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What the Parents Of Kids With Down Syndrome Want You To Know

What the Parents Of Kids With Down Syndrome Want You To Know

Dear Stranger,

You may not realize it, but I see you watching my child. Your eyes are everywhere: at the playground, the school, and even in the grocery store. Your stare follows us, and I can even feel your thoughts. You’re wondering about my child, why he looks different, pitying us for our misfortune of having him, feeling sorry for the life my family is living – a life where my child has been diagnosed with Down Syndrome. Passing judgment is such an easy thing to do, but before you judge us, I want you to understand some things about my child.

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The first thing that I need you to understand is that neither myself nor my child have chosen the road of Down Syndrome. It is a difficult road full of intellectual and medical uncertainties, such as lower IQ, heart defects, deafness, and respiratory infections. But no mistakes were made during pregnancy to cause my child to have Down Syndrome. Sometimes things happen that you didn’t see coming. In my child’s DNA, one extra copy of chromosome 21 changed the entire life of my child. It’s that one extra copy that sets my child apart from yours, but please know he isn’t all that different.

It can be seen from the outside that my child has Down Syndrome – this is why you look at him when we pass you. But take a moment to understand what is behind his appearance. His eyes may be slanted, but he holds all of the world’s laughter and joy inside of them. His mouth may look small while his tongue seems too large, but his smile will completely warm your heart. And while his arms may not be very strong, the hugs that he freely gives with them are powerful enough to hold a person together.

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You may have a hard time understanding my child’s speech, and if you saw his test scores you might not be too impressed. And long after your child has stopped having temper-tantrums, my child may still be going through them. But we are lucky to have such wonderful supports from school and Down Syndrome organizations, with therapies and kind teachers that push my child to succeed. My child may not make the milestones that yours does – but his are just as amazing.

Because my child has Down Syndrome, he is not going to be like yours. But in life, no two people are ever walking down the same path. Everyone has their own journey, and this journey is mine to take with my child. There is no doubt that the road ahead will be full of obstacles for us both. In a world made for everyone who is “normal,” it is not easy to fit in when you are so extraordinary. There will be times ahead of us that are filled with frustrations, and tears, as we are continually reminded of the differences between the “normal” world and our child. On these day we remind ourselves that our child is a gift, and no matter how difficult it may seem – he will change the world.

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So next time you see us in the mall, or the restaurant, or taking a walk on a sunny day, please don’t feel sorry for us, thinking about the life that he is destined to miss out on. Instead think of the life full of wonder that he experiences every day. Try to understand how special he is, and how luck we feel to have him. Though his heart may have defects on the outside, the inside of his heart is full of kindness and caring that he loves to give to the world. Share a smile with him, and I promise you won’t be disappointed at how quickly he will make your day.

Sincerely,
A Very Thankful Parent

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Featured photo credit: Rebecca Wilson via flickr.com

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Last Updated on March 24, 2021

8 Smart Home Gadgets You Need in Your House

8 Smart Home Gadgets You Need in Your House

We’ve all done it. We’ve gone out and bought useless gadgets that we don’t really need, just because they seemed really cool at the time. Then, we are stuck with a bunch of junk, and end up tossing it or trying to sell it on Ebay.

On the other hand, there are some pretty awesome tech inventions that are actually useful. For instance, many of the latest home gadgets do some of your work for you, from adjusting the home thermostat to locking your front door. And, if used as designed, these tools should really help to make your life a lot easier—and that’s not just a claim from some infomercial trying to sell you yet another useless gadget.

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Take a look at some of the most popular “smart gadgets” on the market:

1. Smart Door Locks

A smart lock lets you lock and unlock your doors by using your smartphone, a special key fob, or biometrics. These locks are keyless, and much more difficult for intruders to break into, making your home a lot safer. You can even use a special app to let people into your home if you are not there to greet them.

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2. Smart Kitchen Tools

Wouldn’t you just love to have a pot of coffee waiting for you when you get home from work? What about a “smart pan” that tells you exactly when you need to flip that omelet? From meat thermometers to kitchen scales, you’ll find a variety of “smart” gadgets designed to make culinary geeks salivate.

3. Mini Home Speaker Play:1

If you love big sound, but hate how much space big speakers take up, and if you want a stereo system that is no bigger than your fist, check out the Play:1 mini speaker. All you have to do is plug it in, connect, and then you can stream without worrying about any interruptions or interface. You can even add onto it, and have different music playing in different rooms.

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4. Wi-Fi Security Cameras

These are the latest in home security, and they connect to the Wi-Fi in your home. You can use your mobile devices to monitor what is going on in your home at all times, no matter where you are. Options include motion sensors, two-way audio, and different recording options.

5. Nest Thermostat

This is a thermostat that lives with you. It can sense seasonal changes, temperature changes, etc., and it will adjust itself automatically. You will never have to fiddle with a thermostat dial or keypad again, because this one basically does all of the work for you. It can also help you to save as much as 12% on heating bills, and 15% on cooling bills.

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6. Smart Lighting

Control your home lighting from your remote device. This is great if you are out and want to make sure that there are some lights on. It is designed to be energy efficient, so it will pay for itself over time because you won’t have to spend so much on your monthly energy bills.

7. Google Chromecast Ultra

Whether you love movies, television shows, music, etc., you can stream it all using Google Chromecast Ultra. Stream all of the entertainment you love in up to 4K UHD and HDR, for just $69 monthly.

8. Canary

This home security system will automatically contact emergency services when they are needed. This system offers both video and audio surveillance, so there will be evidence if there are any break-ins on your property. You can also use it to check up on what’s happening at home when you are not there, including to make sure the kids are doing their homework.

Featured photo credit: Karolina via kaboompics.com

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