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15 Things Only People Living With A Health Problem Know

15 Things Only People Living With A Health Problem Know

I used to be that person, the one who was disgustingly fit, annoyingly thin, and perfectly in shape. As a runner, triathlete, and personal trainer, I was the picture of good health. Even though I’d had heart surgery when I was a child, I hadn’t experienced any issues or symptoms since then. Heck, I still I enjoyed my lifestyle, including the occasional overindulgence (PMS chocolate binges, cervezas at sunset by the beach, and 2 a.m. rolled tacos after a night of dancing downtown).

Life was good.

Until my heart decided to go haywire. Suddenly, I was living with a “health condition,” or what some cardiologists refer to as a “critical congenital heart disease.” I was sick. And I wasn’t going to get better. Life, as I knew it, was over. I quickly realized that unless I wanted to spend the rest of my life hiding in the corner of my room, crying, I’d better learn to adapt to my new situation. It’s taken a lot of work, but after meeting a ton of other people like me, here’s what I learned on my journey to acceptance.

1. It is what it is.

Biggest lesson ever: It is what it is. There’s nothing we can do to change the situation, so we might as well accept it and move on. This doesn’t mean we ignore it or even like it. It simply means we choose not to curl up in little balls and cry, nor do we spend hours stressing over it or the outcomes. We’ve realized that’s wasted time and energy that can be used elsewhere. Like on baking chocolate brownies.

2. We’re not faking.

Some days, we feel like crap for no reason. We woke up feeling that way. Or we did laundry, which made us feel awful. Or we took meds, which made us sick. There’s no rhyme or reason why we feel sick, we just do. Hopefully, time, fresh air, a good book, a little nap, or some different medications to counter the first medications will help. Something. Anything. It’s a toss-up and every day is different. Just when you think you’ve figured out our symptoms, or when you believe you know what will help, everything’s probably changed again. Sorry.

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3. We don’t like being sick.

It may seem like we enjoy the attention or we’re seeking it, or we conveniently get sick at just the right time, but that’s not the case. We know we were fine a few minutes ago, which makes it very suspicious that we’re all of a sudden deathly ill. Since you’re not inside our bodies, we’re certain it’s difficult to understand. It is for us as well. Sometimes anxiety exacerbates our symptoms, which may make it look like we’re trying to get out of things, but that’s not the case. Please believe us.

(By the way, you’ll see this a lot with kids with chronic illnesses. They don’t try to be sick to get out of school or things they don’t want to do, though it may appear that way. Please believe and understand them.)

4. Having a health problem isn’t the same as being sick with a cold or flu.

Being sick sucks no matter what. When you have a bad cold or flu, we feel bad for you. We do. But our chronic illness isn’t the same. We’re not trying to one-up you, we’re just saying our situation isn’t something that will go away in a few days. It’s also not something a nice, warm cup of tea and some Ibuprofen will take care of. We can’t down a shot of NyQuil and be done with it. We need about five meds in the morning just to survive. Thank you for your suggestions, but we’ve probably tried everything. Even the natural stuff.

5. The excuse, “I can’t because I have a doctor’s appointment,” isn’t an excuse.

It’s true. We always have doctor appointments. We’ve had to schedule and reschedule babysitters, change work schedules, rearrange the kids’ sports activities, cancel social plans (what social plans??), and even been laid off from jobs because of the obscene amount of medical appointments, procedures, and surgeries. We’re not complaining. We know we’re lucky to have such good medical care, but it gets old after a while. We’re sure it gets old hearing it, too. “Oh, another doctor appointment? Shocker.”

6. The pharmacy is our second home.

Most people call Starbucks or something cool their second homes.

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We spend so much time at CVS getting our prescriptions, we figure, “What the hell,” and so we pick up some milk and laundry detergent and bread while we’re there. We spend hundreds of dollars a month for medications, why not add a few things to the bill? Especially chocolate. Lots and lots of chocolate.

7. We might as well be nurses and pharmacists.

All we do is research and read research articles and talk to nurses, physicians, and pharmacists. And then we research some more. We’ve spent years learning about medications and treatments and what does/doesn’t work. We seem to know so much that even you come to us for advice. Yep. We’ve probably considered a change in careers (at least, many of the moms probably have).

8. We always know what to pack for the day.

We’re the ones with the Band Aids, the Tylenol, the Motrin, the baby aspirin, the tweezers, the nausea medicine, the motion sickness medicine, the gauze bandages, the wraps, the emergency blankets, the emesis basin, the tourniquet, the antibiotic ointment, the latex gloves, the antiseptics, the defibrillator, the….God, who knows. Trust us. We have everything anyone needs for an emergency.

You’re welcome.

9. You can’t see our illness.

Unless we’re topless or in a bikini. Yeah, good luck with that.

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A lot of people have health conditions or chronic conditions that can’t been seen on the outside. For example, my heart is sick. You wouldn’t know unless you saw me walking up a flight of stairs, huffing and puffing. You’d probably think, “Wow, she looks kind of young to be so out of shape.” I’d have to take off my top to show you all my scars from all my recent surgeries for you to know something was wrong. That’s the difficult thing about my illness. Same with my kids. My daughter has only half a working heart. Sometimes we park in a disabled parking spot, either for her or me. People stare, wondering why on earth we have the blue placard hanging from our rearview mirror.

10. Our bodies change.

Having a health condition or chronic illness means accepting our bodies for whatever they decide to do or be—no matter what we do or don’t do. I used to be a freaking triathlete. I ran marathons. I rode in 100-mile bike races. I surfed. I danced ballet. I was phenomenally fit. I rocked a bikini.

And now I don’t do any of the above. I can’t speak for men, but as a woman, this is horrible. Blame it on society. Blame it on the media. Maybe it’s my own fault. I have to work really hard to remember “it is what it is” when it comes to my physical appearance. My body changes all the time. Five pounds up, eight pounds down. Some days strong, some days weak. I can only go with the flow my health decides.

11. Having a health/chronic condition forced us to reevaluate our finances.

The Prada bag, Miu Miu sandals, iPhone, Sushi dinners, yoga classes, and those darn Caramel Frappuccino® Blended Coffees topped with extra whip and more caramel sauce go out the door. We’re now too busy paying co-pays, out-of-network fees, things that aren’t covered, and prescription costs, in addition to covering missed days at work or non-existent paychecks to pay for any extras. We learned long ago to sayonara the fun stuff — movies and dinners and manicures and shopping days.

The good news is it forced us to be more creative and adventurous when it comes to fun. The not-so-great news is sometimes our friends and/or our kids’ friends aren’t as excited about freebie fun, so we often have to say, “No, thanks,” to their invitations to activities that cost money.

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12. It makes us question who we are and who we’re capable of being.

We have to work hard not to limit ourselves. “It is what it is” must be used correctly so as to accept reality, but not limit ourselves. We must remember we’re still us, we’re still capable of success, we’re talented and have a lot to offer this world. No matter how shitty we feel.

13. We work hard to show our children we’re doing OK.

Sometimes, our health condition scares us. Once in a while, we worry about the future. We hate to think about finances.

I don’t lie to our kids, but I don’t want them to be afraid either. I want them to be strong because they, too, have health issues they will never be rid of. They will have to grow up with heart conditions. They will have to overcome and live “normal” lives. How can they do that if they see their mother falling apart on a daily basis? They won’t. So I don’t. They know what’s up and they also know “It is what it is,” and they’re able to rise above.

14. There are upsides.

That sounds like a crock. But honestly, there are some good things that come of having a chronic health condition. We’ve learned to change our perspectives about a great deal of things. It’s simple with practice.

15. Priorities change. For the better.

Since I’ve gotten sick, I’ve learned to realign my priorities. I don’t sweat the small stuff anymore. Surprisingly, my stress levels have decreased dramatically. My house doesn’t have to be spotless. I don’t have to be the faultless wife and mom, who looks 14 years younger than I am. I don’t feel the need to have perfect children who get the best grades, who do every sport and are involved in every activity. Having health conditions frees all of us from such pressures. We do the best we can do in whatever we choose to do and are a hell of a lot happier.

While I’d never hope for a chronic health condition, I’m stuck with one. It is what it is. I can only learn to live with it and make my life the best it can be.

Featured photo credit: Amy Kellogg via flickr.com

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Missy Mitchell

Author, Artist, Advocate

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Last Updated on September 18, 2020

7 Simple Rules to Live by to Get in Shape in Two Weeks

7 Simple Rules to Live by to Get in Shape in Two Weeks

Learning how to get in shape and set goals is important if you’re looking to live a healthier lifestyle and get closer to your goal weight. While this does require changes to your daily routine, you’ll find that you are able to look and feel better in only two weeks.

Over the years, I’ve learned a lot about what it takes to get in shape. Although anyone can cover the basics (eat right and exercise), there are some things that I could only learn through trial and error. Let’s cover some of the most important points for how to get in shape in two weeks.

1. Exercise Daily

It is far easier to make exercise a habit if it is a daily one. If you aren’t exercising at all, I recommend starting by exercising a half hour every day. When you only exercise a couple times per week, it is much easier to turn one day off into three days off, a week off, or a month off.

If you are already used to exercising, switching to three or four times a week to fit your schedule may be preferable, but it is a lot harder to maintain a workout program you don’t do every day.

Be careful to not repeat the same exercise routine each day. If you do an intense ab workout one day, try switching it up to general cardio the next. You can also squeeze in a day of light walking to break up the intensity.

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If you’re a morning person, check out these morning exercises that will start your day off right.

2. Duration Doesn’t Substitute for Intensity

Once you get into the habit of regular exercise, where do you go if you still aren’t reaching your goals? Most people will solve the problem by exercising for longer periods of time, turning forty-minute workouts into two hour stretches. Not only does this drain your time, but it doesn’t work particularly well.

One study shows that “exercising for a whole hour instead of a half does not provide any additional loss in either body weight or fat”[1].

This is great news for both your schedule and your levels of motivation. You’ll likely find it much easier to exercise for 30 minutes a day instead of an hour. In those 30 minutes, do your best to up the intensity to your appropriate edge to get the most out of the time.

3. Acknowledge Your Limits

Many people get frustrated when they plateau in their weight loss or muscle gaining goals as they’re learning how to get in shape. Everyone has an equilibrium and genetic set point where their body wants to remain. This doesn’t mean that you can’t achieve your fitness goals, but don’t be too hard on yourself if you are struggling to lose weight or put on muscle.

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Acknowledging a set point doesn’t mean giving up, but it does mean realizing the obstacles you face.

Expect to hit a plateau in your own fitness results[2]. When you expect a plateau, you can manage around it so you can continue your progress at a more realistic rate. When expectations meet reality, you can avoid dietary crashes.

4. Eat Healthy, Not Just Food That Looks Healthy

Know what you eat. Don’t fuss over minutia like whether you’re getting enough Omega 3’s or tryptophan, but be aware of the big things. Look at the foods you eat regularly and figure out whether they are healthy or not. Don’t get fooled by the deceptively healthy snacks just pretending to be good for you.

The basic nutritional advice includes:

  • Eat unprocessed foods
  • Eat more veggies
  • Use meat as a side dish, not a main course
  • Eat whole grains, not refined grains[3]

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Eat whole grains when you want to learn how to get in shape.

    5. Watch Out for Travel

    Don’t let a four-day holiday interfere with your attempts when you’re learning how to get in shape. I don’t mean that you need to follow your diet and exercise plan without any excursion, but when you are in the first few weeks, still forming habits, be careful that a week long break doesn’t terminate your progress.

    This is also true of schedule changes that leave you suddenly busy or make it difficult to exercise. Have a backup plan so you can be consistent, at least for the first month when you are forming habits.

    If travel is on your schedule and can’t be avoided, make an exercise plan before you go[4], and make sure to pack exercise clothes and an exercise mat as motivation to keep you on track.

    6. Start Slow

    Ever start an exercise plan by running ten miles and then puking your guts out? Maybe you aren’t that extreme, but burnout is common early on when learning how to get in shape. You have a lifetime to be healthy, so don’t try to go from couch potato to athletic superstar in a week.

    If you are starting a running regime, for example, run less than you can to start. Starting strength training? Work with less weight than you could theoretically lift. Increasing intensity and pushing yourself can come later when your body becomes comfortable with regular exercise.

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    7. Be Careful When Choosing a Workout Partner

    Should you have a workout partner? That depends. Workout partners can help you stay motivated and make exercising more fun. But they can also stop you from reaching your goals.

    My suggestion would be to have a workout partner, but when you start to plateau (either in physical ability, weight loss/gain, or overall health) and you haven’t reached your goals, consider mixing things up a bit.

    If you plateau, you may need to make changes to continue improving. In this case it’s important to talk to your workout partner about the changes you want to make, and if they don’t seem motivated to continue, offer a thirty day break where you both try different activities.

    I notice that guys working out together tend to match strength after a brief adjustment phase. Even if both are trying to improve, something seems to stall improvement once they reach a certain point. I found that I was able to lift as much as 30-50% more after taking a short break from my regular workout partner.

    Final Thoughts

    Learning how to get in shape in as little as two weeks sounds daunting, but if you’re motivated and have the time and energy to devote to it, it’s certainly possible.

    Find an exercise routine that works for you, eat healthy, drink lots of water, and watch as the transformation begins.

    More Tips on Getting in Shape

    Featured photo credit: Alexander Redl via unsplash.com

    Reference

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