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5 Misconceptions About Your Loved One Fighting Lupus

5 Misconceptions About Your Loved One Fighting Lupus

If you love someone fighting lupus, you very likely know that this disease is an autoimmune disorder. This means that the immune system is out of sync and attacks healthy body tissue.

It just cannot distinguish the threats from the benign elements. The result is usually painful inflammation of the joints. Its official name is Systemic Lupus Erythematosus (SLE). Symptoms range from mild to severe and the disease may manifest itself in joint pain, chronic fatigue, skin rashes, migraines, ulcers and may damage internal organs such as the kidneys and heart.

If you have a loved one struggling with lupus right now, there are a few choice misconceptions that others believe and that you should keep in mind as you support them.

1. They have an easily understood disease

In spite of the fact that 1 in 185 Americans suffer from lupus, the majority of the population is extremely ignorant about this disease. They also think it is contagious, which is completely false and they persist in thinking that only the elderly are affected.

The reality is that the most common age group to be affected is actually in the 15 – 45 range. Only about 10% of lupus sufferers are men, so it is generally a women’s disease. Thanks to Toni Braxton, the reality TV star and award winning singer, who has come out about her daily battle with lupus, there is more public awareness now of what the disease involves.

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Watch the video of Toni here,as she describes some of her daily struggles.

2. They are very lazy

Few people understand any condition which involves chronic fatigue and they just assume that the people are plain lazy and they ought to get on with it. This applies to many diseases such as chronic fatigue syndrome (CFS), and lupus is no exception. Toni Braxton describes it as like having the flu, but every day.

Telling their doctor that they are tired is often very difficult as you can see from the sufferers’ comments here on the Lupus Foundation of America’s Facebook page. The fact that this post was liked by more than 1,000 people speaks volumes.

You can support your loved one better by bearing in mind that they will almost always need more rest than anyone else in the family or circle of friends.

3. They cannot have children

Lots of people mistakenly think that a woman with lupus may have a very risky pregnancy and that the child will be born with some birth defect. This is just a myth though, as the risk of birth defects with a woman with lupus is exactly the same as any normal pregnancy.

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Women with lupus are generally advised to plan their pregnancy when their disease is in remission though. This normally makes things much easier for them.

Lupus sufferers have to be carefully monitored as there are some dangers, but they very often carry a child successfully to term. There is a small chance that the lupus condition can be passed on to the child, but in reality, these risks are minimal.

4. They can be easily diagnosed

Diagnosis is not just simple blood work and many people think that a visit to the doctor can confirm the diagnosis. But it is much more complicated than that. This disease is often called “the great imitator” because its symptoms could be many other diseases.

In addition, there are flare ups which mean that the disease may come and go, and change over time. The doctor, if she suspects lupus, will order a complete set of laboratory tests. Antibody testing, a complete blood count, kidney and liver functions, and blood cells sedimentation rates are usually ordered.

Getting treatment is not that easy either, as the best person to treat it is usually a rheumatologist as that is also a connective tissue disease. This is also why doctors use the American College of Rheumatology guidelines to help them diagnose lupus.

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There are just not enough rheumatologists to go around, which means that the best qualified specialist is often not available.

5. They probably got it from their parents

This is another myth, because the actual genetic factor is quite small, statistically. It is thought that only about 5% of parents will pass on the disease to their offspring. Research so far has failed to identify a gene or group of genes that might be responsible.

The fact that Native Americans, Native Hawaiians, African and Asian ethnic groups are at greater risk certainly suggests a genetic link. There are also environmental issues involved which specialists do not fully understand, as yet.

If you talk to lupus sufferers, you will find that the hardest part for them is trying to make friends and family understand what they are going through. Some of the symptoms are vague and that is part of the problem.

The mental and physical suffering is often brushed under the carpet by the sufferers themselves because they are not getting enough support and sympathy. Talking openly and honestly about this chronic condition is often the best way to help.

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This is a great step toward accepting changes in lifestyle for family members and also helping to meet the patients’ needs.

“I was upfront about having lupus, but it never came up in the show. I didn’t want anyone thinking they had an advantage – there’s a fine line between what you tell and what you don’t.” – Leslie Hunt, season six contestant on ‘American Idol’

Featured photo credit: Fuente: Com Salud/ Com Salud Agencia via flickr.com

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Robert Locke

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Last Updated on September 20, 2018

7 Powerful Questions To Find Out What You Want To Do With Your Life

7 Powerful Questions To Find Out What You Want To Do With Your Life

What do I want to do with my life? It’s a question all of us think about at one point or another.

For some, the answer comes easily. For others, it takes a lifetime to figure out.

It’s easy to just go through the motions and continue to do what’s comfortable and familiar. But for those of you who seek fulfillment, who want to do more, these questions will help you paint a clearer picture of what you want to do with your life.

1. What are the things I’m most passionate about?

The first step to living a more fulfilling life is to think about the things that you’re passionate about.

What do you love? What fulfills you? What “work” do you do that doesn’t feel like work? Maybe you enjoy writing, maybe you love working with animals or maybe you have a knack for photography.

The point is, figure out what you love doing, then do more of it.

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2. What are my greatest accomplishments in life so far?

Think about your past experiences and the things in your life you’re most proud of.

How did those accomplishments make you feel? Pretty darn good, right? So why not try and emulate those experiences and feelings?

If you ran a marathon once and loved the feeling you had afterwards, start training for another one. If your child grew up to be a star athlete or musician because of your teachings, then be a coach or mentor for other kids.

Continue to do the things that have been most fulfilling for you.

3. If my life had absolutely no limits, what would I choose to have and what would I choose to do?

Here’s a cool exercise: Think about what you would do if you had no limits.

If you had all the money and time in the world, where would you go? What would you do? Who would you spend time with?

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These answers can help you figure out what you want to do with your life. It doesn’t mean you need millions of dollars to be happy though.

What it does mean is answering these questions will help you set goals to reach certain milestones and create a path toward happiness and fulfillment. Which leads to our next question …

4. What are my goals in life?

Goals are a necessary component to set you up for a happy future. So answer these questions:

Once you figure out the answers to each of these, you’ll have a much better idea of what you should do with your life.

5. Whom do I admire most in the world?

Following the path of successful people can set you up for success.

Think about the people you respect and admire most. What are their best qualities? Why do you respect them? What can you learn from them?

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You’re the average of the 5 people you spend the most time with.[1] So don’t waste your time with people who hold you back from achieving your dreams.

Spend more time with happy, successful, optimistic people and you’ll become one of them.

6. What do I not like to do?

An important part of figuring out what you want to do with your life is honestly assessing what you don’t want to do.

What are the things you despise? What bugs you the most about your current job?

Maybe you hate meetings even though you sit through 6 hours of them every day. If that’s the case, find a job where you can work more independently.

The point is, if you want something to change in your life, you need to take action. Which leads to our final question …

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7. How hard am I willing to work to get what I want?

Great accomplishments never come easy. If you want to do great things with your life, you’re going to have to make a great effort. That will probably mean putting in more hours the average person, getting outside your comfort zone and learning as much as you can to achieve as much as you can.

But here’s the cool part: it’s often the journey that is the most fulfilling part. It’s during these seemingly small, insignificant moments that you’ll often find that “aha” moments that helps you answer the question,

“What do I want to do with my life?”

So take the first step toward improving your life. You won’t regret it.

Featured photo credit: Andrew Ly via unsplash.com

Reference

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