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Translate Autism: Making The Disorder A Gift Not A Curse

Translate Autism: Making The Disorder A Gift Not A Curse

Recognize the Challenge

It was the night of the 4th of November, and a child was born. The boy was seemingly healthy at birth. 2 years later, the boy’s father was given the possible diagnosis, and his unbelief became denial. Common belief was that his son was autistic. One year later, this question haunted the boy’s father, “What is perfect about autism?” He, like many fathers, didn’t know how to translate autism into a positive thing at all, so he imagined himself to be wrong in his thinking. “Who would ask such an insensitive question?” he would ponder.

Today, being much different, I gladly admit that I am the man who initiated that question, and I am the father of an autistic son, named Malik. When that question “What’s perfect about autism?”…arose in my mind concerning his diagnosis, and “…only a monster could ask something so cruel.”

Depression instantly took hold, and I pushed the idea into the dark quarters of my mind. Simultaneously, I blocked out the sickening thought whenever it came to light. I was broken, and consumed by the mental wars in which I was entrenched.

Once the denial subsided and I recognized the issue, these selfish questions took hold in my mind, “Why my family? Why me?” Initially at least, I was bitter, disbelieving, and disgruntled over the cards dealt to my young son, but ironically, the haunting question that I had first hated: “What is perfect about autism?”, drove me to find its answer. A challenge that communication, which is the foundation of the answer, taught in this article.

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Cultivation, and the controversial practice that I call “Clipping the Wings of the Disorderly”, both being explained in full detail at a later date, brought the answer. Like weavers, they intertwined my unraveling family together.

Accepting Autism

The ability to recognize something and having the ability to accept it are two very different abilities. I recognized that my son is autistic. The first time the actual words came out of my mouth, I wept bitterly. Today, voicing that reality since having accepted the truth, brings me peace of mind. This fact empowered me to look at the challenge with a better attitude. Autism, while affecting individuals in different ways, is actually a communication disorder.

My entire life, I had always equated autism to mental retardation and low I.Q. To be clear, I was very wrong in that assumption. In fact, most autistic cases don’t affect intelligence whatsoever. This realization was the most eye opening, or at least I thought it was.

That realization brought another, and I began to realize why I really did not want my son to be autistic. To be frank, I didn’t want to have a dumb son. My philosophy on what value means was so selfish and offensive. I thought of my own son, whom I am supposed to unconditionally love, as a burden almost. If anyone, I was the one who needed treatment or specialized help. It took being thrown that far out of my comfort zone to realize my grievous mental disorder – Selfishness. Even still, there are greater realizations to find.

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Before I looked into understanding the disorder, the catalyst to my change was the mind-altering account of one of the greatest treasures in the human race. Her name is Temple Grandin. Later, you will read the interpretation of the story of Temple Grandin that author and historian, Robert Greene, presents in the instant classic, Mastery. Her life is a triumph in perseverance, and a testament to the fact that the autistic are viewed, treated, and at times, even raised incorrectly. Once I learned of her truly awe-inspiring biography, I was moved to learn more of this misunderstood disorder.

Before being made privy to the fact that autism is a communications problem, my mental fabric was torn with ignorance. Thankfully, today when I remember my previous self, who thought the way I did, I no longer recognize him. When I finally caught a glimpse of my repulsive reflection, my instinct was to get it away from me. Much like that cold, blinding fog, being chased away by the morning star, my selfishness has been pushed out. With the veil lifted, at last I envisioned what for many families is an ally, my family’s foremost foe – Communication.

Communication is Key

Considering that communication is the underlying symptom of the autism disorder, I made a decision. If this disorder is going to cripple my son’s ability to verbalize his inner thoughts, our family’s mission will be to focus on learning communication to the best of our ability. The hope was this: if we could communicate on a higher level we could 1) Compensate for some of his main shortcomings, and 2) As we learn and evolve, although his evolution will be slower, he too will come to adapt to his weaknesses. My family quickly accepted the new focus on communication, but I’ve always had a tendency to dream big. Becoming a master of language is harder than it sounds. While we were learning, we still had our moments of frustration and misunderstanding. Interesting enough, Malik became the most patient person among us. To this day, there’s probably only one that I would consider to have transcended previous language barriers within our family unit – only Malik.

When presented the opportunity, my sons and I have a morning routine we perform together. Our ritual begins with a brisk walk starting just before daybreak. Malik, on this morning, was 5 years old and still non-verbal. At dawn, Malik’s ability to communicate shone as evidently as the sunrise. I watched him thoroughly explain his mood and desires without using words. His use of non-verbal cues, his body language, and his facial expressions, all shifting from sequences to simultaneous actions is like an art in and of itself. My autistic son taught me how to translate autism from negative to positive. His gift allowed him to do that, instead he would transform a disorder, into an instrument, one he practices continually.

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To strangers, his attempts and interactions make little sense. Those who know my son will testify that Malik is capable of communicating deeply detailed emotions, non-verbally. Everyone who knows him describes his charm, his innocent humor, and his stubborn streaks. They would also relate that Malik has an obsessive love for animals, and for building of any sort. What few see is the determination. This determination, an inner-strength, is often overlooked. He sees himself as able, no matter what, he will not give up. Verbal communication will not elude him forever. I am sure once his tongue is loosened and he merges body language with spoken communication, nothing will stand in his way. Then, what we all called a disorder will prove to be a gift. A trying fire, if you will, manifesting gold of greater purity.

Temple Grandin: The Role Model

Temple Grandin was forged in that same fire. She came forth as a peculiar treasure, with a worth far above rubies. Historian, Robert Greene, sheds light on Miss Grandin’s life in his masterpiece, Mastery. Mr. Greene paints a heartfelt picture from which the autistic and their parents will undoubtedly draw not only strength, but inspiration as well. In Mr. Greene’s words:

“Some people do not become aware of inclinations or future career paths in their childhood, but instead are made painfully aware of their limitations. […] Nobody faced this fate more powerfully than Temple Grandin. In 1950, at the age of three, she was diagnosed with autism. She had yet to make any progress in learning language, and it was thought that this would remain her condition. […] But her mother wanted to try one last option, […] she sent Temple to a speech therapist, who miraculously, slowly managed to teach her language.”

“Despite this improvement, Temple’s future still appeared limited at best. Her mind functioned in a different way she thought in terms of images not words. […] She was not good at socializing with other children, who often made fun of her for her differences.”

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“Whenever she felt troubled she instinctively retreated to two activities that were comfortable to her: interacting with animals and building things with her hands. […] Several years later she found herself pursuing a master’s degree in Animal Sciences at Arizona State University. […] Her professors there could not understand such an interest, and told her it was not possible. Never being one to take no for an answer, she found professors in another department who would sponsor her. She did her study, and in the process caught a glimpse of her Life’s Task. […] Slowly, with her visual sense of design and engineering, she taught herself the rudiments of the business. She expanded her services to designing more humane slaughterhouses and systems for managing farm animals.”

“With this career solidly in place, she proceeded to go further: she became a writer; she returned to the university as a professor; she transformed herself into a gifted lecturer on animals and autism. Somehow she had managed to overcome all of the seemingly insurmountable obstructions in her path and find her way to the Life’s Task that suited her to perfection.”

In my eyes, Temple Grandin demonstrates one ability strongest: The Ability to Translate Autism. After my mind recognized that my son was autistic, I then journeyed through my inner darkness. Truth and understanding brought acceptance, like a lamp of light, causing the darkness to flee and show me what I had to do. First and foremost I had to answer the question, “What is perfect about autism?” The answer is this: The disorder is perfect because, it makes those it challenges, and those in close relation to the challenged to translate autism from seemingly a disability, to the power it can become. Thankfully, my son’s gift of autism proved to be the answer all along. Making use of what we were given galvanized that answer. Though we have only begun to learn the first aspect of this three part translation, parents, caregivers, friends and family alike must experiment with these three helping hands. Communication, cultivation and “Clipping the Wings of the Disorderly” in order to learn the necessary translation.

Do not receive the curse of autism; receive the gift and the freedom, not the failure the “disorder” brings.

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Key Questions: Why Not Me? The Healthy Alternative Leaving a Legacy: 10 Tangible Traits of Timeless Icons 3 Ways Towards Finding Out How to Get Real Self-Help Translate Autism: Making The Disorder A Gift Not A Curse Worry to Win: How to Worry the Right Way

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Published on January 30, 2019

How to Support a Working Mother as a Working Father

How to Support a Working Mother as a Working Father

In roughly 60 percent of two-parent households with children under the age of 18, both parents work full time. But who takes time off work when the kids are sick in your house? And if you are a manager, how do you react when a man says he needs time to take his baby to the pediatrician?

The sad truth is, the default in many companies and families is to value the man’s work over the woman’s—even when there is no significant difference in their professional obligations or compensation. This translates into stereotypes in the workplace that women are the primary caregivers, which can negatively impact women’s success on the job and their upward mobility.

According to a Pew Research Center analysis of long-term time-use data (1965–2011), fathers in dual-income couples devote significantly less time than mothers do to child care.[1] Dads are doing more than twice as much housework as they used to (from an average of about four hours per week to about 10 hours), but there is still a significant imbalance.

This is not just an issue between spouses; it’s a workplace culture issue. In many offices, it is still taboo for dads to openly express that they have family obligations that need their attention. In contrast, the assumption that moms will be on the front lines of any family crisis is one that runs deep.

Consider an example from my company. A few years back, one of our team members joined us for an off-site meeting soon after returning from maternity leave. Not even two hours into her trip, her husband called to say that the baby had been crying nonstop. While there was little our colleague could practically do to help with the situation, this call was clearly unsettling, and the result was that her attention was divided for the rest of an important business dinner.

This was her first night away since the baby’s birth, and I know that her spouse had already been on several business trips before this event. Yet, I doubt she called him during his conferences to ask child-care questions. Like so many moms everywhere, she was expected to figure things out on her own.

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The numbers show that this story is far from the exception. In another Pew survey, 47 percent of dual-income parents agreed that the moms take on more of the work when a child gets sick.[2] In addition, 39 percent of working mothers said they had taken a significant amount of time off from work to care for their child compared to just 24 percent of working fathers. Mothers are also more likely than fathers (27 percent to 10 percent) to say they had quit their job at some point for family reasons.

Before any amazing stay-at-home-dads post an angry rebuttal comment, I want to be very clear that I am not judging how families choose to divide and conquer their personal and professional responsibilities; that’s 100 percent their prerogative. Rather, I am taking aim at the culture of inequity that persists even when spouses have similar or identical professional responsibilities. This is an important issue for all of us because we are leaving untapped business and human potential on the table.

What’s more, I think my fellow men can do a lot about this. For those out there who still privately think that being a good dad just means helping out mom, it’s time to man up. Stop expecting working partners—who have similar professional responsibilities—to bear the majority of the child-care responsibilities as well.

Consider these ways to support your working spouse:

1. Have higher expectations for yourself as a father; you are a parent, not a babysitter.

Know who your pediatrician is and how to reach him or her. Have a back-up plan for transportation and emergency coverage.

Don’t simply expect your partner to manage all these invisible tasks on her own. Parenting takes effort and preparation for the unexpected.

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As in other areas of life, the way to build confidence is to learn by doing. Moms aren’t born knowing how to do this stuff any more than dads are.

2. Treat your partner the way you’d want to be treated.

I can’t tell you the number of times I’ve heard a man on a business trip say to his wife on a call something to the effect of, “I am in the middle of a meeting. What do you want me to do about it?”

However, when the tables are turned, men often make that same call at the first sign of trouble.

Distractions like this make it difficult to focus and engage with work, which perpetuates the stereotype that working moms aren’t sufficiently committed.

When you’re in charge of the kids, do what she would do: Figure it out.

3. When you need to take care of your kids, don’t make an excuse that revolves around your partner’s availability.

This implies that the children are her first priority and your second.

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I admit I have been guilty in the past of telling clients, “I have the kids today because my wife had something she could not move.” What I should have said was, “I’m taking care of my kids today.”

Why is it so hard for men to admit they have personal responsibilities? Remember that you are setting an example for your sons and daughters, and do the right thing.

4. As a manager, be supportive of both your male and female colleagues when unexpected situations arise at home.

No one likes or wants disruptions, but life happens, and everyone will face a day when the troubling phone call comes from his sitter, her school nurse, or even elderly parents.

Accommodating personal needs is not a sign of weakness as a leader. Employees will be more likely to do great work if they know that you care about their personal obligations and family—and show them that you care about your own.

5. Don’t keep score or track time.

At home, it’s juvenile to get into debates about who last changed a diaper or did the dishes; everyone needs to contribute, but the big picture is what matters. Is everyone healthy and getting enough sleep? Are you enjoying each other’s company?

In business, too, avoid the trap of punching a clock. The focus should be on outcomes and performance rather than effort and inputs. That’s the way to maintain momentum toward overall goals.

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The Bottom Line

To be clear, I recognize that a great many working dads are doing a terrific job both on the home front and in their professional lives. My concern is that these standouts often aren’t visible to their colleagues; they intentionally or inadvertently let their work as parents fly under the radar. Dads need to be open and honest about family responsibilities to change perceptions in the workplace.

The question “How do you balance it all?” should not be something that’s just asked of women. Frankly, no one can answer that question. Juggling a career and parental responsibilities is tough. At times, really tough.

But it’s something that more parents should be doing together, as a team. This can be a real bonus for the couple relationship as well, because nothing gets in the way of good partnership faster than feelings of inequity.

On the plus side, I can tell you that parenting skills really do get better with practice—and that’s great for people of both sexes. I think our cultural expectations that women are the “nurturers” and men are the “providers” needs to evolve. Expanding these definitions will open the doors to richer contributions from everyone, because women can and should be both—and so should men.

Featured photo credit: NeONBRAND via unsplash.com

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