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What the Parents Of Kids With Down Syndrome Want You To Know

What the Parents Of Kids With Down Syndrome Want You To Know

Dear Stranger,

You may not realize it, but I see you watching my child. Your eyes are everywhere: at the playground, the school, and even in the grocery store. Your stare follows us, and I can even feel your thoughts. You’re wondering about my child, why he looks different, pitying us for our misfortune of having him, feeling sorry for the life my family is living – a life where my child has been diagnosed with Down Syndrome. Passing judgment is such an easy thing to do, but before you judge us, I want you to understand some things about my child.

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The first thing that I need you to understand is that neither myself nor my child have chosen the road of Down Syndrome. It is a difficult road full of intellectual and medical uncertainties, such as lower IQ, heart defects, deafness, and respiratory infections. But no mistakes were made during pregnancy to cause my child to have Down Syndrome. Sometimes things happen that you didn’t see coming. In my child’s DNA, one extra copy of chromosome 21 changed the entire life of my child. It’s that one extra copy that sets my child apart from yours, but please know he isn’t all that different.

It can be seen from the outside that my child has Down Syndrome – this is why you look at him when we pass you. But take a moment to understand what is behind his appearance. His eyes may be slanted, but he holds all of the world’s laughter and joy inside of them. His mouth may look small while his tongue seems too large, but his smile will completely warm your heart. And while his arms may not be very strong, the hugs that he freely gives with them are powerful enough to hold a person together.

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You may have a hard time understanding my child’s speech, and if you saw his test scores you might not be too impressed. And long after your child has stopped having temper-tantrums, my child may still be going through them. But we are lucky to have such wonderful supports from school and Down Syndrome organizations, with therapies and kind teachers that push my child to succeed. My child may not make the milestones that yours does – but his are just as amazing.

Because my child has Down Syndrome, he is not going to be like yours. But in life, no two people are ever walking down the same path. Everyone has their own journey, and this journey is mine to take with my child. There is no doubt that the road ahead will be full of obstacles for us both. In a world made for everyone who is “normal,” it is not easy to fit in when you are so extraordinary. There will be times ahead of us that are filled with frustrations, and tears, as we are continually reminded of the differences between the “normal” world and our child. On these day we remind ourselves that our child is a gift, and no matter how difficult it may seem – he will change the world.

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So next time you see us in the mall, or the restaurant, or taking a walk on a sunny day, please don’t feel sorry for us, thinking about the life that he is destined to miss out on. Instead think of the life full of wonder that he experiences every day. Try to understand how special he is, and how luck we feel to have him. Though his heart may have defects on the outside, the inside of his heart is full of kindness and caring that he loves to give to the world. Share a smile with him, and I promise you won’t be disappointed at how quickly he will make your day.

Sincerely,
A Very Thankful Parent

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Featured photo credit: Rebecca Wilson via flickr.com

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Last Updated on January 25, 2021

What Should I Do Today? 30 New Things To Do Today

What Should I Do Today? 30 New Things To Do Today

It’s always fun to do something new, but often we fall into the trap of spending our weekends the same way.

If you’re stuck in the same old routine, it might be time to try something new.

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What should I do today? No ideas?

Everything listed here is something you can easily do no matter where you live, and even on a tight budget! Try out one of these 30 new things today, you’ll be happy you did.

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Try Out These 30 New Things To Do Today

  1. Visit a suburb in your city that you’ve never been to before, or somewhere you haven’t explored much.
  2. Learn ten phrases in a new language–what about Japanese, Italian or Portuguese?
  3. Listen to a genre of music you haven’t tried before–perhaps Jazz, Punk or Blues?
  4. Have a picnic in your local park complete with a packed lunch and your animal friends.
  5. Start a daily journal to write your thoughts in.
  6. Try a new cuisine–what about French, Lebanese or Korean?
  7. Visit your local library and borrow some books for the weekend.
  8. Plant some flowers in your garden. If you don’t have one, try an indoor potted plant.
  9. Visit a local museum or art gallery and view their latest exhibition.
  10. Learn a new skill–what about sewing, gardening or cooking? You’ll be surprised what you can learn in an afternoon.
  11. Say hello to a neighbor you don’t usually talk to.
  12. Make a card for a friend and send it to them with a handwritten note.
  13. Learn how to cook a new dish for dinner. We all get tired of eating the same thing, why not try making something new?
  14. Re-read an old favorite book. Don’t leave it gathering dust on your book shelf; get it out and read it all over again.
  15. Research the culture of a different country online–what about India, Guatemala or Sweden?
  16. Go for a walk or bicycle ride around your neighborhood.
  17. Watch a classic film like Casablanca, The Godfather or The Wizard of Oz.
  18. Make a photo album of a recent holiday you took. Don’t let your memories get lost on your computer hard drive; make a special keepsake album of your trip.
  19. Visit your local farmers markets and pick out some fresh produce. Farmers markets are full of delicious fresh fruit, veggies and more. Find your local market and take a visit.
  20. Plan a day trip to somewhere outside your city–it might be the seaside, mountains or another city!
  21. Check out what community events are running in your area and attend one.
  22. Make a birthday present for a friend. Handmade gifts are personal and much more special than anything you could buy from a store.
  23. Attend a play at your local theater. Support your local theater and have a fun night out at the same time.
  24. Volunteer with your local nature conservation society to plant some trees. Conservation societies are always looking for helping hands; do your bit and plant some trees.
  25. Be a tourist in your own city and visit all the popular tourist sites you’ve likely never been to (don’t forget your camera!)
  26. Call a friend you haven’t spoken to recently and have a good long chat.
  27. Put on your favorite song and dance your heart out. You might be surprised at how much fun you have!
  28. Invite some friends over for a BBQ. There’s nothing better than an afternoon spent with good friends and good food.
  29. Try out a new form of exercise like Pilates, tennis or swimming.
  30. Organize a clothing swap with your friends. You’ll have a great time, and save some cash and the environment all at the same time!

Now that you’ve read my list of 30 new things to try today, my question for you is, “what new things will you try today?”

Featured photo credit: Unsplash via unsplash.com

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