fears (That Stop You from Succeeding)

Seek external help if required but don’t choose to turn a blind eye over your fears – it will only aggravate matters.

8. Visualize your Success

You must have heard the famous quote, ‘see it to believe it’. That is exactly what visualization is about.

One of the most effective self-motivation techniques, visualizing the process to your desired outcome helps you move in a positive direction and achieve your goal.

Close your eyes and focus all your energies on the minutest of details that will take you where you want to reach. Doing this exercise everyday inspires you to keep going and not lose hope. The vision of attaining success will drive you to do better while instilling belief and confidence.

9. Find Inspiration

Can’t seem to find inspiration inwards? Don’t panic. There are plenty of external sources to gain inspiration from.

From motivational books and quotes to speeches, films and apps – it is a good idea to take help from motivational material to rekindle your spirits and regain your motivation.

Everyone is wired differently. For instance, a self-help book might work for your friend, but it might do nothing to move you. So, find what inspires you and turn to it when you are in desperate need for motivation.

Finding inspiration externally fills you with hope and sometimes that is all you need.

10. Enjoy Downtime

You are clearly exhausted with all the running you’re doing in life. So much, that you don’t even have time to stop and think what’s causing you so much unhappiness. All you know is that you are lacking motivation and everyday seems to have become a struggle.

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Now, that’s certainly not how you should live the rest of your life.

You need to schedule downtime for yourself, relax and give your mind and body some rest. Take a vacation, indulge in hobbies, meet some friends, put your hair down and stop with all the overthinking. It is important to do things that make you happy in order to think clearly and stay motivated.

11. Meditate Regularly

Meditation lets you take control of your mind. It improves focus and concentration while helping you relax.

Whenever you have had a tough day or find your thoughts going places, the best way to calm yourself down is by closing your eyes and meditating. It helps you to remove all the unnecessary frills in life and keeps you on the right track.

Include meditation in your daily schedule and you are sure to see an improvement in your productivity and motivation.

The Bottom Line

Practicing these simple exercises isn’t the tough part, what’s tough is religiously doing them every day.

However, don’t expect to get rid of your lack of motivation overnight. There will still be days when you will be low on energy but by making these conscious efforts to stay motivated, you are sure to see a vast change in your perspective and your response to bad days.

So, start today and be committed to making a positive change in your life.

More Tips About Staying Motivated

Featured photo credit: Sonnie Hiles via unsplash.com

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