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15 Things Only People Living With A Health Problem Know

15 Things Only People Living With A Health Problem Know

I used to be that person, the one who was disgustingly fit, annoyingly thin, and perfectly in shape. As a runner, triathlete, and personal trainer, I was the picture of good health. Even though I’d had heart surgery when I was a child, I hadn’t experienced any issues or symptoms since then. Heck, I still I enjoyed my lifestyle, including the occasional overindulgence (PMS chocolate binges, cervezas at sunset by the beach, and 2 a.m. rolled tacos after a night of dancing downtown).

Life was good.

Until my heart decided to go haywire. Suddenly, I was living with a “health condition,” or what some cardiologists refer to as a “critical congenital heart disease.” I was sick. And I wasn’t going to get better. Life, as I knew it, was over. I quickly realized that unless I wanted to spend the rest of my life hiding in the corner of my room, crying, I’d better learn to adapt to my new situation. It’s taken a lot of work, but after meeting a ton of other people like me, here’s what I learned on my journey to acceptance.

1. It is what it is.

Biggest lesson ever: It is what it is. There’s nothing we can do to change the situation, so we might as well accept it and move on. This doesn’t mean we ignore it or even like it. It simply means we choose not to curl up in little balls and cry, nor do we spend hours stressing over it or the outcomes. We’ve realized that’s wasted time and energy that can be used elsewhere. Like on baking chocolate brownies.

2. We’re not faking.

Some days, we feel like crap for no reason. We woke up feeling that way. Or we did laundry, which made us feel awful. Or we took meds, which made us sick. There’s no rhyme or reason why we feel sick, we just do. Hopefully, time, fresh air, a good book, a little nap, or some different medications to counter the first medications will help. Something. Anything. It’s a toss-up and every day is different. Just when you think you’ve figured out our symptoms, or when you believe you know what will help, everything’s probably changed again. Sorry.

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3. We don’t like being sick.

It may seem like we enjoy the attention or we’re seeking it, or we conveniently get sick at just the right time, but that’s not the case. We know we were fine a few minutes ago, which makes it very suspicious that we’re all of a sudden deathly ill. Since you’re not inside our bodies, we’re certain it’s difficult to understand. It is for us as well. Sometimes anxiety exacerbates our symptoms, which may make it look like we’re trying to get out of things, but that’s not the case. Please believe us.

(By the way, you’ll see this a lot with kids with chronic illnesses. They don’t try to be sick to get out of school or things they don’t want to do, though it may appear that way. Please believe and understand them.)

4. Having a health problem isn’t the same as being sick with a cold or flu.

Being sick sucks no matter what. When you have a bad cold or flu, we feel bad for you. We do. But our chronic illness isn’t the same. We’re not trying to one-up you, we’re just saying our situation isn’t something that will go away in a few days. It’s also not something a nice, warm cup of tea and some Ibuprofen will take care of. We can’t down a shot of NyQuil and be done with it. We need about five meds in the morning just to survive. Thank you for your suggestions, but we’ve probably tried everything. Even the natural stuff.

5. The excuse, “I can’t because I have a doctor’s appointment,” isn’t an excuse.

It’s true. We always have doctor appointments. We’ve had to schedule and reschedule babysitters, change work schedules, rearrange the kids’ sports activities, cancel social plans (what social plans??), and even been laid off from jobs because of the obscene amount of medical appointments, procedures, and surgeries. We’re not complaining. We know we’re lucky to have such good medical care, but it gets old after a while. We’re sure it gets old hearing it, too. “Oh, another doctor appointment? Shocker.”

6. The pharmacy is our second home.

Most people call Starbucks or something cool their second homes.

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We spend so much time at CVS getting our prescriptions, we figure, “What the hell,” and so we pick up some milk and laundry detergent and bread while we’re there. We spend hundreds of dollars a month for medications, why not add a few things to the bill? Especially chocolate. Lots and lots of chocolate.

7. We might as well be nurses and pharmacists.

All we do is research and read research articles and talk to nurses, physicians, and pharmacists. And then we research some more. We’ve spent years learning about medications and treatments and what does/doesn’t work. We seem to know so much that even you come to us for advice. Yep. We’ve probably considered a change in careers (at least, many of the moms probably have).

8. We always know what to pack for the day.

We’re the ones with the Band Aids, the Tylenol, the Motrin, the baby aspirin, the tweezers, the nausea medicine, the motion sickness medicine, the gauze bandages, the wraps, the emergency blankets, the emesis basin, the tourniquet, the antibiotic ointment, the latex gloves, the antiseptics, the defibrillator, the….God, who knows. Trust us. We have everything anyone needs for an emergency.

You’re welcome.

9. You can’t see our illness.

Unless we’re topless or in a bikini. Yeah, good luck with that.

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A lot of people have health conditions or chronic conditions that can’t been seen on the outside. For example, my heart is sick. You wouldn’t know unless you saw me walking up a flight of stairs, huffing and puffing. You’d probably think, “Wow, she looks kind of young to be so out of shape.” I’d have to take off my top to show you all my scars from all my recent surgeries for you to know something was wrong. That’s the difficult thing about my illness. Same with my kids. My daughter has only half a working heart. Sometimes we park in a disabled parking spot, either for her or me. People stare, wondering why on earth we have the blue placard hanging from our rearview mirror.

10. Our bodies change.

Having a health condition or chronic illness means accepting our bodies for whatever they decide to do or be—no matter what we do or don’t do. I used to be a freaking triathlete. I ran marathons. I rode in 100-mile bike races. I surfed. I danced ballet. I was phenomenally fit. I rocked a bikini.

And now I don’t do any of the above. I can’t speak for men, but as a woman, this is horrible. Blame it on society. Blame it on the media. Maybe it’s my own fault. I have to work really hard to remember “it is what it is” when it comes to my physical appearance. My body changes all the time. Five pounds up, eight pounds down. Some days strong, some days weak. I can only go with the flow my health decides.

11. Having a health/chronic condition forced us to reevaluate our finances.

The Prada bag, Miu Miu sandals, iPhone, Sushi dinners, yoga classes, and those darn Caramel Frappuccino® Blended Coffees topped with extra whip and more caramel sauce go out the door. We’re now too busy paying co-pays, out-of-network fees, things that aren’t covered, and prescription costs, in addition to covering missed days at work or non-existent paychecks to pay for any extras. We learned long ago to sayonara the fun stuff — movies and dinners and manicures and shopping days.

The good news is it forced us to be more creative and adventurous when it comes to fun. The not-so-great news is sometimes our friends and/or our kids’ friends aren’t as excited about freebie fun, so we often have to say, “No, thanks,” to their invitations to activities that cost money.

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12. It makes us question who we are and who we’re capable of being.

We have to work hard not to limit ourselves. “It is what it is” must be used correctly so as to accept reality, but not limit ourselves. We must remember we’re still us, we’re still capable of success, we’re talented and have a lot to offer this world. No matter how shitty we feel.

13. We work hard to show our children we’re doing OK.

Sometimes, our health condition scares us. Once in a while, we worry about the future. We hate to think about finances.

I don’t lie to our kids, but I don’t want them to be afraid either. I want them to be strong because they, too, have health issues they will never be rid of. They will have to grow up with heart conditions. They will have to overcome and live “normal” lives. How can they do that if they see their mother falling apart on a daily basis? They won’t. So I don’t. They know what’s up and they also know “It is what it is,” and they’re able to rise above.

14. There are upsides.

That sounds like a crock. But honestly, there are some good things that come of having a chronic health condition. We’ve learned to change our perspectives about a great deal of things. It’s simple with practice.

15. Priorities change. For the better.

Since I’ve gotten sick, I’ve learned to realign my priorities. I don’t sweat the small stuff anymore. Surprisingly, my stress levels have decreased dramatically. My house doesn’t have to be spotless. I don’t have to be the faultless wife and mom, who looks 14 years younger than I am. I don’t feel the need to have perfect children who get the best grades, who do every sport and are involved in every activity. Having health conditions frees all of us from such pressures. We do the best we can do in whatever we choose to do and are a hell of a lot happier.

While I’d never hope for a chronic health condition, I’m stuck with one. It is what it is. I can only learn to live with it and make my life the best it can be.

Featured photo credit: Amy Kellogg via flickr.com

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Missy Mitchell

Author, Artist, Advocate

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Last Updated on January 15, 2019

8 Simple Mindfulness Exercises to Bring Peace and Happiness to Your Life

8 Simple Mindfulness Exercises to Bring Peace and Happiness to Your Life

In life, we all need to be conscientious of what we are doing. You don’t need to live a life of stress if you don’t want to. You can achieve peace and happiness in life by carefully building mindfulness exercises into your life’s routine.

Exercising mindfulness isn’t rocket science and as importantly, you can do it. It will, however, take a few tries to get into the groove of things but once you get it, it is like riding a bike, you will never lose it.

Trust me. It’s in your best interest to learn and put these mindfulness exercises into practice. In this article, I will share with you 8 mindfulness exercises that will help you to boost your energy, vitality and live a more peaceful and happier life.

Why Is It Hard to Live A Peaceful And Happy Life?

Our Habitat Has Become Too Technological

The world has accepted the idea that technology is often the cure for all evil. We have accepted, as a society, that everything technological will make us live a better life without fully investigating the many side effects that modernity brings.

There are a number of technological side effects that have a tremendous impact on your life that the media rarely tells you about.[1] Some of them include self-harm, economic inequality, having less sex, and even suicide. The global community is becoming less happy because of technology.

How can anybody live a peaceful and happy life when they are depressed? Technology advancements, ladies and gents, is a major reason for why we are living a poor life because it has infiltrated our lives too much.

According to my research, Americans spend an average of 8 hours a day looking at the computer screen — The average screen time spent on smartphones alone is about 20 hours per week. That’s a lot! No wonder why living a happy and peaceful life is so difficult these days.

Too Many People Don’t Want to Unplug

Americans check their phones an average of 80 times during vacation.[2] Some admit to checking their smartphones 300 times every single day. In countries like Brazil, India and China, the situation is no different.

The reality is that people are constantly plugged into technological devices and this behavior is literally making people all over the globe fight an inner war with themselves, which consequently makes them very sad. As we know, war is the enemy of peace which won’t make anybody happy.

Listen carefully:

We have a global anxiety epidemic because people don’t want to unplug from their smartphones and most people aren’t doing anything to fix it. It is a sad state of affairs but very real. This obsession with technology is turning us into perishable robots who live terrible lives.

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The era of anxiety is here to stay. There is little doubt about it. We can, however, fight back with the best remedy of all — We call it mindfulness!

Thank God there is an antidote to this whole technological madness. Without further ado, let’s go straight to the mindful exercises.

8 Mindfulness Exercises to Start Practicing

There are tons of mindfulness exercises available for you to engage with out there.[3] In the paragraphs below, I will include the best ones I’ve personally tried or have seen my close friends and family members try.

Are you ready for it? Let’s go!

1. Pray Daily

You should pray on a daily basis. Why is that you may ask — Well, because science has told us to do so.

When people pray, they feel peaceful, almost eliminating anxiety. Worries become secondary, and often gives people energy and hope to cope with the difficulties of life.

Prayer can make you more confident and focused. Prayer also helps you with self-control, helps to control pain, and can protect you against illnesses and disorders like cancer and high blood pressure. At least, this is what researchers from Harvard Medical School have said.[4]

Pray. You won’t regret it.[5]

2. Pay Attention to Your Inner Thoughts

A lot of people allow themselves to be influenced by their negative thoughts. Be different and resist believing in them. It is a bad habit that can lead to unhappiness.

By the way, if you do feel this way, chances are high that somebody other than you put these thoughts into your head.

Here is my secret to combat this cancer — look at things objectively. I bet that if you look at things as they are, you will realize that most if not all of your negative thoughts are only inside of your head.

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If you pay close attention, you will quickly realize that these voices aren’t worth your time. Believe me — Ignoring them and looking at things with objectivity is often the best course of action.

This article can guide you to beat negative thoughts:

How to Stop Automatic Negative Thoughts When You’re Overwhelmed

3. Smile Often

Smiling will slow down your heart. It will also relax your body because when you smile, your body releases endorphins which in itself has a number of positive benefits for you as a person.

Smile often! You may want to smile early in the morning, during the day, and late in the evening. It is amazing what happens to you when you decide to smile instead of being grumpy.

Surrender your problems to a nice smile. You will notice two things. First, most people just don’t which makes them live a miserable life. Second, if you decide to smile often, you will eventually smile unconsciously which is the ideal.

The moment that you smile unconsciously, you then know that you are truly happy.

4. Organize Your Working Desk

A messy desk will make you less productive and can agitate and overstimulate you. You don’t want that.

When you clear your desk, you engage in deep inner-thinking and your systematic decision making ends up becoming therapeutic.

Most people realize that they are most creative when their creative space is clean and organized. The former often makes people more aware of what they are doing which lends to less stress and more productivity.

Organizing your desk will also make you more energetic and focused because order often decreases chaos which is a condition that often slows down daily progress.

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5. Celebrate Your Friend’s Victories

I love this mindful exercise. One of the best ways to live a happy and peaceful life is to celebrate the victories of others. When you do that, you automatically make your friends in a better mood which makes you in a better mood, as well.

Happiness is contagious! We might as well celebrate others as much as we can. If you find out that your peer has won an award, celebrate with him! If your friend is the recipient of a local charity award, celebrate with her!

What is also awesome is that when you celebrate with others, they often celebrate with you in return. This, ladies and gentleman, will make you feel fantastic. You can’t go wrong with this one, period.

6. Listen to Your Spouse/Partner

God put someone in your life for a reason. You might as well listen to him or her.

I listen to my wife everyday. In fact, I often ask the following question to her, “Amanda, what are your thoughts about…” or “What am I missing about…” It is shocking what I hear back from her. Without her having much context and perspective, by the art of observation in my own nonverbal behavior and the behavior of others, she accurately gives me incredible insights which helps me out with living my life to the fullest.

I’m a firm believer that spouses are supposed to engage in interpersonal communication every day. I most definitely do and will continue doing it. You should do the same.

7. Give Yourself a Break from Technology

You can’t be in total equilibrium if your computerized devices control your life. You must get away from technology on a daily basis.[6]

How do you do that? This is my formula:

First, go to my website (find my website here in my profile) and take the smartphone control test. It is only ten questions but this test will place you somewhere in the human robot cycle continuum.

If your score is between 25-30, take a break from the computer (or smartphone, pad, laptop/desktop) every twenty minutes and stop being on a computerized device after 8:00pm.

If you score between 30-35, still take a break every 20 minutes but stop being on these devices at 5:00pm.

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If you score more than 35, you need to take action immediately.

Limit computer use as much as possible throughout the day. Give yourself as many breaks from the computer as possible. Are you ready for the challenge?

8. Go Exercise

Go exercise at least three times a week. I don’t care if you need to workout early in the morning, late in the evening, on the weekends or during work days. Working out is absolutely imperative for you to live happy and peaceful life.

The stresses of the modern world are too much for you to neglect this important mindfulness exercise. When you go to the gym, you burn calories, focus on activities one step at a time, your mind relaxes, anxiety decreases, you sweat and often think about topics unrelated to your work place among many other benefits.

You must exercise at least three hours each week for optimum results. Why? Just take a look at all the benefits of regular exercising:

12 Benefits of Regular Exercise You Should Know

The Bottom Line

It’s in your best interest to learn and put these mindfulness exercises into practice. Now that our habitat has become too technological and many people just don’t want to unplug, engaging in daily prayer, celebrate your friends’ victories, and listening to your spouse are among the best ways to be mindful about what you are doing and how you are living.

It is possible to live a happy and peaceful life. It only depends on you.

Go exercise! Take a break from technology and invest in you! Life is too short for distractions.

More Resources About Mindfulness

Featured photo credit: Lesly Juarez via unsplash.com

Reference

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