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What the Parents Of Kids With Down Syndrome Want You To Know

What the Parents Of Kids With Down Syndrome Want You To Know
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Dear Stranger,

You may not realize it, but I see you watching my child. Your eyes are everywhere: at the playground, the school, and even in the grocery store. Your stare follows us, and I can even feel your thoughts. You’re wondering about my child, why he looks different, pitying us for our misfortune of having him, feeling sorry for the life my family is living – a life where my child has been diagnosed with Down Syndrome. Passing judgment is such an easy thing to do, but before you judge us, I want you to understand some things about my child.

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The first thing that I need you to understand is that neither myself nor my child have chosen the road of Down Syndrome. It is a difficult road full of intellectual and medical uncertainties, such as lower IQ, heart defects, deafness, and respiratory infections. But no mistakes were made during pregnancy to cause my child to have Down Syndrome. Sometimes things happen that you didn’t see coming. In my child’s DNA, one extra copy of chromosome 21 changed the entire life of my child. It’s that one extra copy that sets my child apart from yours, but please know he isn’t all that different.

It can be seen from the outside that my child has Down Syndrome – this is why you look at him when we pass you. But take a moment to understand what is behind his appearance. His eyes may be slanted, but he holds all of the world’s laughter and joy inside of them. His mouth may look small while his tongue seems too large, but his smile will completely warm your heart. And while his arms may not be very strong, the hugs that he freely gives with them are powerful enough to hold a person together.

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You may have a hard time understanding my child’s speech, and if you saw his test scores you might not be too impressed. And long after your child has stopped having temper-tantrums, my child may still be going through them. But we are lucky to have such wonderful supports from school and Down Syndrome organizations, with therapies and kind teachers that push my child to succeed. My child may not make the milestones that yours does – but his are just as amazing.

Because my child has Down Syndrome, he is not going to be like yours. But in life, no two people are ever walking down the same path. Everyone has their own journey, and this journey is mine to take with my child. There is no doubt that the road ahead will be full of obstacles for us both. In a world made for everyone who is “normal,” it is not easy to fit in when you are so extraordinary. There will be times ahead of us that are filled with frustrations, and tears, as we are continually reminded of the differences between the “normal” world and our child. On these day we remind ourselves that our child is a gift, and no matter how difficult it may seem – he will change the world.

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So next time you see us in the mall, or the restaurant, or taking a walk on a sunny day, please don’t feel sorry for us, thinking about the life that he is destined to miss out on. Instead think of the life full of wonder that he experiences every day. Try to understand how special he is, and how luck we feel to have him. Though his heart may have defects on the outside, the inside of his heart is full of kindness and caring that he loves to give to the world. Share a smile with him, and I promise you won’t be disappointed at how quickly he will make your day.

Sincerely,
A Very Thankful Parent

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Featured photo credit: Rebecca Wilson via flickr.com

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Last Updated on July 12, 2021

100 Incredible Life Hacks That Make Life So Much Easier

100 Incredible Life Hacks That Make Life So Much Easier
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Want to learn some quick and easy life hacks that are easy to do, low cost and saves you time?

By tweaking little things in your daily life, it can make your life much more convenient!

Here’re 100 of the most practical life hacks so you can just pick up any of them right away!

83 tie a small piece of bright colored fabric

    84 write random letter

      85 use a rubberband

        86 dorm smell bad

          87 lean your phone on your sunglassess

            89 how to waterproof your shoes

              90 take a picture of the name card

                91 iron inside out

                  92 old newspaper

                    93 tumble try shoes

                      keep a card like this

                        SONY DSC

                          94 soap bar

                            95 make a hole

                              96 drop the battery

                                97 use a coozie

                                  98 when taking a picture

                                    use a clean dust pan

                                      try a pants hanger

                                        use your cellphone light

                                          use a spring from an old pen

                                            quick and easy iphone speaker

                                              user binder clips

                                                wrap a wet paper towel around your beverage

                                                  put pancake mix in a ketchup bottle

                                                    clean out an old lotion bottle for your beach

                                                      use a muffin tin to serve condiments at a bbq

                                                        doritos are great for kindling

                                                          use nail polish to identify different keys

                                                            use a hanging shoe rack to store cleaning supplies

                                                              freeze grapes to chill white wine without

                                                                use paper clips to organize your cables

                                                                  almost finished your jar of nutella

                                                                    sick of having a box full of tangled

                                                                      unroll the rim to increase the capacity

                                                                        cut open toilet paper rolls and use as a cuff

                                                                          remove the stem from strawberries

                                                                            turn an old bottle into a simple little cord holder

                                                                              for iced coffee and iced cappuccino, use frozen coffee cubes

                                                                                how to fold a fitted bed sheet

                                                                                  tired of snoozing past your alarm

                                                                                    place a rubber band around an open paint can to wipe your brush on

                                                                                      ut a wooden spoon across a boiling pot

                                                                                        use bread clips to save flip-flops

                                                                                          take pictures of friends holding items

                                                                                            how i always know which headphone is the left one

                                                                                              put a stocking over the end of a vacuum

                                                                                                How to make sure you drink enough water

                                                                                                  user a can opener to open blister

                                                                                                    good sandwich guide

                                                                                                      turn your muffin pans upside down

                                                                                                        50 pounds of groceries and living on the 5th floor

                                                                                                          the right way to make a blt

                                                                                                            add one teaspoon of baking soda

                                                                                                              38

                                                                                                                hair straighteners equals to collar irons

                                                                                                                  stack your clothes vertically to see them all

                                                                                                                    the right way to make cookies in the summer

                                                                                                                      how to clean a blender

                                                                                                                        the right way to eat a popsicle

                                                                                                                          use bread clips to label and organize power cords

                                                                                                                            to get the built up residue off of your shower head

                                                                                                                              user a hair clip to orgainize long wires

                                                                                                                                a frozen saturated sponge in a bag

                                                                                                                                  rub stuck zipper teeth with a graphite pencil

                                                                                                                                    use a soda pop tab

                                                                                                                                      50

                                                                                                                                        51 How to multiply large numbers in your head.

                                                                                                                                          52 How to open a bottle if you dont have a corkscrew.

                                                                                                                                            rub a walnut on damaged wooden furniture

                                                                                                                                              kids fall out of bed

                                                                                                                                                use toothpaste to clear up hazy car

                                                                                                                                                  58

                                                                                                                                                    59 keep pizza out while driving home

                                                                                                                                                      60 put your straw through the tab to keep it from rising

                                                                                                                                                        hold oreos with a fork so your fingers

                                                                                                                                                          Never lose your remotes again

                                                                                                                                                            hiding your emergency money

                                                                                                                                                              use a bread tab to hold your spot on a roll

                                                                                                                                                                if you are at a hotel and run out of chargers

                                                                                                                                                                  keep a square of cardboard in a ziplock bag

                                                                                                                                                                    If you need to pee or smoke at a bar

                                                                                                                                                                      drill holes in the bottom of your garbage

                                                                                                                                                                        use an accented letter as your passcode

                                                                                                                                                                          use a squeeze ketchup bottle top with your shopvac

                                                                                                                                                                            do something unusual when locking the door

                                                                                                                                                                              when heating leftovers space out a circle in the middle

                                                                                                                                                                                dont burn yourself in those hard to reach candles

                                                                                                                                                                                  put a small amount of water in a glass when you microwave your pizza

                                                                                                                                                                                    75 use a piece of paper to organize

                                                                                                                                                                                      use half a pool noodle

                                                                                                                                                                                        pencil case to store cables

                                                                                                                                                                                          78 clothespin to hold nail

                                                                                                                                                                                            79 make blts

                                                                                                                                                                                              80 take a picture of your fridge

                                                                                                                                                                                                81 fill plastic water bottles

                                                                                                                                                                                                  82 right ways to eat chips

                                                                                                                                                                                                    99 if your plug keeps failing

                                                                                                                                                                                                      100 put the banana on the wire

                                                                                                                                                                                                        88 before you throw away a post it

                                                                                                                                                                                                          Source: Reddit LifeProTips

                                                                                                                                                                                                          There you go, 100 awesome life hacks that you can try right now to make your life a lot easier!

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