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15 Things Only People Living With A Health Problem Know

15 Things Only People Living With A Health Problem Know

I used to be that person, the one who was disgustingly fit, annoyingly thin, and perfectly in shape. As a runner, triathlete, and personal trainer, I was the picture of good health. Even though I’d had heart surgery when I was a child, I hadn’t experienced any issues or symptoms since then. Heck, I still I enjoyed my lifestyle, including the occasional overindulgence (PMS chocolate binges, cervezas at sunset by the beach, and 2 a.m. rolled tacos after a night of dancing downtown).

Life was good.

Until my heart decided to go haywire. Suddenly, I was living with a “health condition,” or what some cardiologists refer to as a “critical congenital heart disease.” I was sick. And I wasn’t going to get better. Life, as I knew it, was over. I quickly realized that unless I wanted to spend the rest of my life hiding in the corner of my room, crying, I’d better learn to adapt to my new situation. It’s taken a lot of work, but after meeting a ton of other people like me, here’s what I learned on my journey to acceptance.

1. It is what it is.

Biggest lesson ever: It is what it is. There’s nothing we can do to change the situation, so we might as well accept it and move on. This doesn’t mean we ignore it or even like it. It simply means we choose not to curl up in little balls and cry, nor do we spend hours stressing over it or the outcomes. We’ve realized that’s wasted time and energy that can be used elsewhere. Like on baking chocolate brownies.

2. We’re not faking.

Some days, we feel like crap for no reason. We woke up feeling that way. Or we did laundry, which made us feel awful. Or we took meds, which made us sick. There’s no rhyme or reason why we feel sick, we just do. Hopefully, time, fresh air, a good book, a little nap, or some different medications to counter the first medications will help. Something. Anything. It’s a toss-up and every day is different. Just when you think you’ve figured out our symptoms, or when you believe you know what will help, everything’s probably changed again. Sorry.

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3. We don’t like being sick.

It may seem like we enjoy the attention or we’re seeking it, or we conveniently get sick at just the right time, but that’s not the case. We know we were fine a few minutes ago, which makes it very suspicious that we’re all of a sudden deathly ill. Since you’re not inside our bodies, we’re certain it’s difficult to understand. It is for us as well. Sometimes anxiety exacerbates our symptoms, which may make it look like we’re trying to get out of things, but that’s not the case. Please believe us.

(By the way, you’ll see this a lot with kids with chronic illnesses. They don’t try to be sick to get out of school or things they don’t want to do, though it may appear that way. Please believe and understand them.)

4. Having a health problem isn’t the same as being sick with a cold or flu.

Being sick sucks no matter what. When you have a bad cold or flu, we feel bad for you. We do. But our chronic illness isn’t the same. We’re not trying to one-up you, we’re just saying our situation isn’t something that will go away in a few days. It’s also not something a nice, warm cup of tea and some Ibuprofen will take care of. We can’t down a shot of NyQuil and be done with it. We need about five meds in the morning just to survive. Thank you for your suggestions, but we’ve probably tried everything. Even the natural stuff.

5. The excuse, “I can’t because I have a doctor’s appointment,” isn’t an excuse.

It’s true. We always have doctor appointments. We’ve had to schedule and reschedule babysitters, change work schedules, rearrange the kids’ sports activities, cancel social plans (what social plans??), and even been laid off from jobs because of the obscene amount of medical appointments, procedures, and surgeries. We’re not complaining. We know we’re lucky to have such good medical care, but it gets old after a while. We’re sure it gets old hearing it, too. “Oh, another doctor appointment? Shocker.”

6. The pharmacy is our second home.

Most people call Starbucks or something cool their second homes.

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We spend so much time at CVS getting our prescriptions, we figure, “What the hell,” and so we pick up some milk and laundry detergent and bread while we’re there. We spend hundreds of dollars a month for medications, why not add a few things to the bill? Especially chocolate. Lots and lots of chocolate.

7. We might as well be nurses and pharmacists.

All we do is research and read research articles and talk to nurses, physicians, and pharmacists. And then we research some more. We’ve spent years learning about medications and treatments and what does/doesn’t work. We seem to know so much that even you come to us for advice. Yep. We’ve probably considered a change in careers (at least, many of the moms probably have).

8. We always know what to pack for the day.

We’re the ones with the Band Aids, the Tylenol, the Motrin, the baby aspirin, the tweezers, the nausea medicine, the motion sickness medicine, the gauze bandages, the wraps, the emergency blankets, the emesis basin, the tourniquet, the antibiotic ointment, the latex gloves, the antiseptics, the defibrillator, the….God, who knows. Trust us. We have everything anyone needs for an emergency.

You’re welcome.

9. You can’t see our illness.

Unless we’re topless or in a bikini. Yeah, good luck with that.

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A lot of people have health conditions or chronic conditions that can’t been seen on the outside. For example, my heart is sick. You wouldn’t know unless you saw me walking up a flight of stairs, huffing and puffing. You’d probably think, “Wow, she looks kind of young to be so out of shape.” I’d have to take off my top to show you all my scars from all my recent surgeries for you to know something was wrong. That’s the difficult thing about my illness. Same with my kids. My daughter has only half a working heart. Sometimes we park in a disabled parking spot, either for her or me. People stare, wondering why on earth we have the blue placard hanging from our rearview mirror.

10. Our bodies change.

Having a health condition or chronic illness means accepting our bodies for whatever they decide to do or be—no matter what we do or don’t do. I used to be a freaking triathlete. I ran marathons. I rode in 100-mile bike races. I surfed. I danced ballet. I was phenomenally fit. I rocked a bikini.

And now I don’t do any of the above. I can’t speak for men, but as a woman, this is horrible. Blame it on society. Blame it on the media. Maybe it’s my own fault. I have to work really hard to remember “it is what it is” when it comes to my physical appearance. My body changes all the time. Five pounds up, eight pounds down. Some days strong, some days weak. I can only go with the flow my health decides.

11. Having a health/chronic condition forced us to reevaluate our finances.

The Prada bag, Miu Miu sandals, iPhone, Sushi dinners, yoga classes, and those darn Caramel Frappuccino® Blended Coffees topped with extra whip and more caramel sauce go out the door. We’re now too busy paying co-pays, out-of-network fees, things that aren’t covered, and prescription costs, in addition to covering missed days at work or non-existent paychecks to pay for any extras. We learned long ago to sayonara the fun stuff — movies and dinners and manicures and shopping days.

The good news is it forced us to be more creative and adventurous when it comes to fun. The not-so-great news is sometimes our friends and/or our kids’ friends aren’t as excited about freebie fun, so we often have to say, “No, thanks,” to their invitations to activities that cost money.

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12. It makes us question who we are and who we’re capable of being.

We have to work hard not to limit ourselves. “It is what it is” must be used correctly so as to accept reality, but not limit ourselves. We must remember we’re still us, we’re still capable of success, we’re talented and have a lot to offer this world. No matter how shitty we feel.

13. We work hard to show our children we’re doing OK.

Sometimes, our health condition scares us. Once in a while, we worry about the future. We hate to think about finances.

I don’t lie to our kids, but I don’t want them to be afraid either. I want them to be strong because they, too, have health issues they will never be rid of. They will have to grow up with heart conditions. They will have to overcome and live “normal” lives. How can they do that if they see their mother falling apart on a daily basis? They won’t. So I don’t. They know what’s up and they also know “It is what it is,” and they’re able to rise above.

14. There are upsides.

That sounds like a crock. But honestly, there are some good things that come of having a chronic health condition. We’ve learned to change our perspectives about a great deal of things. It’s simple with practice.

15. Priorities change. For the better.

Since I’ve gotten sick, I’ve learned to realign my priorities. I don’t sweat the small stuff anymore. Surprisingly, my stress levels have decreased dramatically. My house doesn’t have to be spotless. I don’t have to be the faultless wife and mom, who looks 14 years younger than I am. I don’t feel the need to have perfect children who get the best grades, who do every sport and are involved in every activity. Having health conditions frees all of us from such pressures. We do the best we can do in whatever we choose to do and are a hell of a lot happier.

While I’d never hope for a chronic health condition, I’m stuck with one. It is what it is. I can only learn to live with it and make my life the best it can be.

Featured photo credit: Amy Kellogg via flickr.com

More by this author

Missy Mitchell

Author, Artist, Advocate

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Last Updated on September 16, 2019

How to Stop Procrastinating: 11 Practical Ways for Procrastinators

How to Stop Procrastinating: 11 Practical Ways for Procrastinators

You have a deadline looming. However, instead of doing your work, you are fiddling with miscellaneous things like checking email, social media, watching videos, surfing blogs and forums. You know you should be working, but you just don’t feel like doing anything.

We are all familiar with the procrastination phenomenon. When we procrastinate, we squander away our free time and put off important tasks we should be doing them till it’s too late. And when it is indeed too late, we panic and wish we got started earlier.

The chronic procrastinators I know have spent years of their life looped in this cycle. Delaying, putting off things, slacking, hiding from work, facing work only when it’s unavoidable, then repeating this loop all over again. It’s a bad habit that eats us away and prevents us from achieving greater results in life.

Don’t let procrastination take over your life. Here, I will share my personal steps on how to stop procrastinating. These 11 steps will definitely apply to you too:

1. Break Your Work into Little Steps

Part of the reason why we procrastinate is because subconsciously, we find the work too overwhelming for us. Break it down into little parts, then focus on one part at the time. If you still procrastinate on the task after breaking it down, then break it down even further. Soon, your task will be so simple that you will be thinking “gee, this is so simple that I might as well just do it now!”.

For example, I’m currently writing a new book (on How to achieve anything in life). Book writing at its full scale is an enormous project and can be overwhelming. However, when I break it down into phases such as –

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  • (1) Research
  • (2) Deciding the topic
  • (3) Creating the outline
  • (4) Drafting the content
  • (5) Writing Chapters #1 to #10,
  • (6) Revision
  • (7) etc.

Suddenly it seems very manageable. What I do then is to focus on the immediate phase and get it done to my best ability, without thinking about the other phases. When it’s done, I move on to the next.

2. Change Your Environment

Different environments have different impact on our productivity. Look at your work desk and your room. Do they make you want to work or do they make you want to snuggle and sleep? If it’s the latter, you should look into changing your workspace.

One thing to note is that an environment that makes us feel inspired before may lose its effect after a period of time. If that’s the case, then it’s time to change things around. Refer to Steps #2 and #3 of 13 Strategies To Jumpstart Your Productivity, which talks about revamping your environment and workspace.

3. Create a Detailed Timeline with Specific Deadlines

Having just 1 deadline for your work is like an invitation to procrastinate. That’s because we get the impression that we have time and keep pushing everything back, until it’s too late.

Break down your project (see tip #1), then create an overall timeline with specific deadlines for each small task. This way, you know you have to finish each task by a certain date. Your timelines must be robust, too – i.e. if you don’t finish this by today, it’s going to jeopardize everything else you have planned after that. This way it creates the urgency to act.

My goals are broken down into monthly, weekly, right down to the daily task lists, and the list is a call to action that I must accomplish this by the specified date, else my goals will be put off.

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Here’re more tips on setting deadlines: 22 Tips for Effective Deadlines

4. Eliminate Your Procrastination Pit-Stops

If you are procrastinating a little too much, maybe that’s because you make it easy to procrastinate.

Identify your browser bookmarks that take up a lot of your time and shift them into a separate folder that is less accessible. Disable the automatic notification option in your email client. Get rid of the distractions around you.

I know some people will out of the way and delete or deactivate their facebook accounts. I think it’s a little drastic and extreme as addressing procrastination is more about being conscious of our actions than counteracting via self-binding methods, but if you feel that’s what’s needed, go for it.

5. Hang out with People Who Inspire You to Take Action

I’m pretty sure if you spend just 10 minutes talking to Steve Jobs or Bill Gates, you’ll be more inspired to act than if you spent the 10 minutes doing nothing. The people we are with influence our behaviors. Of course spending time with Steve Jobs or Bill Gates every day is probably not a feasible method, but the principle applies — The Hidden Power of Every Single Person Around You

Identify the people, friends or colleagues who trigger you – most likely the go-getters and hard workers – and hang out with them more often. Soon you will inculcate their drive and spirit too.

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As a personal development blogger, I “hang out” with inspiring personal development experts by reading their blogs and corresponding with them regularly via email and social media. It’s communication via new media and it works all the same.

6. Get a Buddy

Having a companion makes the whole process much more fun. Ideally, your buddy should be someone who has his/her own set of goals. Both of you will hold each other accountable to your goals and plans. While it’s not necessary for both of you to have the same goals, it’ll be even better if that’s the case, so you can learn from each other.

I have a good friend whom I talk to regularly, and we always ask each other about our goals and progress in achieving those goals. Needless to say, it spurs us to keep taking action.

7. Tell Others About Your Goals

This serves the same function as #6, on a larger scale. Tell all your friends, colleagues, acquaintances and family about your projects. Now whenever you see them, they are bound to ask you about your status on those projects.

For example, sometimes I announce my projects on The Personal Excellence Blog, Twitter and Facebook, and my readers will ask me about them on an ongoing basis. It’s a great way to keep myself accountable to my plans.

8. Seek out Someone Who Has Already Achieved the Outcome

What is it you want to accomplish here, and who are the people who have accomplished this already? Go seek them out and connect with them. Seeing living proof that your goals are very well achievable if you take action is one of the best triggers for action.

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9. Re-Clarify Your Goals

If you have been procrastinating for an extended period of time, it might reflect a misalignment between what you want and what you are currently doing. Often times, we outgrow our goals as we discover more about ourselves, but we don’t change our goals to reflect that.

Get away from your work (a short vacation will be good, else just a weekend break or staycation will do too) and take some time to regroup yourself. What exactly do you want to achieve? What should you do to get there? What are the steps to take? Does your current work align with that? If not, what can you do about it?

10. Stop Over-Complicating Things

Are you waiting for a perfect time to do this? That maybe now is not the best time because of X, Y, Z reasons? Ditch that thought because there’s never a perfect time. If you keep waiting for one, you are never going to accomplish anything.

Perfectionism is one of the biggest reasons for procrastination. Read more about why perfectionist tendencies can be a bane than a boon: Why Being A Perfectionist May Not Be So Perfect.

11. Get a Grip and Just Do It

At the end, it boils down to taking action. You can do all the strategizing, planning and hypothesizing, but if you don’t take action, nothing’s going to happen. Occasionally, I get readers and clients who keep complaining about their situations but they still refuse to take action at the end of the day.

Reality check:

I have never heard anyone procrastinate their way to success before and I doubt it’s going to change in the near future.  Whatever it is you are procrastinating on, if you want to get it done, you need to get a grip on yourself and do it.

More About Procrastination

Featured photo credit: Malvestida Magazine via unsplash.com

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