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5 Changes in The First Year of an Autism Diagnosis

5 Changes in The First Year of an Autism Diagnosis

Having a child diagnosed with Autism is life changing. This neurodevelopmental condition is so prevalent, yet many parents struggle with the changes ahead.

After noticing the subtle signs of a developmental delay in our child, we reached out to a psychologist who performed an evaluation in our home and diagnosed our son at just over two years old with Autism.

Here are some of the changes I’ve noticed in the first year of the diagnosis and, hopefully, can help you:

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1. Your appreciation for life grows

Suddenly, as you watch a child grow and struggle in life you come to realize how valuable life is.

As the parent of a “non-verbal” three-year-old I can now see how the little things begin to matter more. My three-year-old son saying “box” and pointing to a box means more to me than you could imagine. Every effort he makes to verbally communicate is a blessing. Life is so fragile; once you come to terms with this diagnosis you can begin to let go of expectations and appreciate reality.

2. Your perception of everything changes

I suddenly hear, feel and see things differently. My mind is hyper aware and I’m hyper sensitive to everything. I can walk into a room and tell what will cause a meltdown, frustration or great joy to my son.

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This ability has been evolving since my son’s diagnosis one year ago and I know it will continue to change as he grows. I may not always be able to control the environment around him, but at least I know I can help him navigate every day life.

3. You don’t care about material things

Suddenly, I do not own many valuable items. My clothing is extremely inexpensive. The decor in my house is minimal. The toys are everywhere but never for a long time, as we like to keep the home decluttered.

Valuable collectives simply don’t stand a chance here and if we happen to have them, like an antique child’s toy piano, it’s okay that my son broke it. As a family we find little real value in expensive items; we prefer to spend our hard eagerned money on making memories.

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4. You admire other special needs parents 

Once you become a special needs parent you will begin to find suppport groups and organizations that can help you and your family. When I meet these parents I can connect to their struggles so easily; we don’t even have to say a word. If I know you have a special needs child, I am on your side. The stress of daily life for special needs parents is real; we never know what challenges lie ahead of us. We also are constantly worrying about the future—will our child be able to enjoy his/her life? It’s comforting to know we are not alone, so I always urge these relationships with other special needs parents to grow as we provide support to one another.

5. Your hopes and dreams will change

Not long ago, I imagined running a business and getting back into the work force to alleviate the financial stress of having a single income family. Because of my son, that has changed. My current dreams are to help families of children with special needs and disabled people.

I do hope to join the work force in a freelance field, but realistically as my son grows and his younger sibling grows as well, I am forever focused on their wellbeing first. I believe my dreams have completely changed but I am excited to see where it takes me.

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I hope these steps help you gain greater perspective about your child and yourself.

More by this author

Marlene Patti

Stay at home mom/Real Estate

5 Changes in The First Year of an Autism Diagnosis 10 Lessons I’ve Learned Since Becoming A Mom

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Published on November 12, 2020

How to Identify And Play to Your Child’s Strengths

How to Identify And Play to Your Child’s Strengths

As you sit there, perhaps on a sofa, maybe a lounge chair, or while you’re sharing a meal at the table, you glance over to the pride and joy you are happy each day to call your child. They smile back, running around the table they learned to stand up using or kiss you on the cheek as they snatch your car keys for their first (or second, but what feels like hopefully the last) errand using your car. You watch as they take their plate from the table, ask if anyone needs anything on their way to the sink, and then finally meander towards the living room saying to you, “Bed fort after dinner?”

How respectful! How creative! Such initiative!

What you may not realize is that because we don’t often think about this in the day-to-day of parenting, your child’s strengths—the initiative, creativity, drive, passion, and introspective nature that turns other people off—are cultivated daily!

If you’ve never given thoughts to your child’s inherent strengths, that’s okay. As is all too common, you’re conditioned to only look at what they need to fix.[1]

Turns out, identifying, cultivating, and managing your child’s strengths isn’t very difficult. In fact, much of those three steps can occur during a visit to the park. Let’s discover simple and effective ways to highlight your child’s strengths.

Identifying Strengths

Now, I know what you may be thinking: between office meetings, Zoom sessions, laundry, and grocery shopping, when exactly do I have time to become a psychologist?

I get it. But really, identifying your child’s strengths is not difficult. In fact, a simple exercise usually suffices—participate in their play!

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Participate in Their Play

Play can take many forms and is usually defined as an activity that does not bring extrinsic value to be enjoyed—us adults typically refer to these activities as “hobbies.” Whether your child is two or thirteen, children are children, after all, and play is essential.

According to a report from the University of Utah, play is a way for children to practice “problem-solving, self-control, and learning how to share.”[2] Aren’t those powerful strengths that we should identify and cultivate in our supportive role of helping children thrive as adults?

When children engage in play, they naturally show how they lead, how they empathize with others, and how they work with others (or not) to solve problems. If you spend time being present with your children during play, you will be able to see how your child’s strengths manifest in the simplest of activities. Seeing your children play allows you to see how they make mistakes, too, which is a powerful indicator of their sense of self.

Allow (Supported) Mistakes—and Often!

Identifying your child’s strengths has nothing to do with demanding them to be perfect. Far from it, actually. Remember—you are guiding them to becoming a self-sufficient and nurturing adult, and there aren’t many of us out there that are perfect!

Highlighting moments when your child has made some mistakes and working through how to bounce back or fix that mistake can be wondrous when they are working towards understanding their effect on others, themselves, and the world.

Just like parents that tend to focus too much on the negative, children too often learn more from their mistakes than their successes. Catch your child softly during a mistake, and work through a plan to get themselves out of it. Your goal is not to fix their issue, of course, but to build within them the capacity to make a better choice next time.

When you take on this mindset of an engaging and present parent that is looking for ways to build your child’s strengths, you’ll be surprised at what you see them able to do.

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Some solid examples of inherent child strengths to look for include:

These are the soft skills that are being developed as young as preschool and even before. In today’s global workplace environment, ensuring that your child is developing in these (and other) areas will set them up for success.

Okay, great. You’ve watched your children at the park or tag along with your teenager to a volunteer event and notice how gracious they are. How do we keep that going?

As is normally the case, you’ll see that cultivating strengths is no more difficult than identifying them.

Cultivating Your Child’s Identified Strengths

Imagine this scenario: Thursday evening, and you’ve worked your fourth ten-hour day. Your partner is late getting home from work, and your three kids are all wanting different things for dinner that should have been made yesterday.

At the exact moment you’re about to snap from the pressure, your middle child says, “Hey, maybe we can all act like chefs tonight and make our own dinners? Might be fun!”

Um, yes, please?

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As you settle in bed later that evening and reflect on that exchange in the kitchen, you start to highlight other times that child—and, as you doze, your other children in their own ways—stepping up and leading. You know this cannot be by accident, so what’s going on here?

Provide Many At-Bats

Just because a child can take their plate to the sink doesn’t mean they are responsible enough with Grandma’s China set. But when you provide the “at-bats” for children to build capacity using their strengths, you see the road to them handling more difficult scenarios becoming less and less cluttered with obstacles.

There will come a day, and perhaps soon, that your child will be able to navigate that China with extreme grace. Today just ain’t that day, but with some work, it’ll come!

Providing opportunities for your child to build on their strengths is a great idea. Everyone likes to feel competent, and your child is no different! Setting up scaffolded opportunities for them to showcase their budding personalities decreases the stress and increases the chance that, next time, they will perform even better.

Teach Them to Trust but Verify

Good leaders don’t have all the answers. Neither should you and of course, we don’t expect our children to know everything. But we should build within them the capacity for understanding what they don’t know and figuring out ways to get the information they need to work through their situations.

You cannot always have the answers, either. So, what should you do?

Exposing them to the world of information that exists is a good start. Great, you’ve identified your child is empathetic, but must they assist and provide supportive care to everyone they encounter? Or should there be some healthy boundaries established?

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Working with your children to mold and curate these more nuanced approaches to their strengths will provide them with a good road map to use when they ultimately leave you and lead their own lives.

Turning Weaknesses Into Opportunities

While not exactly the elephant in the room, I can’t possibly write an article about child strengths without also addressing the fact that our children aren’t possibly capable of being good at everything.

Perhaps one of your most important roles as a parent is to decide what strengths your child has and to inspire them to cultivate those strengths using the tips and suggestions in this article. However, there will be a wide variety of opportunities for you to work through the challenges your child experiences.

I don’t want this to sound too harsh but the fact is, everyone has competencies on a spectrum: you can work, hustle, and grind to develop parts of your personality or skill set to whatever gain you set for yourself. Allowing children to operate with a mindset of progress, not perfection, will help their journey. You cannot be weak, after all, if you are constantly striving for improvement.

So, the next time you take your kiddo out to the park, attend a professional sporting event, or perhaps when you’re playing cards in the living room on a cold winter night, pay attention to how they maneuver around.

How are they asking for what they need? How are they offering support? How are they handling conflict? How are they bouncing back from missed opportunities or mess-ups?

In each of those moments—and many more—the opportunity to cultivate strength in your child is just around the corner!

More Tips on Developing Your Child’s Strengths

Featured photo credit: Nathan Dumlao via unsplash.com

Reference

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